Jacqueline E W Broerse
Biographic Data
| ID | 310922 |
|---|---|
| NAME | Jacqueline E W Broerse |
| GIVEN NAMES | Jacqueline E W |
| FAMILY NAME | Broerse |
| SIGNATURE | BROERSE J E W |
| AFFILIATIONS | Vrije Universiteit Amsterdam |
| ORCID | 0000-0002-8478-3422 |
| VERIFIED | Yes |
| TOTAL WORKS | 83 |
| TOTAL CITATIONS | 120 |
| AUTHOR COUNT | 83 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2001 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 5 |
Opening the door: The role of imperfect citizen dialogue in institutional change in smart city innovation
Citizen engagement is often considered essential to responsible innovation but criticized for lacking systemic effort. This study examines how citizen engagement initiatives may navigate systemic barriers in technology development by reflecting on attempts to organize citizen dialogue in Amsterdam’s smart city system. Specifically, we investigate the Digital Perimeter, a flagship innovation project to develop ‘ethical’ surveillance technologies f…
Gender-based violence policies and practices in humanitarian settings: A qualitative policy analysis, North Ethiopia
Gender-based violence (GBV) is a major public health issue, further intensified in humanitarian crises. In Ethiopia’s northern conflict (2021–ongoing), the scale of GBV underscores the urgent need for context-sensitive policy and service delivery. We conducted a policy analysis of national GBV-related policies within the context of the northern Ethiopia conflict. This was complemented by 9 focus group discussions with relevant stakeholders, i.e.,…
Pathways from integrated agriculture and health-based interventions to nutrition: A case from Southern Bangladesh
Objective: We aimed to analyse the effects of nutrition-sensitive agriculture (NSA) interventions on nutrition, examine the pathways within a project cycle and explore the pathways 3 years after the end of the funding period. Design: We employed a sequential mixed-methods design using (1) secondary quantitative data and (2) primary qualitative data. The quantitative data were analysed using the Mann–Whitney test, independent sample t test and bin…
Science Shops as key intermediary structures to respond to the current health research agenda bias: Evidence from the InSPIRES project
INTRODUCTION: To increase the likelihood of research responding to societal needs, intermediary structures such as Science Shops are being created. Science Shops respond to research needs identified and prioritized through participatory processes involving civil society. However, these are not mainstream structures, and most research needs addressed by the scientific community are not defined by a diversity of stakeholders (including citizens) bu…
Labbing for sustainability transformations: Learning about challenges and strategies for impact
Creating impact in labs oriented at sustainability transformations is challenging. Combining the experiences of ten projects and sharing the insights in “Labbing”, gained through engaging in various activities within transformation-oriented Labs from the fields of agriculture, food, and healthcare, the author team established a Community of Practice at the Vrije Universiteit Amsterdam, to identify impact challenges inductively and recommend pract…
Exploring possibilities for child participation in guideline development: The need for a fundamental reconsideration and reconfiguration of the system
While the right of children to be involved in decisions that concern them has been widely recognised, they are currently barely involved in guideline development in healthcare. This paper aims to explore what a future guideline development system in which children are meaningfully involved might look like and to reflect on the transition required to achieve this. We used a systems innovation perspective, exploring child participation within its s…
Towards new perspectives of stakeholder engagement in sustainability transitions: Bringing the supranational level into view
Although stakeholder engagement is a well-discussed topic within sustainability transitions research, it is underexplored in the context of supranational actors, such as the EU, despite the apparent relevance. Through the case study of the European citizen and stakeholder consultations around European Green Deal (EGD), this paper investigates the implications of stakeholder engagement conducted on a supranational level. By applying a transitions-…
Welcome to the fertility clinic of the future! Using speculative design to explore the moral landscape of reproductive technologies
The evolving field of reproductive technologies greatly alters our practices of conception and pregnancy. It is thus crucial to develop such innovations in a democratic and sustainable manner through public participation. To date, participation has mostly focused on patients or health professionals deliberating on technological risks, benefits, costs, and healthcare experiences. Thereby, the opportunity is missed to consider broader social and mo…
Scalability of digital psychological innovations for refugees: A comparative analysis in Egypt, Germany, and Sweden
