Gail E Henderson
Datos Biográficos
| ID | 245563 |
|---|---|
| NOMBRE | Gail E Henderson |
| NOMBRES | Gail E |
| APELLIDO | Henderson |
| FIRMA | HENDERSON G E |
| AFILIACIONES | University of North Carolina at Chapel Hill |
| ORCID | 0000-0002-4968-7064 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 44 |
| TOTAL DE CITAS | 149 |
| TOTAL COMO AUTOR | 44 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 1982 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2025 |
| ÍNDICE H | 6 |
Development and Evaluation of Decision Partner
Preventive Human Genome Editing and Enhancement
While somatic cell editing to treat disease is widely accepted, the use of human genome editing for “enhancement” remains contested. Scientists and policy‐makers routinely cite the prospect of enhancement as a salient ethical challenge for human genome editing research. If preventive genome editing projects are perceived as pursuing human enhancement, they could face heightened barriers to scientific, public, and regulatory approval. This article…
Why Climate Literacy Is Health Literacy
Health problems of global warming are daunting in severity and magnitude and will only get worse. Yet literacy about these problems is poor and plans to alleviate them are too early in development to be responsive to current levels of global threat and individual need. Social and ecological determinants of health and illness are exacerbated by excessive heat and flooding; lack of food, safe water, and secure shelter; and loss of arable land for f…
Attitudes About Analytic Treatment Interruption (ATI) in HIV Remission Trials with Different Antiretroviral Therapy (ART) Resumption Criteria
Financial Literacy Education in Ontario
Politicians are pushing school boards to do more to ensure students leave school with the financial literacy skills they will need to navigate an increasingly complex financial marketplace. Financial literacy education must start early to achieve this goal, yet there has been very little Canadian research on financial literacy education at the elementary level. This exploratory study used an anonymous, online survey to gain a preliminary understa…
Elementary teachers’ cognitive processes and metacognitive strategies during self-directed online learning
This study involves an in-depth examination of Canadian elementary teachers’ cognitive processes and metacognitive strategies they used during a self-directed online learning experience. The virtual revisit think aloud, a methodology that combines a retrospective procedure with screen recording technology, was used to capture verbalisations from 13 elementary teachers as they used an online database. Resulting think aloud protocols and post-task …
The Future of Bioethics
The Covid‐19 pandemic has concentrated bioethics attention on the “lifeboat ethics” of rationing and fair allocation of scarce medical resources, such as testing, intensive care unit beds, and ventilators. This focus drives ethics resources away from persistent and systemic problems—in particular, the structural injustices that give rise to health disparities affecting disadvantaged communities of color. Bioethics, long allied with academic medic…
Group Resps
Tax incentives encourage Canadian families to save for their children’s post-secondary education. In recent years, the federal government has created and enhanced incentives aimed specifically at low- to middle-income families. To access these incentives, families must open a ‘registered education savings plan’ (RESP). Approximately one-quarter of RESPs are invested in group plan RESPs. Group plan providers are regulated by securities laws. Group…
How Biomedical HIV Prevention Trials Incorporate Behavioral and Social Sciences Research
In the field of biomedical HIV prevention, researchers have meaningfully incorporated behavioral and social sciences research (BSSR) into numerous clinical trials, though the timing and degree of integration have been highly variable. The literature offers few frameworks that systematically characterize these collaborations. To fill this gap, we developed a typology of BSSR approaches within biomedical HIV prevention research. Focusing on trials …
Standardization as performative accountability in biobanking
Population-Based Sexual Behavior Surveys in China
The Organization of Sex Work in Low- and High-Priced Venues with a Focus on the Experiences of Ethnic Minority Women Working in These Venues
Social Contexts of Heterosexual Transmission of HIV/STI in Liuzhou City, China
Affected by HIV Stigma
Neglected ethical issues in biobank management
The empirical literature on the ethical, legal, and social implications (ELSI) of biobanking has almost entirely relied on the perspectives of those outside of biobanks, such as the general public, researchers, and specimen contributors. Little attention has been paid to the perspectives and practices of those who operate biobanks. We conducted a study of U.S. biobanks consisting of six in-depth case studies and a large online survey (N =456), wh…
Improving Participant Understanding of Informed Consent in an HIV-Prevention Clinical Trial
Research Participants' Perspectives on Genotype-Driven Research Recruitment
