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Helen Lloyd

Biographic Data

ID328298
NAMEHelen Lloyd
GIVEN NAMESHelen
FAMILY NAMELloyd
SIGNATURELLOYD H
AFFILIATIONSUniversity of Plymouth
ORCID0000-0002-2916-1874
VERIFIEDYes
TOTAL WORKS23
TOTAL CITATIONS12
AUTHOR COUNT23
EDITOR COUNT0
FIRST PUBLICATION YEAR2011
LATEST PUBLICATION YEAR2026
H-INDEX2
  • Implementing recommendations to optimise professional support in the medical workplace

    Open Access•R Littlewood, Helen Lloyd et al.•ARTICLE•Medical Education•2026

  • Quantifying Housekeeping Challenge and Conservation Need

    Open Access•Helen Lloyd•ARTICLE•Heritage•2023

    This simple model, developed by conservators, assists in the challenge of making preventive conservation, housekeeping, and care of historic interiors and collections, physically and economically sustainable, in historic houses welcoming increasing volumes of visitors (a primary source of dust). It introduces objectivity into conservation advice and management decisions: how many collections care staff should each historic house ideally employ, a…

  • Assessing the experience of person‐centred coordinated care of people with chronic conditions in the Netherlands

    Open Access•Mieke Rijken, James Close et al.•ARTICLE•Health Expectations•2022

    BACKGROUND: Countries are adapting their health and social care systems to better meet the needs of growing populations with (multiple) chronic conditions. To guide this process, assessment of the 'patient experience' is becoming increasingly important. For this purpose, the Person-Centred Coordinated Care Experience Questionnaire (P3CEQ) was developed in the United Kingdom, and translated into several languages. AIM: This study aimed to assess t…

  • Loot boxes, problem gambling and problem video gaming

    Open Access•Stuart Gordon Spicer, Laura Louise Nicklin et al.•ARTICLE•New Media & Society•2022

    Loot boxes (LBs) are video game-related purchases with a chance-based outcome. Due to similarities with gambling, they have come under increasing scrutiny from media, academics and policymakers alike. Initial evidence suggested that LB engagement might be associated with both problem gambling (PG) and problem video gaming (PVG). We therefore conducted a systematic review of the evidence for associations between LB purchasing, PG and PVG. For LB/P…

  • Mapping home, memory and spatial recovery in forced displacement

    Open Access•Sana Murrani, Helen Lloyd et al.•ARTICLE•Social & Cultural Geography•2022•Cited by: 6•References: 7

    Escaping war and persecution during the twenty-tens, over two-million displacees made life-risking journeys into Europe. Trauma continued for those who managed to cross borders and reach new havens: grappling with migration systems, searching for decent housing, and striving for social integration. This article presents empirical findings of a multi-modal participatory mapping project conducted with refugees and asylum seekers in Southwest Englan…

  • Co-Creating Descriptors and a Definition for Person-Centred Coordinated Health Care

    Open Access•Amanda Phelan, Daniela Rohde et al.•ARTICLE•International Journal of…•2021•References: 6

    The aim of this study was to co-create a definition and generic descriptors for person-centred coordinated care for Ireland generated from service users' narratives. An overarching action research approach was used to engage and empower people to tangibly impact health policy and practice. Through focus groups and a qualitative survey, primary data were collected from a national sample of health services users, caregivers and health care service …

  • Measuring Older Peoples’ Experiences of Person-Centred Coordinated Care

    Open Access•Jillian Reynolds, Erica Gadsby et al.•ARTICLE•International Journal of…•2021•References: 9

    This study shows essential preconditions to meaningfully collect and analyse PREM data on older peoples' experiences with integrated care: face-to-face administration away from care providers, collection of reasons for non-response and open comments providing nuances to answers, and multilevel modelling taking into account diversity in the target population. Several areas of improvement for future PREM use in this population have been identified:…

  • Terms of engagement for working with patients in a person‐centred partnership

    Open Access•Debra Westlake, Inger Ekman et al.•ARTICLE•Health & Social Care in the…•2021•References: 7

    Evidence is emerging of the potential of person-centred approaches to create partnerships between professionals and patients while also containing healthcare costs. This is important for enhancing outcomes in individuals with complex needs, who consistently report poor experiences with care. The shift towards person-centred care (PCC) is, however, a radical departure from the norm, with increased expectations of both professional and patient. Alt…

