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John A Bourke

Biographic Data

ID3558844
NAMEJohn A Bourke
GIVEN NAMESJohn A
FAMILY NAMEBourke
SIGNATUREBOURKE J A
AFFILIATIONSBurwood Hospital
ORCID0000-0002-1113-7462
VERIFIEDYes
TOTAL WORKS7
TOTAL CITATIONS1
AUTHOR COUNT7
EDITOR COUNT0
FIRST PUBLICATION YEAR2012
LATEST PUBLICATION YEAR2025
H-INDEX1
  • A framework for disability lived expertise

    Open Access•Shane Clifton, Emma Cooper et al.•ARTICLE•Evidence & Policy•2025•References: 5

    This article introduces a framework for disability lived expertise, aiming to address the undervaluing of contributions from people with disability in crucial sectors such as policy, services, rehabilitation, education and research. It distinguishes between disability lived experience, which is the personal and individual experience of disability, and 'lived expertise', which builds on personal experience through critical reflection and engagemen…

  • Disability lived experience and expertise: Recognising the expert contributions of people with disability

    Open Access•Shane Clifton, Emma Cooper et al.•ARTICLE•Evidence & Policy•2025•References: 1

    While the inclusion of 'disability lived experience' is increasingly advocated for in research, policy and practice, its conceptualisation and application present significant challenges. This article, a collaborative effort by 16 individuals with diverse disabilities and expertise, critically examines the limitations inherent in the current usage. We argue that prevailing interpretations of 'lived experience' presume subjectivity and over-emphasi…

  • Structures of Oppression or Inclusion: What Systemic Factors Impact Inclusion in Disability and Rehabilitation Research

    Open Access•Natasha Layton, Robert A Martins et al.•ARTICLE•Social Sciences•2024•Cited by: 1•References: 40

    This manuscript considers the drivers towards inclusive research in the field of disability and rehabilitation; including some of the tools and frameworks that may support its realisation. We, a group of researchers engaged in rehabilitation research from lived experience and 'conventional' (non-lived experience) positions, reflect on our collective endeavours to bring about inclusion in research and specify the systemic factors constraining incl…

  • Dissolving Ableism: Could Disabled People Flourish During the First Aotearoa New Zealand Covid-19 Lockdown

    Open Access•John A Bourke, Tim Young et al.•ARTICLE•Space and Culture•2023•References: 5

    Societal culture, space, and structure have been unprecedentedly disrupted during the COVID-19 pandemic creating disproportionate vulnerability for disabled people. However, the upheaval of many societal conditions has presented enabling opportunities for disabled people. We report on interviews with 30 disabled people during the first four-week Aotearoa New Zealand COVID-19 lockdown. Three key themes were interpreted: “I am experiencing less dis…

  • Understanding the longer-term health, wellbeing, and sense of community for disabled people following the 2010–2011 Canterbury earthquakes: A repeated cross-sectional study

    Open Access•John A Bourke, Allison Nichols-Dunsmuir et al.•ARTICLE•International Journal of Disaster…•2022

  • The Burwood Academy: Incorporating the Principles of the Independent Living Paradigm Into Rehabilitation Research

    Open Access•John A Bourke, Joanne L Nunnerley et al.•ARTICLE•International Journal of Human…•2019•References: 1

    Purpose The independent living (IL) movement is a social movement but also an analytic paradigm which can be used to inform and shape rehabilitation research and practice. The purpose of this paper is to describe how the principles of DeJong’s IL paradigm have been used to develop a guiding framework for the Burwood Academy, a rehabilitation and disability research organisation in New Zealand. The Burwood Academy drew on the consumer empowerment …

  • A user‐led consultation model: Making inclusion of service users in research a reality

    Open Access•John A Bourke, Deborah L Snell et al.•ARTICLE•Ethnicity and Inequalities in…•2012•References: 3

    Purpose Disabled people who are the end‐users (EU) of health services have a poor record of inclusion, yet a major stake in the quality of scientific research that informs the development of health knowledge and interventions. In traditional rehabilitation research it has been the researcher who sets the agenda, including determining the research question, study design and methods, and who controls dissemination of findings. This paper aims to de…

  • Structures of Oppression or Inclusion: What Systemic Factors Impact Inclusion in Disability and Rehabilitation Research