Genotype-driven recruitment is a potentially powerful approach for studying human genetic variation but presents ethical challenges. We conducted in-depth interviews with research participants in six studies where such recruitment occurred. Nearly all responded favorably to the acceptability of recontact for research recruitment, and genotype-driven recruitment was viewed as a positive sign of scientific advancement. Reactions to questions about …
If I Could in a Small Way Help”
Human genome research depends upon participants who donate genetic samples, but few studies have explored in depth the motivations of genetic research donors. This mixed methods study examines telephone interviews with 752 sample donors in a U.S. genetic epidemiology study investigating colorectal cancer. Quantitative and qualitative results indicate that most participants wanted to help society, and that many also wanted information about their …
The Meaning of Genetic Research Results
In the debate about whether to return individual genetic results to research participants, consideration of the nature of results has taken precedence over contextual factors associated with different study designs and populations. We conducted in-depth interviews with 24 individuals who participated in a genotype-driven study of cystic fibrosis: 9 of the individuals had cystic fibrosis, 15 had participated as healthy volunteers, and all had gene…
Factors Associated with Utilization of a Free HIV VCT Clinic by Female Sex Workers in Jinan City, Northern China
Parents' Online Portrayals of Pediatric Treatment and Research Options
PARENTS OF SERIOUSLY ILL CHILDREN FACE difficult decisions when standard therapies are limited or ineffective. In their search for information, they may turn to websites created by other parents facing similar experiences. We conducted a qualitative content analysis of 21 websites created by families with children affected by cancer or genetic disease, two serious conditions with a range of treatment and clinical trial options. Our research quest…
Factors Related to Female Sex Workers’ Willingness to Utilize VCT Service
Introducing Social and Ethical Perspectives on Gene-Environment Research
Sociologists are increasingly involved with the design and execution of studies that examine the interplay between genes and environment, requiring expertise in measurement of both genetic and nongenetic factors. In addition, there are important lessons from a literature, heretofore directed primarily at medical geneticists and clinical researchers, that examines the ethical, legal, and social implications (ELSI) of the genomic revolution. This a…
Applying Research Ethics Guidelines
CONSIDERABLE VARIATION HAS BEEN demonstrated in applying regulations across research ethics committees (RECs) in the U.S., U.K., and European nations. With the rise of international research collaborations, RECs in developing countries apply a variety of international regulations. We conducted a qualitative descriptive pilot study with members of the national REC in Malawi to determine criteria they use to review research, and their views on inte…
Public Willingness to Participate in and Public Opinions About Genetic Variation Research
Scientists are turning to genetic variation research in hopes of addressing persistent racial/ethnic disparities in health. Despite ongoing controversy, the advancement of genetic variation research is likely to produce new knowledge and technologies that will substantially change the ways in which we understand and value health. They also may affect the ways in which individuals and groups organize socially, politically, and economically. Addres…
Gender and Family Businesses in Rural China
The authors investigate the roles played by women and men in the emerging private sector in rural China. Specifically the authors explore gender and the allocation of labor in household-run businesses in the rural areas of eight provinces. Data collected in the China Health and Nutrition Survey (1989) indicate that households with a large pool of female labor are at no advantage in starting and running a small business; rather business involvemen…
The many meanings of care in clinical research
The conduct of clinical research often involves two distinguishable sets of relationships: the researcher-subject relationship, and the clinician-patient relationship. Some scholars argue that being a patient in a clinical care setting and a subject in a research study are so different that anything that would promote in subjects the view that they are in clinician-patient relationships is exploitative and deceptive. This paper presents findings …
Distribution of medical insurance in China
Equity and the utilization of health services
Trends in health services utilization in eight provinces in China, 1989-1993
Neglected ethical issues in biobank management
The empirical literature on the ethical, legal, and social implications (ELSI) of biobanking has almost entirely relied on the perspectives of those outside of biobanks, such as the general public, researchers, and specimen contributors. Little attention has been paid to the perspectives and practices of those who operate biobanks. We conducted a study of U.S. biobanks consisting of six in-depth case studies and a large online survey (N =456), wh…
If I Could in a Small Way Help”