  • Epistemic injustices in clinical communication

    Open Access•Öncel Naldemirci, Nicky Britten et al.•ARTICLE•Sociology of Health & Illness•2021•Cited by: 4•References: 8

    The increasing popularity of the term 'person-centred' in the healthcare literature and a wide range of ideals and practices it implies point to the need for a more inclusive and holistic healthcare provision. A framework developed in a Swedish context suggested narrative elicitation as a key practice in transition to person-centred care. Initiating clinical communication by inviting people to tell their stories makes persistent yet often subtle …

  • The potential and pitfalls of narrative elicitation in person‐centred care

    Open Access•Öncel Naldemirci, Nicky Britten et al.•ARTICLE•Health Expectations•2020

    BACKGROUND: Revitalized interest in narrative has informed some recent models of patient and person-centred care. Yet, scarce attention has been paid to how narrative elicitation is actually used in person-centred care practice and in which ways it is incorporated into clinical routine. AIM: We aimed to identify facilitators and barriers for narrative elicitation and setting goals in a particular example of person-centred care practice (Universit…

  • Supporting Innovative Person-Centred Care in Financially Constrained Environments

    Open Access•Helen Lloyd, HELEN M LLOYD et al.•ARTICLE•International Journal of…•2020

    The COST CARES project aims to support healthcare cost containment and improve healthcare quality across Europe by developing the research and development necessary for person-centred care (PCC) and health promotion. This paper presents an overview evaluation strategy for testing 'Exploratory Health Laboratories' to deliver these aims. Our strategy is theory driven and evidence based, and developed through a multi-disciplinary and European-wide t…

  • A worked example of initial theory-building

    Open Access•Ruth Gwernan‐Jones, Nicky Britten et al.•ARTICLE•Evaluation•2019•Cited by: 2•References: 4

    In this article, we present an exemplar of the initial theory-building phase of theory-driven evaluation for the PARTNERS2 project, a collaborative care intervention for people with experience of psychosis in England. Initial theory-building involved analysis of the literature, interviews with key leaders and focus groups with service users. The initial programme theory was developed from these sources in an iterative process between researchers …

  • Creating and facilitating change for Person‐Centred Coordinated Care (P3C)

    Open Access•Jane Horrell, Helen Lloyd et al.•ARTICLE•Health Expectations•2018

    BACKGROUND: Person Centred Coordinated Care (P3C) is a UK priority for patients, carers, professionals, commissioners and policy makers. Services are developing a range of approaches to deliver this care with a lack of tools to guide implementation. METHODOLOGY: A scoping review and critical examination of current policy, key literature and NHS guidelines, together with stakeholder involvement led to the identification of domains, subdomains and …

  • Primary care service innovation

    Open Access•Ben Fosh, James Close et al.•ARTICLE•International Journal of…•2018

    The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)

  • Putting the Patient Voice at the Heart of Service Redesign

    Open Access•Helen Lloyd, Ben Fosh•ARTICLE•International Journal of…•2018

    The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)

  • Can Nursing Students Gain Person-Centred Skills while Supporting Citizen Contacts to use the Internet for Health

    Open Access•Toni M Page, Helen Lloyd et al.•ARTICLE•International Journal of…•2018

    The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)

  • Information technology in multispecialty community providers

    Open Access•Amanda Wanner, Rod Sheaff et al.•ARTICLE•International Journal of…•2018

    The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)

  • Person-centred approaches

    Open Access•Debra Westlake, Helen Lloyd•ARTICLE•International Journal of…•2018

    The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)

  • Back to basics

    Open Access•Amanda Phelan, Daniela Rohde et al.•ARTICLE•International Journal of…•2018

    The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)

  • Patient Experiences of Care from Multi-Speciality Community Providers

    Open Access•Helen Lloyd, Rod Sheaff et al.•ARTICLE•International Journal of…•2018

    The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)

  • The role of life context and self‐defined well‐being in the outcomes that matter to people with a diagnosis of schizophrenia

