The precariousness of living with, and caring for people with, dementia
Insights from the Ideal programme
Bibliographic Data
| ID | 4597839 |
|---|---|
| Authors | A Hillman (0000-0003-1859-1075, Swansea University, corresponding author), Ian Rees Jones (0000-0002-1682-9134, Cardiff University), Charlotte Quinn (0000-0001-9553-853X, University of Bradford), Claire Pentecost (0000-0003-2048-5538, University of Exeter), Stapley (0000-0001-5538-8717, University of Exeter), S Stapley (0009-0000-5387-8317), C Charlwood (0000-0002-3522-8457, University of Exeter), L Clare (0000-0003-3989-5318, University of Exeter) |
| Year | 2023 |
| Volume | 331 |
| Pages | 116098 |
| Publication date | 2023-08-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Social Science & Medicine (JOURNAL) |
| Journal identifiers | ISSN: 0277-9536 • E-ISSN: 1873-5347 |
| Publisher | Elsevier BV (PUBLISHER) |
| DOI | 10.1016/j.socscimed.2023.116098 |
| PMID | 37480697 |
| OpenAlex | W4384469557 |
| Language | EN |
| Citations received | 2 |
| References cited | 36 |
This paper uses precarity as a framework to understand the vulnerabilities experienced by those living with or caring for someone living with dementia. Drawing on qualitative interview data from the Improving the Experience of Dementia and Enhancing Active Life (IDEAL) programme, we attend to our participants' reflections on how they manage the condition and the wider circumstances in which this occurs. To interrogate the utility of precarity, we focus on our participants' descriptions of needs and challenges and set these alongside both the wider contexts in which they seek or offer care (formal and informal) and the sets of values attributed to different ways of living with dementia. Building on the work of Portacolone, our analysis identified four interconnected themes: uncertainty; experiences of support and services; independence and personhood; and cumulative pressures and concerns. We develop this analysis by reviewing how our themes reflect, extend, or depart from previously identified markers of precarity and consider the specific ways in which these markers shape the lives of those living with dementia
Dementia · Disease · Epistemology · Ideal (ethics · Sociology · Aging, Elder Care, and Social Issues · Gender Studies · Health disparities and outcomes · Intergenerational Family Dynamics and Caregiving · Medicine · Philosophy · Psychology · Gerontology
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| Unique citing works | 2 |
|---|---|
| Citations per year | 1 |
| Citation span | 2024 - 2026 (3) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 1 |