E-mental health interventions may offer innovative means to increase access to psychological support and improve the mental health of refugees. However, there is limited knowledge about how these innovations can be scaled up and integrated sustainably into routine services. This study examined the scalability of a digital psychological intervention called Step-by-Step (SbS) for refugees in Egypt, Germany, and Sweden. We conducted semi-structured …
Scaling up task-sharing psychological interventions for refugees in Jordan: A qualitative study on the potential barriers and facilitators
Training nonspecialists in providing evidence-based psychological interventions (i.e. task-sharing) can effectively increase community access to psychological support. However, task-sharing interventions for this purpose are rarely used at scale. The aim of this study was to examine the factors influencing the potential for scaling up (i.e. scalability) of a task-sharing psychological intervention called Problem Management Plus (PM+) for Syrian r…
Connecting relational wellbeing and participatory action research: Reflections on ‘unlikely’ transformations among women caring for disabled children in South Africa
Participatory action research (PAR) is a form of community-driven qualitative research which aims to collaboratively take action to improve participants’ lives. This is generally achieved through cognitive, reflexive learning cycles, whereby people ultimately enhance their wellbeing. This approach builds on two assumptions: (1) participants are able to reflect on and prioritize difficulties they face; (2) collective impetus and action are progres…
NGOs and the Promotion of the Sexual and Reproductive Rights of Girls and Young Women with Disabilities in Zimbabwe
This case study investigates strategies used by the NGO Leonard Cheshire Disability Zimbabwe (LCDZ) to promote the SRHRs of girls and young women with disabilities in Zimbabwe. The findings show that LCDZ employed a combination of six strategies. These are: (1) building practical knowledge on SRHRs; (2) increasing community awareness and sensitivity; (3) providing SRHRs-related education; (4) enhancing access to justice and related services for s…
Food policy networks and their potential to stimulate systemic intermediation for food system transformation
Food policy networks (FPNs) are innovative governance instruments that aim to stimulate much-needed food system transformation. However, there is limited insight into what factors affect their potential to be impactful. This study aimed to investigate what challenges FPNs as systemic transition intermediaries face and how they navigate those challenges. We analyzed four Dutch FPNs using interviews, document analysis, and participant observation. …
Guiding visions of corporate smart city innovators: Identifying opportunities for participatory futuring
Since the smart city vision increasingly shapes our urban life globally, it becomes ever more urgent to integrate participatory futuring in ongoing smart city-related technology development. This study aimed to find starting points for such integration by unraveling the ‘guiding visions’ of corporate technological innovators in the smart mobility and transport sector around Amsterdam. We conducted and analyzed interviews with innovators from 12 s…
Cancer as a death sentence: Developing an initial program theory for an IVR intervention
To address current trends in poor health-seeking behaviour and late cancer diagnosis in many low- and middle-income countries, like Uganda, it is important to explore innovative awareness building interventions. One possible intervention is a common digital format, an interactive voice response (IVR) system, which is suitable for individuals with low technological and reading literacy. It is increasingly acknowledged that developing digital inter…
Scalability of a task-sharing psychological intervention for refugees: A qualitative study in the Netherlands
Mental health systems across the world struggle to meet the needs of present and future populations. People affected by war and forced displacement, such as refugees, have especially high unmet psychological needs. Shifting tasks from mental health specialists to less specialised providers is increasingly opted as an innovative solution to overcome the mental health care gap. Yet little is known about how task-sharing interventions for refugees c…
Art for public engagement on emerging and controversial technologies: A literature review
Art is increasingly used to engage publics on emerging and controversial technologies, but we still know little about what works in art-based engagement and why. To investigate what art can do for public engagement, we systematically reviewed academic work published from 2000 to 2018 about the effect of art on organized public engagement. We used the dimensions of Responsible Research and Innovation as an analytical framework to identify what out…
Adoption of harmonisation policy for the midwives’ training programme in Mali: A policy analysis
West Africa is engaged in a process of harmonising health workers’ training programmes as a means to regulate regional training standards and thus improve their quality. There is currently a lack of documented information regarding the adoption of these revised training programmes. In 2012 a harmonised programme, the WAHO competency-based curriculum, was introduced in Mali for training midwives. The present study explores the barriers and facilit…
