Kathleen R Bogart
Biographic Data
| ID | 352945 |
|---|---|
| NAME | Kathleen R Bogart |
| GIVEN NAMES | Kathleen R |
| FAMILY NAME | Bogart |
| SIGNATURE | BOGART K R |
| AFFILIATIONS | Oregon State University |
| ORCID | 0000-0002-6923-5700 |
| VERIFIED | Yes |
| TOTAL WORKS | 22 |
| TOTAL CITATIONS | 51 |
| AUTHOR COUNT | 22 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2012 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 4 |
Disability Representation in Social and Personality Psychology Research: A State-of-the-Art Review
We conducted a systematic state-of-the-art review examining disability representation of three flagship social and personality psychology journals between 2017 and 2022. First, we examined the 2,343 articles published in that time frame and found that 192 (8.19%) of them used at least one instance of disability-related terminology. Second, we examined patterns of disability-related terminology use and found that these concepts were most often use…
“It’s harder to set boundaries when it’s so obvious”: Disclosing observable disabilities
Disclosure research has largely focused on invisible stigmatized identities, assuming that, for people with visible stigmas, there is no need to “disclose the obvious.” However, people with observable disabilities do face disclosure decisions, precisely because their disabilities are observable. Pressure to disclose--from staring and intrusive questions --threatens disclosure autonomy. Drawing on Self-Determination Theory (SDT)—which posits basic…
Lack” and “Finally”: A Qualitative Analysis of Barriers and Facilitators in Rare Disease Healthcare
Background: This study explored the experiences of adults with diverse rare diseases (RDs) and RD caregivers with barriers and facilitators to healthcare access in the United States (US), including during the early part of the COVID-19 pandemic, and their recommendations for improving access. Results: Adults with RDs and parents/caregivers to children with RDs (N = 1128) completed open-ended survey items. Responses were analyzed using thematic an…
Just getting along, together”: The relationship between narratives of interdependence and psychological well-being among American adults with disabilities during the first 3 years of the Covid-19 pand…
This study examined the relationship between the theme of interdependence in the narratives of American adults with disabilities and psychological well-being across the shifting conditions of the first 3 years of the COVID-19 pandemic. In contrast to independence, interdependence has emerged as a focus of research about people with disabilities in both the interdisciplinary field of disability studies and in prior psychological research. In the p…
Trajectories of major depression and generalized anxiety symptoms among people with disabilities during the Covid-19 pandemic
GAD trajectory. The results demonstrate the persistent MD and GAD symptoms experienced by many PWD during the pandemic and the importance of interventions to address PWD's social isolation. (PsycInfo Database Record (c) 2025 APA, all rights reserved)
I would love to talk to someone that actually understands: Psychosocial experiences of adults with Fanconi anemia
Fanconi Anemia (FA) is a rare disease characterized by bone marrow failure and increased cancer susceptibility. Although the adult FA population is growing due to medical advancements, there has been little research on their psychosocial experiences. Participants ( n = 18) completed semi-structured interviews about mental health. Additionally, participants had the option of participating in Photovoice, taking photos that represented their experie…
Ableism in mental healthcare settings: A qualitative study among U.S. adults with disabilities
People with disabilities (PWD) face elevated mental health concerns and are more likely to utilize mental health services compared to their nondisabled counterparts, yet they also report higher unmet mental health service needs due to myriad attitudinal and environmental barriers to accessing care. Despite these well-documented disparities, little research has examined the nuanced lived experiences of PWD who receive mental health services. Drawi…
Perceived stigmatization predicts mental health and mask-wearing attitudes for people with facial differences
If not me, who: Awareness- and Self-Advocacy-Related Experiences of Adults With Diverse Rare Disorders
In a two-study project, researchers used qualitative methods and inductive thematic analyses to investigate the lived awareness- and advocacy-related experiences of 27 adults with over 35 different rare diseases, disorders, or disabilities (RDs). In Study 1, participants in two focus groups described how a lack of RD awareness led to experiences with several types of stigma, complicated their expressions and disclosures of disability, and spurred…