Human genome research depends upon participants who donate genetic samples, but few studies have explored in depth the motivations of genetic research donors. This mixed methods study examines telephone interviews with 752 sample donors in a U.S. genetic epidemiology study investigating colorectal cancer. Quantitative and qualitative results indicate that most participants wanted to help society, and that many also wanted information about their …
Therapeutic misconception in early phase gene transfer trials
The Meaning of Genetic Research Results
In the debate about whether to return individual genetic results to research participants, consideration of the nature of results has taken precedence over contextual factors associated with different study designs and populations. We conducted in-depth interviews with 24 individuals who participated in a genotype-driven study of cystic fibrosis: 9 of the individuals had cystic fibrosis, 15 had participated as healthy volunteers, and all had gene…
Heatlh care in the People's Republic of China
During a three-month period, all admissions to an infectious disease ward at a tertiary care hospital in the People's Republic of China were studied. The hospital's catchment area covered a population of almost eight million, 10 per cent urban and 90 per cent rural. Seventy-two per cent of the patients admitted to this facility were city dwellers with illnesses which were significantly less serious in degree than the illnesses encountered among p…
Parents' Online Portrayals of Pediatric Treatment and Research Options
PARENTS OF SERIOUSLY ILL CHILDREN FACE difficult decisions when standard therapies are limited or ineffective. In their search for information, they may turn to websites created by other parents facing similar experiences. We conducted a qualitative content analysis of 21 websites created by families with children affected by cancer or genetic disease, two serious conditions with a range of treatment and clinical trial options. Our research quest…
Research Participants' Perspectives on Genotype-Driven Research Recruitment
Genotype-driven recruitment is a potentially powerful approach for studying human genetic variation but presents ethical challenges. We conducted in-depth interviews with research participants in six studies where such recruitment occurred. Nearly all responded favorably to the acceptability of recontact for research recruitment, and genotype-driven recruitment was viewed as a positive sign of scientific advancement. Reactions to questions about …
Group Resps
Tax incentives encourage Canadian families to save for their children’s post-secondary education. In recent years, the federal government has created and enhanced incentives aimed specifically at low- to middle-income families. To access these incentives, families must open a ‘registered education savings plan’ (RESP). Approximately one-quarter of RESPs are invested in group plan RESPs. Group plan providers are regulated by securities laws. Group…
Introducing Social and Ethical Perspectives on Gene-Environment Research
Sociologists are increasingly involved with the design and execution of studies that examine the interplay between genes and environment, requiring expertise in measurement of both genetic and nongenetic factors. In addition, there are important lessons from a literature, heretofore directed primarily at medical geneticists and clinical researchers, that examines the ethical, legal, and social implications (ELSI) of the genomic revolution. This a…
Heatlh care in the People's Republic of China
During a three-month period, all admissions to an infectious disease ward at a tertiary care hospital in the People's Republic of China were studied. The hospital's catchment area covered a population of almost eight million, 10 per cent urban and 90 per cent rural. Seventy-two per cent of the patients admitted to this facility were city dwellers with illnesses which were significantly less serious in degree than the illnesses encountered among p…
The Chinese Hospital
Chinese Medical Modernization. Comparative Policy Continuities, 1930s-1980s
Equity and the utilization of health services
Gender and Family Businesses in Rural China
The authors investigate the roles played by women and men in the emerging private sector in rural China. Specifically the authors explore gender and the allocation of labor in household-run businesses in the rural areas of eight provinces. Data collected in the China Health and Nutrition Survey (1989) indicate that households with a large pool of female labor are at no advantage in starting and running a small business; rather business involvemen…
Distribution of medical insurance in China
Mental Health Care in China
Trends in health services utilization in eight provinces in China, 1989-1993
Beyond Regulation
Studying Benefit in Gene Transfer Research
Re-Drawing Boundaries
Representing the culmination of more than a decade of empirical research in post-Mao China, this collection of essays explores changes in the nature of work in relation to changes in households, migration patterns, and gender roles during an era of economic reform. The contributors are respected scholars in fields that range from history and anthropology to demography and sociology. They use a variety of data and diverse approaches to gauge the i…
Assessing Benefits in Clinical Research