There is nothing nano-specific here’: A reconstruction of the different understandings of responsiveness in responsible nanotechnology innovation
In the past decades, controversies in science and technology have fuelled the call for a research and innovation system that is open to public scrutiny and sensitive to public needs and values. These calls have been translated into a framework for responsible research and innovation (RRI). Despite its crucial role in RRI, the dimension of responsiveness is still considered to be the least conceptualized. In this paper, we analyse the mutual searc…
Fun, engaging and easily shareable? Exploring the value of co-creating vlogs with citizens from disadvantaged neighbourhoods
The use of vlogs is promising in participatory action research (PAR) that aims to enhance the health and well-being of citizens. Vlogs have the potential to reach a wide audience, transcending the local scale of PAR. This article aims to explore the value of co-creating vlogs by investigating two exploratory studies involving adolescents and women from disadvantaged neighbourhoods. We reflected on the co-creation of vlogs by community members and…
Governing translocal experimentation in multi-sited transition programs: Dynamics and challenges
Exploring the boundaries of ‘good’ Participatory Action Research in times of increasing popularity: Dealing with constraints in local policy for digital inclusion
The popularity of Participatory Action Research (PAR) increases the risk of tokenism and blurring the boundaries of what might be considered ‘good’ PAR. This became a pressing issue when we were invited by the City of Amsterdam to conduct PAR on digital inequality with vulnerable citizens in Amsterdam, within serious constraints of time and budget. We decided to take up the challenge to offer citizens an opportunity to share their needs. This pap…
Co-creating an empowering health education intervention for urological cancer patients
Objective: The effectiveness of health education for patients has often been suboptimal. The neglect of a focus on empowerment and the presence of implementation barriers have been put forward as possible explanations for this. This study aimed to gain insight into how to co-create and develop an empowerment theory-based health education intervention for urological cancer patients. Design: Bravo’s empowerment intervention model provided the theor…
Evaluation of patient engagement in medicine development: A multi‐stakeholder framework with metrics
BACKGROUND: Patient engagement is becoming more customary in medicine development. However, embedding it in organizational decision-making remains challenging, partly due to lack of agreement on its value and the means to evaluate it. The objective of this project was to develop a monitoring and evaluation framework, with metrics, to demonstrate impact and enhance learning. METHODS: A consortium of five patient groups, 15 biopharmaceutical compan…
Citizen Science Fiction: The Potential of Situated Speculative Prototyping for Public Engagement on Emerging Technologies
In response to calls for a research and innovation system that is more open to public scrutiny, we have seen a growth of formal and informal public engagement activities in the past decades. Nevertheless, critiques of several persistent routines in public engagement continue to resurface, in particular the focus on expert knowledge, cognitive exchange, risk discourse, and understandings of public opinion as being static. In an attempt to break ou…
The experiential knowledge of patients: A New Resource for Biomedical Research
Just having a computer doesn’t make sense’: The digital divide from the perspective of mothers with a low socio-economic position
The introduction of Information and Communication Technology (ICT) has been shown to play a role in reinforcing existing social inequalities. This study aims to gain insights into the perspectives, experiences and needs of disadvantaged groups with respect to ICT. In the Netherlands, a relatively large and important group of non-users are mothers with a low socio-economic position (SEP). Little attention has been paid to understanding why mothers…
Unraveling the politics of ‘doing inclusion’ in transdisciplinarity for sustainable transformation
Transdisciplinary research and innovation (R&I) efforts have emerged as a means to address challenges to sustainable transformation. One of the main elements of transdisciplinary efforts is the 'inclusion' of different stakeholders, values and perspectives in participatory R&I processes. In practice, however, 'doing inclusion' raises a number of challenges. In this article, we aim to contribute to re-politicizing inclusion in transdisciplinarity …
Fun, engaging and easily shareable? Exploring the value of co-creating vlogs with citizens from disadvantaged neighbourhoods
The use of vlogs is promising in participatory action research (PAR) that aims to enhance the health and well-being of citizens. Vlogs have the potential to reach a wide audience, transcending the local scale of PAR. This article aims to explore the value of co-creating vlogs by investigating two exploratory studies involving adolescents and women from disadvantaged neighbourhoods. We reflected on the co-creation of vlogs by community members and…
