Lyndal Trevena
Biographic Data
| ID | 2419807 |
|---|---|
| NAME | Lyndal Trevena |
| GIVEN NAMES | Lyndal |
| FAMILY NAME | Trevena |
| SIGNATURE | TREVENA L |
| AFFILIATIONS | The University of Sydney |
| ORCID | 0000-0003-1419-1832 |
| VERIFIED | Yes |
| TOTAL WORKS | 21 |
| TOTAL CITATIONS | 25 |
| WORKS AS AUTHOR | 21 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2008 |
| LATEST PUBLICATION YEAR | 2024 |
| H-INDEX | 2 |
Navigating two worlds
Finding Your Way is a shared decision making (SDM) resource created with and for Aboriginal people in 2021. It is the only culturally adapted SDM resource for Aboriginal people in Australia and one of few examples developed with First Nations people internationally. A two-round modified e-Delphi approach, incorporating yarning methods, was used to gather expert opinions and reach a consensus on the capabilities (knowledge and skills) required to …
Exploring the expectations, experiences and tensions of refugee patients and general practitioners in the quality of care in general practice
BACKGROUND: Refugees and asylum seekers arrive in the Australian community with complex health needs and expectations of healthcare systems formed from elsewhere. Navigating the primary healthcare system can be challenging with communication and language barriers. In multicultural societies, this obstacle may be removed by accessing language-concordant care. Emerging evidence suggests language-concordance is associated with more positive reports …
Question prompt lists and endorsement of question‐asking support patients to get the information they seek—A longitudinal qualitative study
INTRODUCTION: Question prompt lists (QPLs) have been found to support patients to ask questions and improve the information they receive from doctors. However, some QPL tools, which have been available online for almost 15 years, have little published data on their impact in real-world settings. This study's aim was to understand patients' attitudes and experiences accessing health information and to assess the impact of introducing two generic Q…
Approaches to delivering appropriate care to engage and meet the complex needs of refugee and asylum seekers in Australian primary healthcare
This study aimed to provide insight and learnings from Australian general practitioners in facilitating positive interactions with refugee and asylum seeker patients and the role they play in helping those community members engage with healthcare. We conducted semi-structured individual remote interviews with 12 general practitioners (GPs) who worked in areas with high refugee and migrant populations. Interview transcripts were coded inductively …
Parent-level barriers to uptake of childhood vaccination
INTRODUCTION: Understanding barriers to childhood vaccination is crucial to inform effective interventions for maximising uptake. Published systematic reviews include different primary studies, producing varying lists of barriers. To make sense of this diverse body of literature, a comprehensive level of summary and synthesis is necessary. This overview of systematic reviews maps all potential parent-level barriers to childhood vaccination identi…
Interventions to improve participation in health‐care decisions in non‐Western countries
Decision aids for people facing health treatment or screening decisions
BACKGROUND: Decision aids are interventions that support patients by making their decisions explicit, providing information about options and associated benefits/harms, and helping clarify congruence between decisions and personal values. OBJECTIVES: To assess the effects of decision aids in people facing treatment or screening decisions. SEARCH METHODS: Updated search (2012 to April 2015) in CENTRAL; MEDLINE; Embase; PsycINFO; and grey literatur…
Qualitative insights into the experience of teaching shared decision making within adult education health literacy programmes for lower‐literacy learners
BACKGROUND: Enhancing health literacy can play a major role in improving healthcare and health across the globe. To build higher-order (communicative/critical) health literacy skills among socially disadvantaged Australians, we developed a novel shared decision making (SDM) training programme for adults with lower literacy. The programme was delivered by trained educators within an adult basic education health literacy course. OBJECTIVE: To explo…
Right choice, right time
BACKGROUND: Appropriate treatment for youth depression is an important public health priority. Shared decision making has been recommended, yet no decision aids exist to facilitate this. OBJECTIVES: The main objective of this study was to evaluate an online decision aid for youth depression. DESIGN: An uncontrolled cohort study with pre-decision, immediately post-decision and follow-up measurements. SETTING AND PARTICIPANTS: Young people (n=66) a…
Can consumers learn to ask three questions to improve shared decision making? A feasibility study of the ASK (AskShareKnow) Patient–Clinician Communication Model ® intervention in a primary health‐car…