    Open Access•Natasha Layton, Robert A Martins et al.•ARTICLE•Social Sciences•2024•Cited by: 1•References: 40

    This manuscript considers the drivers towards inclusive research in the field of disability and rehabilitation; including some of the tools and frameworks that may support its realisation. We, a group of researchers engaged in rehabilitation research from lived experience and 'conventional' (non-lived experience) positions, reflect on our collective endeavours to bring about inclusion in research and specify the systemic factors constraining incl…

  • A user‐led consultation model: Making inclusion of service users in research a reality

    Open Access•John A Bourke, Deborah L Snell et al.•ARTICLE•Ethnicity and Inequalities in…•2012•References: 3

    Purpose Disabled people who are the end‐users (EU) of health services have a poor record of inclusion, yet a major stake in the quality of scientific research that informs the development of health knowledge and interventions. In traditional rehabilitation research it has been the researcher who sets the agenda, including determining the research question, study design and methods, and who controls dissemination of findings. This paper aims to de…

  • The Burwood Academy: Incorporating the Principles of the Independent Living Paradigm Into Rehabilitation Research

    Open Access•John A Bourke, Joanne L Nunnerley et al.•ARTICLE•International Journal of Human…•2019•References: 1

    Purpose The independent living (IL) movement is a social movement but also an analytic paradigm which can be used to inform and shape rehabilitation research and practice. The purpose of this paper is to describe how the principles of DeJong’s IL paradigm have been used to develop a guiding framework for the Burwood Academy, a rehabilitation and disability research organisation in New Zealand. The Burwood Academy drew on the consumer empowerment …

  • Understanding the longer-term health, wellbeing, and sense of community for disabled people following the 2010–2011 Canterbury earthquakes: A repeated cross-sectional study

    Open Access•John A Bourke, Allison Nichols-Dunsmuir et al.•ARTICLE•International Journal of Disaster…•2022

  • Dissolving Ableism: Could Disabled People Flourish During the First Aotearoa New Zealand Covid-19 Lockdown

    Open Access•John A Bourke, Tim Young et al.•ARTICLE•Space and Culture•2023•References: 5

    Societal culture, space, and structure have been unprecedentedly disrupted during the COVID-19 pandemic creating disproportionate vulnerability for disabled people. However, the upheaval of many societal conditions has presented enabling opportunities for disabled people. We report on interviews with 30 disabled people during the first four-week Aotearoa New Zealand COVID-19 lockdown. Three key themes were interpreted: “I am experiencing less dis…

  • Structures of Oppression or Inclusion: What Systemic Factors Impact Inclusion in Disability and Rehabilitation Research

    Open Access•Natasha Layton, Robert A Martins et al.•ARTICLE•Social Sciences•2024•Cited by: 1•References: 40

    This manuscript considers the drivers towards inclusive research in the field of disability and rehabilitation; including some of the tools and frameworks that may support its realisation. We, a group of researchers engaged in rehabilitation research from lived experience and 'conventional' (non-lived experience) positions, reflect on our collective endeavours to bring about inclusion in research and specify the systemic factors constraining incl…

  • A framework for disability lived expertise

    Open Access•Shane Clifton, Emma Cooper et al.•ARTICLE•Evidence & Policy•2025•References: 5

    This article introduces a framework for disability lived expertise, aiming to address the undervaluing of contributions from people with disability in crucial sectors such as policy, services, rehabilitation, education and research. It distinguishes between disability lived experience, which is the personal and individual experience of disability, and 'lived expertise', which builds on personal experience through critical reflection and engagemen…

  • Disability lived experience and expertise: Recognising the expert contributions of people with disability

    Open Access•Shane Clifton, Emma Cooper et al.•ARTICLE•Evidence & Policy•2025•References: 1

    While the inclusion of 'disability lived experience' is increasingly advocated for in research, policy and practice, its conceptualisation and application present significant challenges. This article, a collaborative effort by 16 individuals with diverse disabilities and expertise, critically examines the limitations inherent in the current usage. We argue that prevailing interpretations of 'lived experience' presume subjectivity and over-emphasi…

Psychology (6 works) · Sociology (6 works) · Inclusion (mineral (4 works) · Medicine (4 works) · Mental Health and Patient Involvement (4 works) · Political science (4 works) · Healthcare innovation and challenges (3 works) · Public relations (3 works) · Computer Science (2 works) · Disability Rights and Representation (2 works)

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