Governing translocal experimentation in multi-sited transition programs: Dynamics and challenges
Perceptions of Mental Health and Help-Seeking Behavior in an Urban Community in Vietnam: An Explorative Study
This explorative study assesses perceptions of mental health and help-seeking behavior among adults in Vietnam. Methods included questionnaires (200) and focus group discussions (eight). Respondents were often unable to name specific mental illnesses. Frequently mentioned symptoms of mental illness were talking nonsense, talking/laughing alone and wandering. Pressure/stress and studying/thinking too much were often identified causes. Most respond…
Patient Partnership in Decision-Making on Biomedical Research: Changing the Network
Participation of end users in decision-making on science is increasingly practiced, as witnessed by the growing body of scientific literature on case evaluations. In the biomedical field, however, end-user participation in decision-making is rare. Some scholars argue that because patients are stakeholders and relevant experts, they could also provide important contributions to decision-making within the field of biomedical research. But what stra…
Exploring adaptation and agency of mothers caring for disabled children in an urban settlement in South Africa: A qualitative study
We create our own small world’: Daily realities of mothers of disabled children in a South African urban settlement
Parents of disabled children face many challenges. Understanding their experiences and acknowledging contextual influences is vital in developing intervention strategies that fit their daily realities. However, studies of parents from a resource-poor context are particularly scarce. This ethnographic study with 30 mothers from a South African township (15 semi-structured interviews and 24 participatory group sessions) unearths how mothers care on…
Food beliefs and practices among the Kalenjin pregnant women in rural Uasin Gishu County, Kenya
BACKGROUND: Understanding food beliefs and practices is critical to the development of dietary recommendations, nutritional programmes, and educational messages. This study aimed to understand the pregnancy food beliefs and practices and the underlying reasons for these among the contemporary rural Kalenjin communities of Uasin Gishu County, Kenya. METHODS: Through semi-structured interviews, data was collected from 154 pregnant and post-natal Ka…
Exploring responsible innovation: Dutch public perceptions of the future of medical neuroimaging technology
Towards new perspectives of stakeholder engagement in sustainability transitions: Bringing the supranational level into view
Although stakeholder engagement is a well-discussed topic within sustainability transitions research, it is underexplored in the context of supranational actors, such as the EU, despite the apparent relevance. Through the case study of the European citizen and stakeholder consultations around European Green Deal (EGD), this paper investigates the implications of stakeholder engagement conducted on a supranational level. By applying a transitions-…
Frame Reflection Lab: A Playful Method for Frame Reflection on Synthetic Biology
Synthetic biology is an emerging technology that asks for inclusive reflection on how people frame the field. To unravel how we can facilitate such reflection, this study evaluates the Frame Reflection Lab (FRL). Building upon playfulness design principles, the FRL comprises a workshop with video-narratives and co-creative group exercises. We studied how the FRL facilitated frame reflection by organizing workshops with various student groups. Ana…
Child- and Family-Centered Practices in a Post-Bureaucratic Era: Inherent Conflicts Encountered by the New Child Welfare Professional
Various child welfare organizations are changing services by adopting child- and family-centered approaches and moving away from redundant bureaucracy, top-down strategies, and fragmented networks. This shift inevitably poses challenges. This article uses the case of intensive family case management in the Netherlands to explore conflicts perceived by professionals and associated coping strategies. Findings are that internal conflicts (leading to…
Embedding the Notion of Child- and Family-Centered Care into Organizational Practice: Learning from Organizational Visioning
Child- and family-centered care has permeated the practices of child welfare as a means to address fragmentation. Case management appears promising, but the approach is still in its infancy. This article aims to provides an understanding of the emergent organizational vision of a new approach to case management at multiple organizational levels. The authors conducted a case study on the implementation of Intensive Family Case Management in a Dutc…
Food policy networks and their potential to stimulate systemic intermediation for food system transformation
Food policy networks (FPNs) are innovative governance instruments that aim to stimulate much-needed food system transformation. However, there is limited insight into what factors affect their potential to be impactful. This study aimed to investigate what challenges FPNs as systemic transition intermediaries face and how they navigate those challenges. We analyzed four Dutch FPNs using interviews, document analysis, and participant observation. …