OBJECTIVE: To test the feasibility and assess the uptake and acceptability of implementing a consumer questions programme, AskShareKnow, to encourage consumers to use the questions '1. What are my options; 2. What are the possible benefits and harms of those options; 3. How likely are each of those benefits and harms to happen to me?' These three questions have previously shown important effects in improving the quality of information provided du…
Informed choice in bowel cancer screening
Background Offering informed choice in screening is increasingly advocated, but little is known about how evidence‐based information about the benefits and harms of screening influences understanding and participation in screening. Objective We aimed to explore how a bowel cancer screening decision aid influenced decision making and screening behaviour among adults with lower education and literacy. Methods Twenty‐one men and women aged 55–64 yea…
Incorporating evidence and politics in health policy
Much of the evidence translation literature focuses narrowly on the use of evidence in the initial policy formulation stages, and downplays the crucial role of institutions and the inherently political nature of policy making. More recent approaches acknowledge the importance of institutional and political factors, but make no attempt to incorporate their influence into new models of evidence translation. To address this issue, this article uses …
What Australian women want and when they want it
Background New testing technologies and human papillomavirus (HPV) vaccines have recently brought changes to cervical cancer screening. In 2006, the Australian government also changed the protocol for managing abnormal Pap smears. Australian women’s attitudes and preferences to these changes are largely unknown. Quantitative data on information needs and community attitudes to informed decision making in screening in Australia are also limited. O…
Pro-smoking apps
Pro-smoking apps were popular in many countries. Most apps were assigned to entertainment and games categories, with some apps specifically targeting children through placement in categories directed at children. App stores that feature pro-smoking apps may be in violation of tobacco control laws
Shared decision making
Although many clinicians feel they already use shared decision making, research shows a perception-reality gap. A M Stiggelbout and colleagues discuss why it is important and highlight some best practices.
Pro-smoking apps for smartphones
Tobacco products are being promoted in the new 'smartphone app' medium which has global reach, a huge consumer base of various age groups and underdeveloped regulation. The paper also provides two examples of app store responses to country-specific laws and regulations that could be used to control the harmful contents in the app stores for individual countries
When good evidence is not enough
Bowel cancer is a serious health problem in developed countries. Australia, the United Kingdom (UK) and New Zealand (NZ) reviewed the same randomised controlled trial evidence on the benefits and harms of population-based bowel cancer screening. Yet only NZ, with the highest age standardised rate of bowel cancer mortality, decided against introducing a bowel cancer screening programme. This case study of policy making explores the unique resource…
Getting evidence into policy
Do audio‐guided decision aids improve outcomes? A randomized controlled trial of an audio‐guided decision aid compared with a booklet decision aid for Australian women considering labour analgesia
Objective To assess the effectiveness of an audio‐guided component: an audio‐guided decision aid vs. a stand‐alone booklet decision aid. Background Despite extensive evaluation of decision aids in clinical settings the presentation style has not been properly assessed, and audio‐guided decision aids are widely used although not supported by evidence‐based research. Design Randomized controlled trial. Setting and participants Two obstetric hospita…
Exploring patient involvement in healthcare decision making across different education and functional health literacy groups
Information needs and preferences of low and high literacy consumers for decisions about colorectal cancer screening
Context The use of written decision aids (DAs) in clinical practice has proliferated. However, few DAs have been developed for low literacy users, despite this group having low knowledge about healthcare and lacking involvement in health decisions. Objective To explore the information needs and understanding of adults with varying literacy in relation to colorectal cancer screening, and to consider their responses to two versions of a decision ai…
Exploring patient involvement in healthcare decision making across different education and functional health literacy groups
Getting evidence into policy
Approaches to delivering appropriate care to engage and meet the complex needs of refugee and asylum seekers in Australian primary healthcare
