Marcia Finlayson
Biographic Data
| ID | 3886293 |
|---|---|
| NAME | Marcia Finlayson |
| GIVEN NAMES | Marcia |
| FAMILY NAME | Finlayson |
| SIGNATURE | FINLAYSON M |
| AFFILIATIONS | University of Illinois Chicago |
| ORCID | 0000-0002-1774-4810 |
| VERIFIED | Yes |
| TOTAL WORKS | 19 |
| TOTAL CITATIONS | 12 |
| AUTHOR COUNT | 19 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2003 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 2 |
Symptoms, Functional Impact and Perceived Healthcare Barriers Experienced by Racialized Communities Living with Long Covid in Canada: A Mixed-methods Study
Understanding the Parental Caregiving of Children with Cerebral Palsy in Saudi Arabia: Discovering the Untold Story
Parents provide most of the support needed for children with cerebral palsy (CP) to increase the child's participation and independence. Understanding the experiences of parents caring for children with CP is essential for developing effective family programs and services. The current knowledge about parents' experiences in CP is based on studies in Western countries, with little known about this phenomenon in Arab countries like Saudi Arabia. Th…
How Community-Based Health and Social Care Professionals Support Unpaid Caregivers: Experiences From One Health Authority in Ontario, Canada
In Ontario, Canada, rising rates of caregiver distress have been the ‘canary in the coal mine’ for a health system out of balance with the needs of an ageing population. Community-based health and social care professionals are well placed to play an important role in the caregiver support process; however, a gap has remained in the understanding of if and how caregiver support strategies are operationalized or experienced by community service pro…
Exploring Covid‐19 experiences for persons with multiple sclerosis and carers: An Australian qualitative study
OBJECTIVE: The COVID-19 pandemic continues to impact communities around the world. In this study, we explored the COVID-19 experiences of persons with multiple sclerosis (MS) and carers. METHODS: Using a qualitative approach, interviews were undertaken with 27 participants residing in Australia (10 persons with MS, 10 carers and 7 MS service providers). Demographic and background data were also collected. Interviews were analysed using an inducti…
Multiple sclerosis caregiving: A systematic scoping review to map current state of knowledge
Unpaid caregivers, typically family and friends, provide significant amounts of support to people with multiple sclerosis (MS). Understanding their experiences, needs and challenges is necessary to ensure that caregivers receive the support that they require to continue in their role. Our aim was to map the current state of knowledge about unpaid caregivers of people with MS and identify gaps in knowledge to guide future research and practice. We…
Moral distress experienced by community service providers of home health and social care in Ontario, Canada
Moral distress occurs when one knows a morally correct action to take but feels powerless to act the way one believes is right. Moral distress has been studied in many contexts but there remains a gap in our understanding of the phenomenon as it manifests outside of hospital-based settings. The aim of this study was to explore the nature of the moral distress experience among community-based health and social care professionals working with older…
Healthcare access experiences of persons with MS explored through the Candidacy Framework
Canada has one of the highest rates of multiple sclerosis (MS) in the world, affecting 1 in every 385 individuals. This neurodegenerative condition is unpredictable and variable in symptom profile and disease course making it difficult to manage. Canadians with MS are high users of healthcare services; however, they report multiple unmet needs, high disease burden, and low satisfaction with healthcare. Access to healthcare is vital to health main…
Is it worth it: The experiences of persons with multiple sclerosis as they access health care to manage their condition
BACKGROUND: People with multiple sclerosis (MS) require complex care throughout life. Canadians with MS are high users of health-care services, yet still report unmet health-care needs and low satisfaction with services received. OBJECTIVE: This study aimed to investigate the health-care access experiences of Ontarians with MS as they manage their condition. DESIGN AND PARTICIPANTS: Interpretive description guided data collection and analysis. Fo…
Adherence in Youth With Multiple Sclerosis: A Qualitative Assessment of Habit Formation, Barriers, and Facilitators
Rates of medication nonadherence in youth with multiple sclerosis (MS) range from 10% to 60%. Qualitative studies of adherence can provide insight into children's own perspectives about barriers and facilitators to their adherence and inform future interventions. This qualitative longitudinal descriptive study included children with MS ( n = 28) participating in a randomized controlled trial focused on medication adherence ( clinicaltrials.gov : …
Understanding leisure‐time physical activity: Voices of people with MS who have moderate‐to‐severe disability and their family caregivers
BACKGROUND: Physical activity (PA) is beneficial for all people, yet people affected by multiple sclerosis (MS) find regular PA challenging. These people may include individuals with the disease who have moderate-to-severe disability and their family caregivers. For researchers and clinicians to effectively promote PA among caregiver/care-recipient dyads with moderate-to-severe MS, a comprehensive understanding of the shared PA experiences of the…
The Experience of Persons With Multiple Sclerosis Using MS INFoRm: An Interactive Fatigue Management Resource
We aimed to understand participants' experiences with a self-guided fatigue management resource, Multiple Sclerosis: An Interactive Fatigue Management Resource ( MS INFoRm), and the extent to which they found its contents relevant and useful to their daily lives. We recruited 35 persons with MS experiencing mild to moderate fatigue, provided them with MS INFoRm, and then conducted semistructured interviews 3 weeks and 3 months after they received…