Guiding visions of corporate smart city innovators: Identifying opportunities for participatory futuring
Since the smart city vision increasingly shapes our urban life globally, it becomes ever more urgent to integrate participatory futuring in ongoing smart city-related technology development. This study aimed to find starting points for such integration by unraveling the ‘guiding visions’ of corporate technological innovators in the smart mobility and transport sector around Amsterdam. We conducted and analyzed interviews with innovators from 12 s…
Constructing future scenarios as a tool to foster responsible research and innovation among future synthetic biologists
The emerging field of synthetic biology, the (re-)designing and construction of biological parts, devices and systems for useful purposes, may simultaneously resolve some issues and raise others. In order to develop applications robustly and in the public interest, it is important to organize reflexive strategies of assessment and engagement in early stages of development. Against this backdrop, initiatives related to the concept of Responsible R…
Breaking barriers for a bio-based economy: Interactive reflection on monitoring water quality
Supporting Citizens in Reflection on Synthetic Biology by Means of Video-Narratives
To unravel how video-narratives can support reflection in Responsible Research and Innovation contexts, this study evaluates four video-narratives designed for citizen-reflection on synthetic biology. Each video narrative comprised separate clips about three subtopics in which actors represented different views of synthetic biology. The video-clips were presented to Dutch citizens in two different setups: per narrator and per subtopic. Both setup…
Why Do Adults With ADHD Choose Strength-Based Coaching Over Public Mental Health Care? A Qualitative Case Study From the Netherlands
For this qualitative case study, 23 semistructured interviews were conducted with clients of a private coaching center in the Netherlands. We explored why adults with attention deficit/hyperactivity disorder (ADHD) prefer coaching, which is financed out-of-pocket, over public mental health care and what the perceived added value is for them. The participants highly valued the optimistic strength-based and solution-focused approach, which was cont…
Transdisciplinarity: The New Challenge for Biomedical Research
During the past decade, patient participation became an important issue in the medical field, and patient participation in biomedical research processes is increasingly called for. One of the arguments for this refers to the specific kind of knowledge, called experiential knowledge, patients could contribute. Until now, participation of patients in biomedical research has been rare, and integration of patients’ experiential knowledge with scienti…
Patients’ priorities concerning health research: The case of asthma and COPD research in the Netherlands
Background Although patients are increasingly involved in agenda setting within specific fields of health research, they rarely participate in decision‐making on the entire breadth of health research, including biomedical research. This might be attributable to a widely held view that patients are incapable of adequate research prioritization due to a lack of relevant knowledge, a failure to look beyond their own individual problems or an inabili…
The experiential knowledge of patients: A New Resource for Biomedical Research
Patient Partnership in Decision-Making on Biomedical Research: Changing the Network
Participation of end users in decision-making on science is increasingly practiced, as witnessed by the growing body of scientific literature on case evaluations. In the biomedical field, however, end-user participation in decision-making is rare. Some scholars argue that because patients are stakeholders and relevant experts, they could also provide important contributions to decision-making within the field of biomedical research. But what stra…
Understanding diversity in impact and responses among HIV/Aids-affected households: The case of Msinga, South Africa
To gain a more comprehensive understanding of the impact of HIV and AIDS on rural households in Msinga, South Africa, the sustainable livelihoods framework was adapted. An ethnographic perspective was employed to examine: 1) the impact of HIV/AIDS-related illnesses on people's mind and spirit (the internal environment), and 2) the influence of institutional structures and processes (the external environment), in order to better understand 3) the …
The Farmer Life School: Experience from an innovative approach to HIV education among farmers in South Africa
The Farmer Life School (FLS) is an innovative approach to integrating HIV education into life skills and technical training for farmers. This study aims to gain insight into the strengths and weaknesses of this relatively new approach, through the implementation of an adapted version in South Africa. The results are presented of a pilot with three groups of community gardeners, predominantly women, attending weekly sessions. Impact was assessed i…