Larry R. Churchill, Daniel K. Nelson, Gail E. Henderson, Nancy M. P. King, Arlene M. Davis, Erin Leahey, Benjamin S. Wilfond, Assessing Benefits in Clinical Research: Why Diversity in Benefit Assessment Can Be Risky, IRB: Ethics & Human Research, Vol. 25, No. 3 (May - Jun., 2003), pp. 1-8
HIV/Aids Risk Among Brothel-Based Female Sex Workers in China
BACKGROUND: Sexual transmission of HIV in China is rapidly increasing, in part driven by commercial sex work. GOAL: This article examines variations in occupational control among one type of brothel-based prostitutes in China, and the relationship between the terms and content of this work and the risk of HIV/AIDS. Organizational factors are discussed as part of the current political, economic, and social context of sex work in China. STUDY: The …
Confidentiality
Surplus men, sex work, and the spread of HIV in China
While 70% of HIV positive individuals live in sub-Saharan Africa, it is widely believed that the future of the epidemic depends on the magnitude of HIV spread in India and China, the world's most populous countries. China's 1.3 billion people are in the midst of significant social transformation, which will impact future sexual disease transmission. Soon approximately 8.5 million 'surplus men', unmarried and disproportionately poor and migrant, w…
Consent Forms and the Therapeutic Misconception
Nancy M. P. King, Gail E. Henderson, Larry R. Churchill, Arlene M. Davis, Sara Chandros Hull, Daniel K. Nelson, P. Christy Parham-Vetter, Barbra Bluestone Rothschild, Michele M. Easter, Benjamin S. Wilfond, Consent Forms and the Therapeutic Misconception: The Example of Gene Transfer Research, IRB: Ethics & Human Research, Vol. 27, No. 1 (Jan. - Feb., 2005), pp. 1-8
Public Willingness to Participate in and Public Opinions About Genetic Variation Research
Scientists are turning to genetic variation research in hopes of addressing persistent racial/ethnic disparities in health. Despite ongoing controversy, the advancement of genetic variation research is likely to produce new knowledge and technologies that will substantially change the ways in which we understand and value health. They also may affect the ways in which individuals and groups organize socially, politically, and economically. Addres…
Using Formative Research to Develop a Context-Specific Approach to Informed Consent for Clinical Trials
PARTICIPANT UNDERSTANDING is of particular concern when obtaining informed consent. Recommendations for improving understanding include disclosing information using culturallyappropriate and innovative approaches. To increase the effectiveness of the consent process for a clinical trial in Malawi on interventions to prevent mother-tochild transmission of HIV during breastfeeding, formative research was conducted to explore the community's underst…
Therapeutic misconception in early phase gene transfer trials
The many meanings of care in clinical research
The conduct of clinical research often involves two distinguishable sets of relationships: the researcher-subject relationship, and the clinician-patient relationship. Some scholars argue that being a patient in a clinical care setting and a subject in a research study are so different that anything that would promote in subjects the view that they are in clinician-patient relationships is exploitative and deceptive. This paper presents findings …
Applying Research Ethics Guidelines
CONSIDERABLE VARIATION HAS BEEN demonstrated in applying regulations across research ethics committees (RECs) in the U.S., U.K., and European nations. With the rise of international research collaborations, RECs in developing countries apply a variety of international regulations. We conducted a qualitative descriptive pilot study with members of the national REC in Malawi to determine criteria they use to review research, and their views on inte…
Factors Related to Female Sex Workers’ Willingness to Utilize VCT Service
Introducing Social and Ethical Perspectives on Gene-Environment Research
Sociologists are increasingly involved with the design and execution of studies that examine the interplay between genes and environment, requiring expertise in measurement of both genetic and nongenetic factors. In addition, there are important lessons from a literature, heretofore directed primarily at medical geneticists and clinical researchers, that examines the ethical, legal, and social implications (ELSI) of the genomic revolution. This a…
Parents' Online Portrayals of Pediatric Treatment and Research Options
PARENTS OF SERIOUSLY ILL CHILDREN FACE difficult decisions when standard therapies are limited or ineffective. In their search for information, they may turn to websites created by other parents facing similar experiences. We conducted a qualitative content analysis of 21 websites created by families with children affected by cancer or genetic disease, two serious conditions with a range of treatment and clinical trial options. Our research quest…
Factors Associated with Utilization of a Free HIV VCT Clinic by Female Sex Workers in Jinan City, Northern China
Psychology (29 obras) · Medicine (28 obras) · Sociology (21 obras) · Political science (19 obras) · China (14 obras) · Ethics in Clinical Research (13 obras) · Public health (13 obras) · Family medicine (11 obras) · Geography (11 obras) · Environmental health (10 obras)