This study aimed to provide insight and learnings from Australian general practitioners in facilitating positive interactions with refugee and asylum seeker patients and the role they play in helping those community members engage with healthcare. We conducted semi-structured individual remote interviews with 12 general practitioners (GPs) who worked in areas with high refugee and migrant populations. Interview transcripts were coded inductively …
Information needs and preferences of low and high literacy consumers for decisions about colorectal cancer screening
Context The use of written decision aids (DAs) in clinical practice has proliferated. However, few DAs have been developed for low literacy users, despite this group having low knowledge about healthcare and lacking involvement in health decisions. Objective To explore the information needs and understanding of adults with varying literacy in relation to colorectal cancer screening, and to consider their responses to two versions of a decision ai…
Do audio‐guided decision aids improve outcomes? A randomized controlled trial of an audio‐guided decision aid compared with a booklet decision aid for Australian women considering labour analgesia
Objective To assess the effectiveness of an audio‐guided component: an audio‐guided decision aid vs. a stand‐alone booklet decision aid. Background Despite extensive evaluation of decision aids in clinical settings the presentation style has not been properly assessed, and audio‐guided decision aids are widely used although not supported by evidence‐based research. Design Randomized controlled trial. Setting and participants Two obstetric hospita…
Exploring patient involvement in healthcare decision making across different education and functional health literacy groups
When good evidence is not enough
Bowel cancer is a serious health problem in developed countries. Australia, the United Kingdom (UK) and New Zealand (NZ) reviewed the same randomised controlled trial evidence on the benefits and harms of population-based bowel cancer screening. Yet only NZ, with the highest age standardised rate of bowel cancer mortality, decided against introducing a bowel cancer screening programme. This case study of policy making explores the unique resource…
Getting evidence into policy
Shared decision making
Although many clinicians feel they already use shared decision making, research shows a perception-reality gap. A M Stiggelbout and colleagues discuss why it is important and highlight some best practices.
Pro-smoking apps for smartphones
Tobacco products are being promoted in the new 'smartphone app' medium which has global reach, a huge consumer base of various age groups and underdeveloped regulation. The paper also provides two examples of app store responses to country-specific laws and regulations that could be used to control the harmful contents in the app stores for individual countries
What Australian women want and when they want it
Background New testing technologies and human papillomavirus (HPV) vaccines have recently brought changes to cervical cancer screening. In 2006, the Australian government also changed the protocol for managing abnormal Pap smears. Australian women’s attitudes and preferences to these changes are largely unknown. Quantitative data on information needs and community attitudes to informed decision making in screening in Australia are also limited. O…
Pro-smoking apps
Pro-smoking apps were popular in many countries. Most apps were assigned to entertainment and games categories, with some apps specifically targeting children through placement in categories directed at children. App stores that feature pro-smoking apps may be in violation of tobacco control laws
Informed choice in bowel cancer screening
Background Offering informed choice in screening is increasingly advocated, but little is known about how evidence‐based information about the benefits and harms of screening influences understanding and participation in screening. Objective We aimed to explore how a bowel cancer screening decision aid influenced decision making and screening behaviour among adults with lower education and literacy. Methods Twenty‐one men and women aged 55–64 yea…
Incorporating evidence and politics in health policy
Much of the evidence translation literature focuses narrowly on the use of evidence in the initial policy formulation stages, and downplays the crucial role of institutions and the inherently political nature of policy making. More recent approaches acknowledge the importance of institutional and political factors, but make no attempt to incorporate their influence into new models of evidence translation. To address this issue, this article uses …
Can consumers learn to ask three questions to improve shared decision making? A feasibility study of the ASK (AskShareKnow) Patient–Clinician Communication Model ® intervention in a primary health‐car…