Enacted Stigma Experiences and Identity Noticeability of LGBQ+ Women with Rare Diseases
Lesbian, gay, bisexual, and queer (LGBQ+) people and those with rare diseases (RDs) experience considerable enacted stigma due to their sexual identity and disability/RD status. The frequency, severity, and type of enacted stigma is often influenced by identity noticeability. Although research has shown the challenging impacts of compounded oppression on multiply marginalized individuals, there has been no empirical research to date on the experi…
An inductive qualitative content analysis of stigma experienced by people with rare diseases
OBJECTIVE: There are more than 6,000 known rare diseases (RDs), which are often serious, chronic, and progressive conditions. Cumulatively, having a RD is actually common, impacting an estimated 300 million people worldwide. While the stigmatization of some specific RDs has been studied, examining stigma in a large sample of many RDs allows for a broader understanding of patterns. DESIGN: We used inductive qualitative content analysis to analyze …
The elephant in the room”: Disclosing facial differences
Narrative identity among people with disabilities in the United States during the Covid-19 pandemic: The interdependent self
This study examines narrative identity among a large, diverse sample of people with disabilities (PWDs) in the United States during the "second wave" of the Covid-19 pandemic (October-December 2020). The study relied on abductive analyses, combining a purely inductive phase of inquiry followed by two rounds of investigation that filtered inductive insights through three theoretical lenses: social-ecological theory, the theory of narrative identit…
Masks in the time of Covid-19 as an inadvertent simulation of facial paralysis
New face mask requirements to slow the spread of COVID-19 have complex ramifications on stigma for people who have facial paralysis or facial difference. The author, a psychology researcher who has facial paralysis, links her research and insight into adapting to and destigmatizing facial paralysis to the COVID-19 pandemic. Masks render this visible disability nearly invisible, potentially undermining adaptation and identity. While people without…
Physical Activity, Medical Home, and Health Behavior Counseling Among Adolescents with Special Health Care Needs: NSCH 2016–2017
Ableism Special Issue Introduction
In this special issue, we define ableism as stereotyping, prejudice, discrimination, and social oppression toward people with disabilities—the largest minority group in the United States. People with disabilities are broadly defined as those who have conditions that are commonly perceived to be disabilities by the general public, including physical, sensory, and intellectual disabilities, in addition to invisible disabilities, chronic health cond…
Navigating the unknown: A content analysis of the unique challenges faced by adults with rare diseases
Living with a rare disease can present unique challenges not shared by individuals with common diseases. A content analysis explored which challenges, in participants’ own words, are most prevalent across a sample of individuals ( n = 1157) with diverse rare diseases in the United States. Symptoms, activity limitations, treatments, uncertainty, and companionship support were mentioned most. Differences across the most frequently mentioned codes w…
Disability models and attitudes among college students with and without disabilities
Unfavorable attitudes or stigma toward people with disabilities are invisible barriers that contribute to social inequities such as disparities in higher education enrollment and degree completion. Additionally, disability models, or underlying beliefs about whether disability is a problem inherent
Born that way or became that way: Stigma toward congenital versus acquired disability
Stigma may differ depending on the timing of group-membership entry, whether a person was “born that way” or “became that way.” Disability, a highly understudied minority group, varies on this domain. Three studies demonstrated that congenital disability is more stigmatized than acquired disability and essentialism and blame moderate and mediate this effect. Congenital disability was more stigmatized than the acquired version of the same disabili…
Benefits of support conferences for parents of and people with Moebius syndrome
People are all about appearances: A focus group of teenagers with Moebius Syndrome
This focus group study examined the social experiences of 10 adolescents aged 12-17 years with Moebius Syndrome, a rare condition involving congenital facial paralysis. Content analysis revealed five themes: social engagement/disengagement, resilience/sensitivity, social support/stigma, being understood/misunderstood, and public awareness/lack of awareness of Moebius Syndrome. Compared to previous research on adults with Moebius Syndrome, adolesc…