Evaluating Interactive Policy Making on Biotechnology: The Case of the Dutch Ministry of Health, Welfare and Sport
Public engagement is increasingly advocated and applied in the development and implementation of technological innovations. However, initiatives so far are rarely considered effective. There is a need for more methodological rigor and insight into conducive conditions. The authors developed an evaluative framework and assessed accordingly the effectiveness of a project of the Dutch Ministry of Health, Welfare and Sport in which the application of…
Patient participation as dialogue: Setting research agendas
Background Collaboration with patients in healthcare and medical research is an emerging development. We aimed to develop a methodology for health research agenda setting processes grounded in the notion of participation as dialogue. Methods We conducted seven case studies between 2003 and 2007 to develop and validate a Dialogue Model for patient participation in health research agenda setting. The case studies related to spinal cord injury, neur…
Guiding visions in ecological genomics: A first step to exploring the future
Ecological genomics (ecogenomics) is a relatively new area of research and innovation, positioned at the crossroads of molecular biology, biotechnology, ecology and soil and environmental sciences. For ecogenomics to contribute to solving complex societal problems, collaboration between scientific and non-scientific actors is crucial. Within the Dutch Ecogenomics Consortium this is addressed by developing and implementing a constructive technolog…
Patient-expert partnerships in research: How to stimulate inclusion of patient perspectives
OBJECTIVE To gain more insight into exclusion mechanisms and inclusion strategies in patient-expert partnerships. BACKGROUND Patient participation in health research, on the level of 'partnerships with experts' is a growing phenomenon. However, little research is conducted whether exclusion mechanisms take place and to what extent patients' perspectives are included in the final outcomes of these partnerships. Case study A dialogue meeting attend…
Perceptions of Mental Health and Help-Seeking Behavior in an Urban Community in Vietnam: An Explorative Study
This explorative study assesses perceptions of mental health and help-seeking behavior among adults in Vietnam. Methods included questionnaires (200) and focus group discussions (eight). Respondents were often unable to name specific mental illnesses. Frequently mentioned symptoms of mental illness were talking nonsense, talking/laughing alone and wandering. Pressure/stress and studying/thinking too much were often identified causes. Most respond…
The application of neurogenomics to education: Analyzing guiding visions
The field of neurogenomics, which studies the role of genomics in the development and function of the nervous system, is considered by many scholars to have the potential to contribute to learning and education. In order to gain more insights into the opportunities and concerns associated with this potential, this paper explores scientists' guiding visions for this domain. In addition to an exploration of relevant literature, one focus group and …
Developing a framework for implementation of genetic services: Learning from examples of testing for monogenic forms of common diseases
How does context influence performance of community health workers in low- and middle-income countries? Evidence from the literature
BACKGROUND: Community health workers (CHWs) are increasingly recognized as an integral component of the health workforce needed to achieve public health goals in low- and middle-income countries (LMICs). Many factors intersect to influence CHW performance. A systematic review with a narrative analysis was conducted to identify contextual factors influencing performance of CHWs. METHODS: We searched six databases for quantitative, qualitative, and…
The involvement of gynaecological patients in the development of a clinical guideline for resumption of (work) activities in the N etherlands
CONTEXT: Most initiatives for patient involvement in guideline development have been carried out for chronic diseases. The involvement of patients with incidental and non-threatening diseases is more complicated. Little knowledge is available on how these patient groups can successfully be involved in guideline development. OBJECTIVE: To assess the effectiveness of the involvement of gynaecological patients in the guideline development for resump…
Do not forget the professional – the value of the FIRST model for guiding the structural involvement of patients in rheumatology research
BACKGROUND: The FIRST model describes five practical components that enable equal collaboration between patients and professionals in clinical rheumatology research: Facilitate, identify, respect, support and training. OBJECTIVE: To assess the value of this model as a framework for setting up and guiding the structural involvement of people with arthritis in health research. METHOD: The FIRST model was used as a framework during the guidance of a…
Patient involvement in research programming and implementation: A responsive evaluation of the Dialogue Model for research agenda setting