OBJECTIVE: To test the feasibility and assess the uptake and acceptability of implementing a consumer questions programme, AskShareKnow, to encourage consumers to use the questions '1. What are my options; 2. What are the possible benefits and harms of those options; 3. How likely are each of those benefits and harms to happen to me?' These three questions have previously shown important effects in improving the quality of information provided du…
Decision aids for people facing health treatment or screening decisions
BACKGROUND: Decision aids are interventions that support patients by making their decisions explicit, providing information about options and associated benefits/harms, and helping clarify congruence between decisions and personal values. OBJECTIVES: To assess the effects of decision aids in people facing treatment or screening decisions. SEARCH METHODS: Updated search (2012 to April 2015) in CENTRAL; MEDLINE; Embase; PsycINFO; and grey literatur…
Qualitative insights into the experience of teaching shared decision making within adult education health literacy programmes for lower‐literacy learners
BACKGROUND: Enhancing health literacy can play a major role in improving healthcare and health across the globe. To build higher-order (communicative/critical) health literacy skills among socially disadvantaged Australians, we developed a novel shared decision making (SDM) training programme for adults with lower literacy. The programme was delivered by trained educators within an adult basic education health literacy course. OBJECTIVE: To explo…
Right choice, right time
BACKGROUND: Appropriate treatment for youth depression is an important public health priority. Shared decision making has been recommended, yet no decision aids exist to facilitate this. OBJECTIVES: The main objective of this study was to evaluate an online decision aid for youth depression. DESIGN: An uncontrolled cohort study with pre-decision, immediately post-decision and follow-up measurements. SETTING AND PARTICIPANTS: Young people (n=66) a…
Interventions to improve participation in health‐care decisions in non‐Western countries
Parent-level barriers to uptake of childhood vaccination
INTRODUCTION: Understanding barriers to childhood vaccination is crucial to inform effective interventions for maximising uptake. Published systematic reviews include different primary studies, producing varying lists of barriers. To make sense of this diverse body of literature, a comprehensive level of summary and synthesis is necessary. This overview of systematic reviews maps all potential parent-level barriers to childhood vaccination identi…
Exploring the expectations, experiences and tensions of refugee patients and general practitioners in the quality of care in general practice
BACKGROUND: Refugees and asylum seekers arrive in the Australian community with complex health needs and expectations of healthcare systems formed from elsewhere. Navigating the primary healthcare system can be challenging with communication and language barriers. In multicultural societies, this obstacle may be removed by accessing language-concordant care. Emerging evidence suggests language-concordance is associated with more positive reports …
Question prompt lists and endorsement of question‐asking support patients to get the information they seek—A longitudinal qualitative study
INTRODUCTION: Question prompt lists (QPLs) have been found to support patients to ask questions and improve the information they receive from doctors. However, some QPL tools, which have been available online for almost 15 years, have little published data on their impact in real-world settings. This study's aim was to understand patients' attitudes and experiences accessing health information and to assess the impact of introducing two generic Q…
Approaches to delivering appropriate care to engage and meet the complex needs of refugee and asylum seekers in Australian primary healthcare
This study aimed to provide insight and learnings from Australian general practitioners in facilitating positive interactions with refugee and asylum seeker patients and the role they play in helping those community members engage with healthcare. We conducted semi-structured individual remote interviews with 12 general practitioners (GPs) who worked in areas with high refugee and migrant populations. Interview transcripts were coded inductively …
Navigating two worlds
Finding Your Way is a shared decision making (SDM) resource created with and for Aboriginal people in 2021. It is the only culturally adapted SDM resource for Aboriginal people in Australia and one of few examples developed with First Nations people internationally. A two-round modified e-Delphi approach, incorporating yarning methods, was used to gather expert opinions and reach a consensus on the capabilities (knowledge and skills) required to …
Medicine (17 works) · Psychology (12 works) · Patient-Provider Communication in Healthcare (10 works) · Alternative medicine (9 works) · Health care (9 works) · Medical education (9 works) · Sociology (9 works) · Political science (8 works) · Qualitative research (8 works) · Decision aids (7 works)