Social interaction experiences of adults with Moebius Syndrome: A focus group
This focus group study explored the social interaction experiences and strategies of 12 adults with Moebius Syndrome, a rare congenital condition characterized by facial paralysis. Content analysis revealed five themes of social functioning: social engagement/disengagement; resilience/sensitivity; social support/stigma; being understood/misunderstood; and public awareness/lack of awareness of Moebius Syndrome. Participants used compensatory expre…
Ableism Special Issue Introduction
In this special issue, we define ableism as stereotyping, prejudice, discrimination, and social oppression toward people with disabilities—the largest minority group in the United States. People with disabilities are broadly defined as those who have conditions that are commonly perceived to be disabilities by the general public, including physical, sensory, and intellectual disabilities, in addition to invisible disabilities, chronic health cond…
Social interaction experiences of adults with Moebius Syndrome: A focus group
This focus group study explored the social interaction experiences and strategies of 12 adults with Moebius Syndrome, a rare congenital condition characterized by facial paralysis. Content analysis revealed five themes of social functioning: social engagement/disengagement; resilience/sensitivity; social support/stigma; being understood/misunderstood; and public awareness/lack of awareness of Moebius Syndrome. Participants used compensatory expre…
Narrative identity among people with disabilities in the United States during the Covid-19 pandemic: The interdependent self
This study examines narrative identity among a large, diverse sample of people with disabilities (PWDs) in the United States during the "second wave" of the Covid-19 pandemic (October-December 2020). The study relied on abductive analyses, combining a purely inductive phase of inquiry followed by two rounds of investigation that filtered inductive insights through three theoretical lenses: social-ecological theory, the theory of narrative identit…
Navigating the unknown: A content analysis of the unique challenges faced by adults with rare diseases
Living with a rare disease can present unique challenges not shared by individuals with common diseases. A content analysis explored which challenges, in participants’ own words, are most prevalent across a sample of individuals ( n = 1157) with diverse rare diseases in the United States. Symptoms, activity limitations, treatments, uncertainty, and companionship support were mentioned most. Differences across the most frequently mentioned codes w…
People are all about appearances: A focus group of teenagers with Moebius Syndrome
This focus group study examined the social experiences of 10 adolescents aged 12-17 years with Moebius Syndrome, a rare condition involving congenital facial paralysis. Content analysis revealed five themes: social engagement/disengagement, resilience/sensitivity, social support/stigma, being understood/misunderstood, and public awareness/lack of awareness of Moebius Syndrome. Compared to previous research on adults with Moebius Syndrome, adolesc…
Born that way or became that way: Stigma toward congenital versus acquired disability
Stigma may differ depending on the timing of group-membership entry, whether a person was “born that way” or “became that way.” Disability, a highly understudied minority group, varies on this domain. Three studies demonstrated that congenital disability is more stigmatized than acquired disability and essentialism and blame moderate and mediate this effect. Congenital disability was more stigmatized than the acquired version of the same disabili…
Enacted Stigma Experiences and Identity Noticeability of LGBQ+ Women with Rare Diseases
Lesbian, gay, bisexual, and queer (LGBQ+) people and those with rare diseases (RDs) experience considerable enacted stigma due to their sexual identity and disability/RD status. The frequency, severity, and type of enacted stigma is often influenced by identity noticeability. Although research has shown the challenging impacts of compounded oppression on multiply marginalized individuals, there has been no empirical research to date on the experi…
Social interaction experiences of adults with Moebius Syndrome: A focus group
This focus group study explored the social interaction experiences and strategies of 12 adults with Moebius Syndrome, a rare congenital condition characterized by facial paralysis. Content analysis revealed five themes of social functioning: social engagement/disengagement; resilience/sensitivity; social support/stigma; being understood/misunderstood; and public awareness/lack of awareness of Moebius Syndrome. Participants used compensatory expre…
