Social interaction experiences of adults with Moebius Syndrome
A focus group
Bibliographic Data
| ID | 4228024 |
|---|---|
| Authors | Kathleen R Bogart (0000-0002-6923-5700, Tufts University, Medford, MA, USA), Linda Tickle-Degnen (0000-0002-1980-9294, Tufts University, Medford, MA, USA), Matthew S Joffe (LaGuardia Community College/CUNY, New York, USA) |
| Year | 2012 |
| Volume | 17 |
| Issue | 8 |
| Pages | 1212-1222 |
| Publication date | 2012-11-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Health Psychology (JOURNAL) |
| Journal identifiers | ISSN: 1359-1053 • E-ISSN: 1461-7277 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1359105311432491 |
| PMID | 22257565 |
| OpenAlex | W2166309929 |
| Language | EN |
| Citations received | 8 |
| References cited | 23 |
This focus group study explored the social interaction experiences and strategies of 12 adults with Moebius Syndrome, a rare congenital condition characterized by facial paralysis. Content analysis revealed five themes of social functioning: social engagement/disengagement; resilience/sensitivity; social support/stigma; being understood/misunderstood; and public awareness/lack of awareness of Moebius Syndrome. Participants used compensatory expressive strategies such as vocal tone, gestures, and humor. The combination of being unable to express oneself with the face, having a facial difference, and having a rare disease is particularly stigmatizing. Increasing public awareness and developing social skills programs for people with facial paralysis could facilitate social functioning
Developmental psychology · Disengagement theory · Facial expression · Focus group · Social stigma · Sociology · Ear Surgery and Otitis Media · Facial Nerve Paralysis Treatment and Research · Hearing Impairment and Communication · Medicine · Psychology · Communication · Gerontology
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| Unique citing works | 8 |
|---|---|
| Citations per year | 0,67 |
| Citation span | 2014 - 2025 (12) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 8 |