Identifying preferred format and source of exercise information in persons with multiple sclerosis that can be delivered by health‐care providers
BACKGROUND: There is increasing recognition of the benefits of exercise in individuals with multiple sclerosis (MS), yet the MS population does not engage in sufficient amounts of exercise to accrue health benefits. There has been little qualitative inquiry to establish the preferred format and source for receiving exercise information from health-care providers among persons with MS. OBJECTIVE: We sought to identify the desired and preferred for…
Multiple sclerosis patients need and want information on exercise promotion from healthcare providers: A qualitative study
BACKGROUND: There is growing recognition of the benefits and safety of exercise and its importance in the comprehensive care of persons with multiple sclerosis (MS), yet uptake is low. OBJECTIVE: We explored the needs and wants of patients with MS regarding exercise promotion through healthcare providers. SETTING AND PARTICIPANTS: Participants were adults with MS who had mild-or-moderate disability and a range of exercise levels. All participants…
Combining Qualitative and Quantitative Data Collection and Analysis Methods in Understanding Multiple Sclerosis Fatigue Management
Combining qualitative inquiry with quantitative frequency data in a mixed methods research approach was valuable in understanding the strategies that people with Multiple Sclerosis (MS) used to manage their fatigue. Understanding its management is important because fatigue is often described by people with MS as their most disabling symptom and can pervade all aspects of a person's life. This research aimed to identify how often people used parti…
Utilization of health promotion and wellness services among middle-aged and older adults with multiple sclerosis in the mid-west US
Routine engagement in healthy behaviors may improve quality of life in older adults with chronic disabling conditions, such as multiple sclerosis (MS). However, older adults with chronic conditions may face many barriers to engaging in healthy behaviors. Health promotion and wellness services may help older adults with chronic conditions engage in healthy behaviors. Thus, the purpose of this study was to identify factors associated with the use o…
Using Religious Services to Improve Health: Findings From a Sample of Middle-Aged and Older Adults With Multiple Sclerosis
Religious organizations should continue providing out-reach and increasing accessibility for individuals with disabling conditions. In addition, health care professionals should be aware of the importance of religious services to individuals with MS and do their part to facilitate participation for those who desire it
Assistive Technology Access and Financing: Introduction to the Special Series on Examining the Intersections of Practice, Research, and Policy
Providing Alternative Financing for Assistive Technology: Outcomes Over Twenty Months
This article presents the findings from data collected between October 1, 2000, and June 12, 2002, through a Web-based outcome data collection and management system designed for use by alternative financing programs (AFPs) for assistive technology that are supported by a grant from the National Institute of Disability and Rehabilitation Research. The findings suggest that funding for mobility equipment (including adapted transportation) is the mo…
Using Participatory Action Research to Examine Outcomes and Effect Systems Change in Assistive Technology Financing
A participatory action research study was conducted to develop a shared, Web-based system for documenting outcomes of the national Assistive Technology Alternative Financing Program. Key stakeholders, including alternative financing state programs, consumers with disabilities, financial lending organizations, and federal/state policy and funding representatives, actively participated in identifying items, and in creating, using and refining the s…
Combining Qualitative and Quantitative Data Collection and Analysis Methods in Understanding Multiple Sclerosis Fatigue Management
Combining qualitative inquiry with quantitative frequency data in a mixed methods research approach was valuable in understanding the strategies that people with Multiple Sclerosis (MS) used to manage their fatigue. Understanding its management is important because fatigue is often described by people with MS as their most disabling symptom and can pervade all aspects of a person's life. This research aimed to identify how often people used parti…
Healthcare access experiences of persons with MS explored through the Candidacy Framework
Canada has one of the highest rates of multiple sclerosis (MS) in the world, affecting 1 in every 385 individuals. This neurodegenerative condition is unpredictable and variable in symptom profile and disease course making it difficult to manage. Canadians with MS are high users of healthcare services; however, they report multiple unmet needs, high disease burden, and low satisfaction with healthcare. Access to healthcare is vital to health main…
Adherence in Youth With Multiple Sclerosis: A Qualitative Assessment of Habit Formation, Barriers, and Facilitators
Rates of medication nonadherence in youth with multiple sclerosis (MS) range from 10% to 60%. Qualitative studies of adherence can provide insight into children's own perspectives about barriers and facilitators to their adherence and inform future interventions. This qualitative longitudinal descriptive study included children with MS ( n = 28) participating in a randomized controlled trial focused on medication adherence ( clinicaltrials.gov : …
Using Religious Services to Improve Health: Findings From a Sample of Middle-Aged and Older Adults With Multiple Sclerosis
Religious organizations should continue providing out-reach and increasing accessibility for individuals with disabling conditions. In addition, health care professionals should be aware of the importance of religious services to individuals with MS and do their part to facilitate participation for those who desire it
Multiple sclerosis caregiving: A systematic scoping review to map current state of knowledge
