Arwen H Pieterse
Biographic Data
| ID | 2514206 |
|---|---|
| NAME | Arwen H Pieterse |
| GIVEN NAMES | Arwen H |
| FAMILY NAME | Pieterse |
| SIGNATURE | PIETERSE A H |
| AFFILIATIONS | Leiden University Medical Center |
| ORCID | 0000-0001-6395-0052 |
| VERIFIED | Yes |
| TOTAL WORKS | 11 |
| TOTAL CITATIONS | 1 |
| WORKS AS AUTHOR | 11 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2010 |
| LATEST PUBLICATION YEAR | 2024 |
| H-INDEX | 1 |
Patient readiness for shared decision making about treatment
The value of using patient‐reported outcomes for health screening during long‐term follow‐up after paediatric stem cell transplantation for nonmalignant diseases
INTRODUCTION: The assessment of using patient-reported outcomes (PROs) within comprehensive care follow-up programmes, specifically focused on health screening, remains largely unexplored. PROs were implemented in our late effects and comprehensive care programme after paediatric hematopoietic stem cell transplantation (HSCT) for nonmalignant diseases. The programme focuses solely on screening of physical and mental health and on discussing PROs …
Exploring the long‐term psychosocial impact of paediatric haematopoietic stem cell transplantation for nonmalignant diseases
INTRODUCTION: An understanding of the long-term psychosocial impact of paediatric haematopoietic stem cell transplantation (HSCT) for nonmalignant diseases is needed to optimize pre-HSCT counselling, supportive care and long-term follow-up programmes after HSCT for this group of patients and caregivers. METHODS: This qualitative study included 14 patients who underwent transplantation for a nonmalignant disease during childhood. In-depth intervie…
The Video Engagement Scale (VES)
The Video Engagement Scale (VES) is a quality indicator to assess engagement in experimental video-vignette studies, but its measurement properties warrant improvement. Data from previous studies were combined (N = 2676) and split into three subsamples for a stepped analytical approach. We tested construct validity, criterion validity, reliability, and measurement invariance. Confirmatory factor analysis (CFA) reiterated poor fit of the previousl…
Effective health communication – a key factor in fighting the Covid-19 pandemic
Measuring shared decision making in oncology
Shared decision making
The EORTC QLQ-CR29 quality of life questionnaire for colorectal cancer
We found a very satisfactory scale for bowel problems, in patients both with and without stoma. The body image and urinary incontinence scales were reliable, and construct validity was sufficient. We suggest the questionnaire to be adapted to decrease the number of individual items, improve the scales, and therefore increase reliability of the entire questionnaire
On the suitability of fast and frugal heuristics for designing values clarification methods in patient decision aids
Background Increasingly, patient decision aids and values clarification methods (VCMs) are being developed to support patients in making preference‐sensitive health‐care decisions. Many VCMs encourage extensive deliberation about options, without solid theoretical or empirical evidence showing that deliberation is advantageous. Research suggests that simple, fast and frugal heuristic decision strategies sometimes result in better judgments and de…
Theory-informed design of values clarification methods
Methodologic evaluation of adaptive conjoint analysis to assess patient preferences
Background Adaptive conjoint analysis (ACA) is an individually tailored preferences elicitation technique that mimics actual decision‐making processes by asking participants to make trade‐offs between the various dimensions that underlie decision problems. ACA is increasingly applied in patient preferences assessments but formal evaluation of its validity and reliability is lacking. Objective To investigate ACA’s validity and reliability in elici…
Methodologic evaluation of adaptive conjoint analysis to assess patient preferences
Background Adaptive conjoint analysis (ACA) is an individually tailored preferences elicitation technique that mimics actual decision‐making processes by asking participants to make trade‐offs between the various dimensions that underlie decision problems. ACA is increasingly applied in patient preferences assessments but formal evaluation of its validity and reliability is lacking. Objective To investigate ACA’s validity and reliability in elici…
On the suitability of fast and frugal heuristics for designing values clarification methods in patient decision aids
Background Increasingly, patient decision aids and values clarification methods (VCMs) are being developed to support patients in making preference‐sensitive health‐care decisions. Many VCMs encourage extensive deliberation about options, without solid theoretical or empirical evidence showing that deliberation is advantageous. Research suggests that simple, fast and frugal heuristic decision strategies sometimes result in better judgments and de…
Theory-informed design of values clarification methods
Shared decision making
The EORTC QLQ-CR29 quality of life questionnaire for colorectal cancer
We found a very satisfactory scale for bowel problems, in patients both with and without stoma. The body image and urinary incontinence scales were reliable, and construct validity was sufficient. We suggest the questionnaire to be adapted to decrease the number of individual items, improve the scales, and therefore increase reliability of the entire questionnaire
Effective health communication – a key factor in fighting the Covid-19 pandemic
Measuring shared decision making in oncology
Exploring the long‐term psychosocial impact of paediatric haematopoietic stem cell transplantation for nonmalignant diseases
INTRODUCTION: An understanding of the long-term psychosocial impact of paediatric haematopoietic stem cell transplantation (HSCT) for nonmalignant diseases is needed to optimize pre-HSCT counselling, supportive care and long-term follow-up programmes after HSCT for this group of patients and caregivers. METHODS: This qualitative study included 14 patients who underwent transplantation for a nonmalignant disease during childhood. In-depth intervie…
The Video Engagement Scale (VES)
The Video Engagement Scale (VES) is a quality indicator to assess engagement in experimental video-vignette studies, but its measurement properties warrant improvement. Data from previous studies were combined (N = 2676) and split into three subsamples for a stepped analytical approach. We tested construct validity, criterion validity, reliability, and measurement invariance. Confirmatory factor analysis (CFA) reiterated poor fit of the previousl…
Patient readiness for shared decision making about treatment
The value of using patient‐reported outcomes for health screening during long‐term follow‐up after paediatric stem cell transplantation for nonmalignant diseases
INTRODUCTION: The assessment of using patient-reported outcomes (PROs) within comprehensive care follow-up programmes, specifically focused on health screening, remains largely unexplored. PROs were implemented in our late effects and comprehensive care programme after paediatric hematopoietic stem cell transplantation (HSCT) for nonmalignant diseases. The programme focuses solely on screening of physical and mental health and on discussing PROs …
Medicine (9 works) · Psychology (9 works) · Clinical Psychology (6 works) · Computer Science (6 works) · Patient-Provider Communication in Healthcare (5 works) · Cancer survivorship and care (4 works) · Health Systems, Economic Evaluations, Quality of Life (4 works) · Psychometrics (4 works) · Construct validity (3 works) · Internal Medicine (3 works)