BACKGROUND: The Dialogue Model for research agenda-setting, involving multiple stakeholders including patients, was developed and validated in the Netherlands. However, there is little insight into whether and how patient involvement is sustained during the programming and implementation of research agendas. AIM: To understand how the Dialogue Model can be optimised by focusing on programming and implementation, in order to stimulate the inclusio…
Exploring Responsible Neuroimaging Innovation: Visions From a Societal Actor Perspective
Apart from the scientific unknowns and technological barriers that complicate the development of medical neuroimaging applications, various relevant actors might have different ideas on what is considered advancement or progress in this field. We address the challenge of identifying societal actors and their different points of view concerning neuroimaging technologies in an early phase of neuroimaging development. To this end, we conducted 16 se…
Gender relations and women's reproductive health in South Sudan
BACKGROUND: In South Sudan, women disproportionately bear the burden of morbidity and mortality related to sexual and reproductive health, with a maternal mortality ratio of 789 deaths per 100,000 live births. DESIGN: A qualitative study was conducted to analyze how gendered social relations among the Fertit people affect women's ability to exercise control over their reproductive lives and thereby their sexual and reproductive health. Transcript…
Monitoring and evaluation of patient involvement in clinical practice guideline development: Lessons from the Multidisciplinary Guideline for Employment and Severe Mental Illness, the Netherlands
OBJECTIVE: The aim of this study was to gain better insight into the quality of patient participation in the development of clinical practice guidelines and to contribute to approaches for the monitoring and evaluation of such initiatives. In addition, we explore the potential of a dialogue-based approach for reconciliation of preferences of patients and professionals in the guideline development processes. METHODS: The development of the Multidi…
‘Do I need to become someone else?’ A qualitative exploratory study into the experiences and needs of adults with ADHD
BACKGROUND: Attention deficit/hyperactivity disorder (ADHD) is a common psychiatric disorder in childhood which has recently been acknowledged to persist into adulthood in two-thirds of cases. However, the problems faced by adults with ADHD in their daily lives remain largely unexplored. OBJECTIVE: To assess the perspectives, problems and needs of adults with ADHD. DESIGN AND PARTICIPANTS: In this exploratory qualitative study, adults (n = 52) wi…
Inclusive deliberation and action in emerging RRI practices: The case of neuroimaging in security management
What does it mean to facilitate inclusive deliberation, a core aspect of Responsible Research and Innovation, at a very early stage in a controversial field such as security? We brought neuroscientists and security professionals together in a step-by-step fashion – interviews, focus groups and dialogue – to construct imaginaries of neuroimaging applications. Neuroscientists and security professionals related differently to neuroimaging investigat…
Optimising the benefits of community health workers’ unique position between communities and the health sector: A comparative analysis of factors shaping relationships in four countries
Community health workers (CHWs) have a unique position between communities and the health sector. The strength of CHWs' relationships with both sides influences their motivation and performance. This qualitative comparative study aimed at understanding similarities and differences in how relationships between CHWs, communities and the health sector were shaped in different Sub-Saharan African settings. The study demonstrates a complex interplay o…
Social norms and family planning decisions in South Sudan
The sexual and reproductive health programmes in WBeG should work with and leverage existing and emerging social norms on spacing in their health promotion activities. Campaigns should focus on promoting a family ideal in which children become the object of parental investment, rather than labour to till the land - instead of focusing directly or solely on reducing family size. The conditions are right in WBeG and in South Sudan for public health…
Embedding the Notion of Child- and Family-Centered Care into Organizational Practice: Learning from Organizational Visioning
Child- and family-centered care has permeated the practices of child welfare as a means to address fragmentation. Case management appears promising, but the approach is still in its infancy. This article aims to provides an understanding of the emergent organizational vision of a new approach to case management at multiple organizational levels. The authors conducted a case study on the implementation of Intensive Family Case Management in a Dutc…
Political science (56 works) · Psychology (46 works) · Sociology (41 works) · Public relations (36 works) · Computer Science (33 works) · Medicine (32 works) · Business (26 works) · Nursing (19 works) · Engineering (17 works) · Mental Health and Patient Involvement (17 works)