Benefits of support conferences for parents of and people with Moebius syndrome
People are all about appearances: A focus group of teenagers with Moebius Syndrome
This focus group study examined the social experiences of 10 adolescents aged 12-17 years with Moebius Syndrome, a rare condition involving congenital facial paralysis. Content analysis revealed five themes: social engagement/disengagement, resilience/sensitivity, social support/stigma, being understood/misunderstood, and public awareness/lack of awareness of Moebius Syndrome. Compared to previous research on adults with Moebius Syndrome, adolesc…
Disability models and attitudes among college students with and without disabilities
Unfavorable attitudes or stigma toward people with disabilities are invisible barriers that contribute to social inequities such as disparities in higher education enrollment and degree completion. Additionally, disability models, or underlying beliefs about whether disability is a problem inherent
Born that way or became that way: Stigma toward congenital versus acquired disability
Stigma may differ depending on the timing of group-membership entry, whether a person was “born that way” or “became that way.” Disability, a highly understudied minority group, varies on this domain. Three studies demonstrated that congenital disability is more stigmatized than acquired disability and essentialism and blame moderate and mediate this effect. Congenital disability was more stigmatized than the acquired version of the same disabili…
Ableism Special Issue Introduction
In this special issue, we define ableism as stereotyping, prejudice, discrimination, and social oppression toward people with disabilities—the largest minority group in the United States. People with disabilities are broadly defined as those who have conditions that are commonly perceived to be disabilities by the general public, including physical, sensory, and intellectual disabilities, in addition to invisible disabilities, chronic health cond…
Navigating the unknown: A content analysis of the unique challenges faced by adults with rare diseases
Living with a rare disease can present unique challenges not shared by individuals with common diseases. A content analysis explored which challenges, in participants’ own words, are most prevalent across a sample of individuals ( n = 1157) with diverse rare diseases in the United States. Symptoms, activity limitations, treatments, uncertainty, and companionship support were mentioned most. Differences across the most frequently mentioned codes w…
Physical Activity, Medical Home, and Health Behavior Counseling Among Adolescents with Special Health Care Needs: NSCH 2016–2017
Masks in the time of Covid-19 as an inadvertent simulation of facial paralysis
New face mask requirements to slow the spread of COVID-19 have complex ramifications on stigma for people who have facial paralysis or facial difference. The author, a psychology researcher who has facial paralysis, links her research and insight into adapting to and destigmatizing facial paralysis to the COVID-19 pandemic. Masks render this visible disability nearly invisible, potentially undermining adaptation and identity. While people without…
An inductive qualitative content analysis of stigma experienced by people with rare diseases
OBJECTIVE: There are more than 6,000 known rare diseases (RDs), which are often serious, chronic, and progressive conditions. Cumulatively, having a RD is actually common, impacting an estimated 300 million people worldwide. While the stigmatization of some specific RDs has been studied, examining stigma in a large sample of many RDs allows for a broader understanding of patterns. DESIGN: We used inductive qualitative content analysis to analyze …
The elephant in the room”: Disclosing facial differences
Narrative identity among people with disabilities in the United States during the Covid-19 pandemic: The interdependent self
This study examines narrative identity among a large, diverse sample of people with disabilities (PWDs) in the United States during the "second wave" of the Covid-19 pandemic (October-December 2020). The study relied on abductive analyses, combining a purely inductive phase of inquiry followed by two rounds of investigation that filtered inductive insights through three theoretical lenses: social-ecological theory, the theory of narrative identit…
If not me, who: Awareness- and Self-Advocacy-Related Experiences of Adults With Diverse Rare Disorders
In a two-study project, researchers used qualitative methods and inductive thematic analyses to investigate the lived awareness- and advocacy-related experiences of 27 adults with over 35 different rare diseases, disorders, or disabilities (RDs). In Study 1, participants in two focus groups described how a lack of RD awareness led to experiences with several types of stigma, complicated their expressions and disclosures of disability, and spurred…
