Edith Raap
Biographic Data
| ID | 2577576 |
|---|---|
| NAME | Edith Raap |
| GIVEN NAMES | Edith |
| FAMILY NAME | Raap |
| SIGNATURE | RAAP E |
| AFFILIATIONS | University of Applied Sciences Utrecht |
| ORCID | 0000-0002-3660-0564 |
| VERIFIED | Yes |
| TOTAL WORKS | 3 |
| TOTAL CITATIONS | 1 |
| AUTHOR COUNT | 3 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2025 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 1 |
Vulnerabilities and Missed Chances
The study explored how chronic sorrow in parents of disabled children impacts everyday interactions between parents and professionals in caregiving contexts. Chronic sorrow, characterized by ongoing feelings of grief and loss in parents, related to their child's disability, is increasingly recognized as having an influence on the relationship between professionals and parents. However, there is a lack of in-depth understanding of how chronic sorr…
It is up to me because I gave him this life’ How the awareness of being permanently and unconditionally responsible shapes the experience of chronic sorrow in parents of disabled children
OBJECTIVE: The majority of parents with a disabled child experience chronic sorrow, characterized by recurrent feelings of grief and loss related to their child's disability. There is a significant lack of research on parents' lived experiences of chronic sorrow, which limits our ability to understand parents' needs and provide proper support. DESIGN: Interpretative Phenomenological Analysis (IPA) was conducted based on in-depth interviews with s…
I am the mother of the kind of child you dread having
Chronic sorrow involves parents' enduring grief due to their child's disability. This stems not only from the recurring painful reality parents face, which differs from the life they had hoped for their children, families, and themselves but from also being confronted with societal and personal norms and expectations they cannot meet. There is a lack of research on the lived experiences of parents' chronic sorrow. An Interpretative Phenomenologic…
I am the mother of the kind of child you dread having
Chronic sorrow involves parents' enduring grief due to their child's disability. This stems not only from the recurring painful reality parents face, which differs from the life they had hoped for their children, families, and themselves but from also being confronted with societal and personal norms and expectations they cannot meet. There is a lack of research on the lived experiences of parents' chronic sorrow. An Interpretative Phenomenologic…
It is up to me because I gave him this life’ How the awareness of being permanently and unconditionally responsible shapes the experience of chronic sorrow in parents of disabled children
OBJECTIVE: The majority of parents with a disabled child experience chronic sorrow, characterized by recurrent feelings of grief and loss related to their child's disability. There is a significant lack of research on parents' lived experiences of chronic sorrow, which limits our ability to understand parents' needs and provide proper support. DESIGN: Interpretative Phenomenological Analysis (IPA) was conducted based on in-depth interviews with s…
I am the mother of the kind of child you dread having
Chronic sorrow involves parents' enduring grief due to their child's disability. This stems not only from the recurring painful reality parents face, which differs from the life they had hoped for their children, families, and themselves but from also being confronted with societal and personal norms and expectations they cannot meet. There is a lack of research on the lived experiences of parents' chronic sorrow. An Interpretative Phenomenologic…
Vulnerabilities and Missed Chances
The study explored how chronic sorrow in parents of disabled children impacts everyday interactions between parents and professionals in caregiving contexts. Chronic sorrow, characterized by ongoing feelings of grief and loss in parents, related to their child's disability, is increasingly recognized as having an influence on the relationship between professionals and parents. However, there is a lack of in-depth understanding of how chronic sorr…
Family and Disability Support Research (3 works) · Sorrow (3 works) · Developmental psychology (2 works) · Family Support in Illness (2 works) · Grief (2 works) · Infant Development and Preterm Care (2 works) · Psychology (2 works) · Child Welfare and Adoption (1 works) · Family and Patient Care in Intensive Care Units (1 works) · Feeling (1 works)