    Open Access•Helen Lloyd, JOANNE LLOYD et al.•ARTICLE•Health Expectations•2017

    OBJECTIVE: Conduct a deep exploration of the outcomes that matter to people with a diagnosis of schizophrenia and understand from their perspective how these outcomes can be achieved. SAMPLE AND METHODS: In-depth qualitative interviews were conducted with 22 people with a diagnosis of schizophrenia. Interviews were analysed using thematic frameworks, and a realist informed theories of change approach. RESULTS: Our study revealed the potential cau…

  • Sources of parental burden in a UK sample of first-generation North Indian Punjabi Sikhs and their white British counterparts

    Open Access•Helen Lloyd, Pratima Singh et al.•ARTICLE•International Journal of Social…•2013

    OBJECTIVE: The correlates of parental burden in schizophrenia may differ between ethnic groups, but few studies have examined this in a UK setting. Our aim was to identify the correlates of burden in a UK sample of first-generation North Indian Punjabi Sikh parents and their white British counterparts. METHOD: Test the association of burden with a series of clinical, social and service use variables and control for potential confounding factors i…

  • A Comparison of Levels of Burden in Indian and White Parents With a Son or Daughter With Schizophrenia

    Open Access•Helen Lloyd, Pratima Singh et al.•ARTICLE•International Journal of Social…•2011

    Background: Caregiver burden in mental illness is believed to differ between ethnic groups, but few studies have examined this in schizophrenia in the UK. Aim: To measure burden in British North Indian Sikh and white British parents with a son or daughter with established schizophrenia managed in outpatient care. Method: A cross-cultural cohort study measuring family factors, patient psychopathology and levels of burden and distress. Results: Ove…

  • Mapping home, memory and spatial recovery in forced displacement

    Open Access•Sana Murrani, Helen Lloyd et al.•ARTICLE•Social & Cultural Geography•2022•Cited by: 6•References: 7

    Escaping war and persecution during the twenty-tens, over two-million displacees made life-risking journeys into Europe. Trauma continued for those who managed to cross borders and reach new havens: grappling with migration systems, searching for decent housing, and striving for social integration. This article presents empirical findings of a multi-modal participatory mapping project conducted with refugees and asylum seekers in Southwest Englan…

  • Epistemic injustices in clinical communication

    Open Access•Öncel Naldemirci, Nicky Britten et al.•ARTICLE•Sociology of Health & Illness•2021•Cited by: 4•References: 8

    The increasing popularity of the term 'person-centred' in the healthcare literature and a wide range of ideals and practices it implies point to the need for a more inclusive and holistic healthcare provision. A framework developed in a Swedish context suggested narrative elicitation as a key practice in transition to person-centred care. Initiating clinical communication by inviting people to tell their stories makes persistent yet often subtle …

  • A worked example of initial theory-building

    Open Access•Ruth Gwernan‐Jones, Nicky Britten et al.•ARTICLE•Evaluation•2019•Cited by: 2•References: 4

    In this article, we present an exemplar of the initial theory-building phase of theory-driven evaluation for the PARTNERS2 project, a collaborative care intervention for people with experience of psychosis in England. Initial theory-building involved analysis of the literature, interviews with key leaders and focus groups with service users. The initial programme theory was developed from these sources in an iterative process between researchers …

  • A Comparison of Levels of Burden in Indian and White Parents With a Son or Daughter With Schizophrenia

    Open Access•Helen Lloyd, Pratima Singh et al.•ARTICLE•International Journal of Social…•2011

    Background: Caregiver burden in mental illness is believed to differ between ethnic groups, but few studies have examined this in schizophrenia in the UK. Aim: To measure burden in British North Indian Sikh and white British parents with a son or daughter with established schizophrenia managed in outpatient care. Method: A cross-cultural cohort study measuring family factors, patient psychopathology and levels of burden and distress. Results: Ove…

  • Sources of parental burden in a UK sample of first-generation North Indian Punjabi Sikhs and their white British counterparts

    Open Access•Helen Lloyd, Pratima Singh et al.•ARTICLE•International Journal of Social…•2013

    OBJECTIVE: The correlates of parental burden in schizophrenia may differ between ethnic groups, but few studies have examined this in a UK setting. Our aim was to identify the correlates of burden in a UK sample of first-generation North Indian Punjabi Sikh parents and their white British counterparts. METHOD: Test the association of burden with a series of clinical, social and service use variables and control for potential confounding factors i…