Enacted Stigma Experiences and Identity Noticeability of LGBQ+ Women with Rare Diseases
Lesbian, gay, bisexual, and queer (LGBQ+) people and those with rare diseases (RDs) experience considerable enacted stigma due to their sexual identity and disability/RD status. The frequency, severity, and type of enacted stigma is often influenced by identity noticeability. Although research has shown the challenging impacts of compounded oppression on multiply marginalized individuals, there has been no empirical research to date on the experi…
Ableism in mental healthcare settings: A qualitative study among U.S. adults with disabilities
People with disabilities (PWD) face elevated mental health concerns and are more likely to utilize mental health services compared to their nondisabled counterparts, yet they also report higher unmet mental health service needs due to myriad attitudinal and environmental barriers to accessing care. Despite these well-documented disparities, little research has examined the nuanced lived experiences of PWD who receive mental health services. Drawi…
Perceived stigmatization predicts mental health and mask-wearing attitudes for people with facial differences
Lack” and “Finally”: A Qualitative Analysis of Barriers and Facilitators in Rare Disease Healthcare
Background: This study explored the experiences of adults with diverse rare diseases (RDs) and RD caregivers with barriers and facilitators to healthcare access in the United States (US), including during the early part of the COVID-19 pandemic, and their recommendations for improving access. Results: Adults with RDs and parents/caregivers to children with RDs (N = 1128) completed open-ended survey items. Responses were analyzed using thematic an…
Just getting along, together”: The relationship between narratives of interdependence and psychological well-being among American adults with disabilities during the first 3 years of the Covid-19 pand…
This study examined the relationship between the theme of interdependence in the narratives of American adults with disabilities and psychological well-being across the shifting conditions of the first 3 years of the COVID-19 pandemic. In contrast to independence, interdependence has emerged as a focus of research about people with disabilities in both the interdisciplinary field of disability studies and in prior psychological research. In the p…
Trajectories of major depression and generalized anxiety symptoms among people with disabilities during the Covid-19 pandemic
GAD trajectory. The results demonstrate the persistent MD and GAD symptoms experienced by many PWD during the pandemic and the importance of interventions to address PWD's social isolation. (PsycInfo Database Record (c) 2025 APA, all rights reserved)
I would love to talk to someone that actually understands: Psychosocial experiences of adults with Fanconi anemia
Fanconi Anemia (FA) is a rare disease characterized by bone marrow failure and increased cancer susceptibility. Although the adult FA population is growing due to medical advancements, there has been little research on their psychosocial experiences. Participants ( n = 18) completed semi-structured interviews about mental health. Additionally, participants had the option of participating in Photovoice, taking photos that represented their experie…
Disability Representation in Social and Personality Psychology Research: A State-of-the-Art Review
We conducted a systematic state-of-the-art review examining disability representation of three flagship social and personality psychology journals between 2017 and 2022. First, we examined the 2,343 articles published in that time frame and found that 192 (8.19%) of them used at least one instance of disability-related terminology. Second, we examined patterns of disability-related terminology use and found that these concepts were most often use…
“It’s harder to set boundaries when it’s so obvious”: Disclosing observable disabilities
Disclosure research has largely focused on invisible stigmatized identities, assuming that, for people with visible stigmas, there is no need to “disclose the obvious.” However, people with observable disabilities do face disclosure decisions, precisely because their disabilities are observable. Pressure to disclose--from staring and intrusive questions --threatens disclosure autonomy. Drawing on Self-Determination Theory (SDT)—which posits basic…
Psychology (19 works) · Medicine (13 works) · Psychiatry (11 works) · Social Psychology (9 works) · Social Psychology (9 works) · Sociology (8 works) · Developmental psychology (6 works) · Disability Rights and Representation (5 works) · Clinical Psychology (4 works) · Clinical Psychology (4 works)