  • The role of life context and self‐defined well‐being in the outcomes that matter to people with a diagnosis of schizophrenia

    Open Access•Helen Lloyd, JOANNE LLOYD et al.•ARTICLE•Health Expectations•2017

    OBJECTIVE: Conduct a deep exploration of the outcomes that matter to people with a diagnosis of schizophrenia and understand from their perspective how these outcomes can be achieved. SAMPLE AND METHODS: In-depth qualitative interviews were conducted with 22 people with a diagnosis of schizophrenia. Interviews were analysed using thematic frameworks, and a realist informed theories of change approach. RESULTS: Our study revealed the potential cau…

  • Creating and facilitating change for Person‐Centred Coordinated Care (P3C)

    Open Access•Jane Horrell, Helen Lloyd et al.•ARTICLE•Health Expectations•2018

    BACKGROUND: Person Centred Coordinated Care (P3C) is a UK priority for patients, carers, professionals, commissioners and policy makers. Services are developing a range of approaches to deliver this care with a lack of tools to guide implementation. METHODOLOGY: A scoping review and critical examination of current policy, key literature and NHS guidelines, together with stakeholder involvement led to the identification of domains, subdomains and …

  • Primary care service innovation

    Open Access•Ben Fosh, James Close et al.•ARTICLE•International Journal of…•2018

    The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)

  • Putting the Patient Voice at the Heart of Service Redesign

    Open Access•Helen Lloyd, Ben Fosh•ARTICLE•International Journal of…•2018

    The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)

  • Can Nursing Students Gain Person-Centred Skills while Supporting Citizen Contacts to use the Internet for Health

    Open Access•Toni M Page, Helen Lloyd et al.•ARTICLE•International Journal of…•2018

    The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)

  • Information technology in multispecialty community providers

    Open Access•Amanda Wanner, Rod Sheaff et al.•ARTICLE•International Journal of…•2018

    The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)

  • Person-centred approaches

    Open Access•Debra Westlake, Helen Lloyd•ARTICLE•International Journal of…•2018

    The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)

  • Back to basics

    Open Access•Amanda Phelan, Daniela Rohde et al.•ARTICLE•International Journal of…•2018

    The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)

  • Patient Experiences of Care from Multi-Speciality Community Providers

    Open Access•Helen Lloyd, Rod Sheaff et al.•ARTICLE•International Journal of…•2018

    The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)

  • A worked example of initial theory-building

    Open Access•Ruth Gwernan‐Jones, Nicky Britten et al.•ARTICLE•Evaluation•2019•Cited by: 2•References: 4

    In this article, we present an exemplar of the initial theory-building phase of theory-driven evaluation for the PARTNERS2 project, a collaborative care intervention for people with experience of psychosis in England. Initial theory-building involved analysis of the literature, interviews with key leaders and focus groups with service users. The initial programme theory was developed from these sources in an iterative process between researchers …

  • The potential and pitfalls of narrative elicitation in person‐centred care

    Open Access•Öncel Naldemirci, Nicky Britten et al.•ARTICLE•Health Expectations•2020

    BACKGROUND: Revitalized interest in narrative has informed some recent models of patient and person-centred care. Yet, scarce attention has been paid to how narrative elicitation is actually used in person-centred care practice and in which ways it is incorporated into clinical routine. AIM: We aimed to identify facilitators and barriers for narrative elicitation and setting goals in a particular example of person-centred care practice (Universit…

  • Supporting Innovative Person-Centred Care in Financially Constrained Environments

    Open Access•Helen Lloyd, HELEN M LLOYD et al.•ARTICLE•International Journal of…•2020

    The COST CARES project aims to support healthcare cost containment and improve healthcare quality across Europe by developing the research and development necessary for person-centred care (PCC) and health promotion. This paper presents an overview evaluation strategy for testing 'Exploratory Health Laboratories' to deliver these aims. Our strategy is theory driven and evidence based, and developed through a multi-disciplinary and European-wide t…

  • Co-Creating Descriptors and a Definition for Person-Centred Coordinated Health Care

    Open Access•Amanda Phelan, Daniela Rohde et al.•ARTICLE•International Journal of…•2021•References: 6

    The aim of this study was to co-create a definition and generic descriptors for person-centred coordinated care for Ireland generated from service users' narratives. An overarching action research approach was used to engage and empower people to tangibly impact health policy and practice. Through focus groups and a qualitative survey, primary data were collected from a national sample of health services users, caregivers and health care service …

  • Measuring Older Peoples’ Experiences of Person-Centred Coordinated Care

    Open Access•Jillian Reynolds, Erica Gadsby et al.•ARTICLE•International Journal of…•2021•References: 9

    This study shows essential preconditions to meaningfully collect and analyse PREM data on older peoples' experiences with integrated care: face-to-face administration away from care providers, collection of reasons for non-response and open comments providing nuances to answers, and multilevel modelling taking into account diversity in the target population. Several areas of improvement for future PREM use in this population have been identified:…

  • Terms of engagement for working with patients in a person‐centred partnership

    Open Access•Debra Westlake, Inger Ekman et al.•ARTICLE•Health & Social Care in the…•2021•References: 7

    Evidence is emerging of the potential of person-centred approaches to create partnerships between professionals and patients while also containing healthcare costs. This is important for enhancing outcomes in individuals with complex needs, who consistently report poor experiences with care. The shift towards person-centred care (PCC) is, however, a radical departure from the norm, with increased expectations of both professional and patient. Alt…

  • Epistemic injustices in clinical communication

    Open Access•Öncel Naldemirci, Nicky Britten et al.•ARTICLE•Sociology of Health & Illness•2021•Cited by: 4•References: 8

    The increasing popularity of the term 'person-centred' in the healthcare literature and a wide range of ideals and practices it implies point to the need for a more inclusive and holistic healthcare provision. A framework developed in a Swedish context suggested narrative elicitation as a key practice in transition to person-centred care. Initiating clinical communication by inviting people to tell their stories makes persistent yet often subtle …

  • Assessing the experience of person‐centred coordinated care of people with chronic conditions in the Netherlands

    Open Access•Mieke Rijken, James Close et al.•ARTICLE•Health Expectations•2022

    BACKGROUND: Countries are adapting their health and social care systems to better meet the needs of growing populations with (multiple) chronic conditions. To guide this process, assessment of the 'patient experience' is becoming increasingly important. For this purpose, the Person-Centred Coordinated Care Experience Questionnaire (P3CEQ) was developed in the United Kingdom, and translated into several languages. AIM: This study aimed to assess t…

  • Loot boxes, problem gambling and problem video gaming

    Open Access•Stuart Gordon Spicer, Laura Louise Nicklin et al.•ARTICLE•New Media & Society•2022

    Loot boxes (LBs) are video game-related purchases with a chance-based outcome. Due to similarities with gambling, they have come under increasing scrutiny from media, academics and policymakers alike. Initial evidence suggested that LB engagement might be associated with both problem gambling (PG) and problem video gaming (PVG). We therefore conducted a systematic review of the evidence for associations between LB purchasing, PG and PVG. For LB/P…

  • Mapping home, memory and spatial recovery in forced displacement

    Open Access•Sana Murrani, Helen Lloyd et al.•ARTICLE•Social & Cultural Geography•2022•Cited by: 6•References: 7

    Escaping war and persecution during the twenty-tens, over two-million displacees made life-risking journeys into Europe. Trauma continued for those who managed to cross borders and reach new havens: grappling with migration systems, searching for decent housing, and striving for social integration. This article presents empirical findings of a multi-modal participatory mapping project conducted with refugees and asylum seekers in Southwest Englan…

  • Quantifying Housekeeping Challenge and Conservation Need

    Open Access•Helen Lloyd•ARTICLE•Heritage•2023

    This simple model, developed by conservators, assists in the challenge of making preventive conservation, housekeeping, and care of historic interiors and collections, physically and economically sustainable, in historic houses welcoming increasing volumes of visitors (a primary source of dust). It introduces objectivity into conservation advice and management decisions: how many collections care staff should each historic house ideally employ, a…

  • Implementing recommendations to optimise professional support in the medical workplace

    Open Access•R Littlewood, Helen Lloyd et al.•ARTICLE•Medical Education•2026

Computer Science (11 works) · Medicine (11 works) · Psychology (11 works) · Business (8 works) · Political science (8 works) · Sociology (8 works) · Mental Health and Patient Involvement (7 works) · Nursing (7 works) · Field (mathematics (6 works) · Health care (6 works)

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