Unpaid caregivers, typically family and friends, provide significant amounts of support to people with multiple sclerosis (MS). Understanding their experiences, needs and challenges is necessary to ensure that caregivers receive the support that they require to continue in their role. Our aim was to map the current state of knowledge about unpaid caregivers of people with MS and identify gaps in knowledge to guide future research and practice. We…
The Experience of Persons With Multiple Sclerosis Using MS INFoRm: An Interactive Fatigue Management Resource
We aimed to understand participants' experiences with a self-guided fatigue management resource, Multiple Sclerosis: An Interactive Fatigue Management Resource ( MS INFoRm), and the extent to which they found its contents relevant and useful to their daily lives. We recruited 35 persons with MS experiencing mild to moderate fatigue, provided them with MS INFoRm, and then conducted semistructured interviews 3 weeks and 3 months after they received…
Using Participatory Action Research to Examine Outcomes and Effect Systems Change in Assistive Technology Financing
A participatory action research study was conducted to develop a shared, Web-based system for documenting outcomes of the national Assistive Technology Alternative Financing Program. Key stakeholders, including alternative financing state programs, consumers with disabilities, financial lending organizations, and federal/state policy and funding representatives, actively participated in identifying items, and in creating, using and refining the s…
Assistive Technology Access and Financing: Introduction to the Special Series on Examining the Intersections of Practice, Research, and Policy
Providing Alternative Financing for Assistive Technology: Outcomes Over Twenty Months
This article presents the findings from data collected between October 1, 2000, and June 12, 2002, through a Web-based outcome data collection and management system designed for use by alternative financing programs (AFPs) for assistive technology that are supported by a grant from the National Institute of Disability and Rehabilitation Research. The findings suggest that funding for mobility equipment (including adapted transportation) is the mo…
Using Participatory Action Research to Examine Outcomes and Effect Systems Change in Assistive Technology Financing
A participatory action research study was conducted to develop a shared, Web-based system for documenting outcomes of the national Assistive Technology Alternative Financing Program. Key stakeholders, including alternative financing state programs, consumers with disabilities, financial lending organizations, and federal/state policy and funding representatives, actively participated in identifying items, and in creating, using and refining the s…
Using Religious Services to Improve Health: Findings From a Sample of Middle-Aged and Older Adults With Multiple Sclerosis
Religious organizations should continue providing out-reach and increasing accessibility for individuals with disabling conditions. In addition, health care professionals should be aware of the importance of religious services to individuals with MS and do their part to facilitate participation for those who desire it
Utilization of health promotion and wellness services among middle-aged and older adults with multiple sclerosis in the mid-west US
Routine engagement in healthy behaviors may improve quality of life in older adults with chronic disabling conditions, such as multiple sclerosis (MS). However, older adults with chronic conditions may face many barriers to engaging in healthy behaviors. Health promotion and wellness services may help older adults with chronic conditions engage in healthy behaviors. Thus, the purpose of this study was to identify factors associated with the use o…
Combining Qualitative and Quantitative Data Collection and Analysis Methods in Understanding Multiple Sclerosis Fatigue Management
Combining qualitative inquiry with quantitative frequency data in a mixed methods research approach was valuable in understanding the strategies that people with Multiple Sclerosis (MS) used to manage their fatigue. Understanding its management is important because fatigue is often described by people with MS as their most disabling symptom and can pervade all aspects of a person's life. This research aimed to identify how often people used parti…
Identifying preferred format and source of exercise information in persons with multiple sclerosis that can be delivered by health‐care providers
BACKGROUND: There is increasing recognition of the benefits of exercise in individuals with multiple sclerosis (MS), yet the MS population does not engage in sufficient amounts of exercise to accrue health benefits. There has been little qualitative inquiry to establish the preferred format and source for receiving exercise information from health-care providers among persons with MS. OBJECTIVE: We sought to identify the desired and preferred for…
Multiple sclerosis patients need and want information on exercise promotion from healthcare providers: A qualitative study
BACKGROUND: There is growing recognition of the benefits and safety of exercise and its importance in the comprehensive care of persons with multiple sclerosis (MS), yet uptake is low. OBJECTIVE: We explored the needs and wants of patients with MS regarding exercise promotion through healthcare providers. SETTING AND PARTICIPANTS: Participants were adults with MS who had mild-or-moderate disability and a range of exercise levels. All participants…
Understanding leisure‐time physical activity: Voices of people with MS who have moderate‐to‐severe disability and their family caregivers
BACKGROUND: Physical activity (PA) is beneficial for all people, yet people affected by multiple sclerosis (MS) find regular PA challenging. These people may include individuals with the disease who have moderate-to-severe disability and their family caregivers. For researchers and clinicians to effectively promote PA among caregiver/care-recipient dyads with moderate-to-severe MS, a comprehensive understanding of the shared PA experiences of the…
The Experience of Persons With Multiple Sclerosis Using MS INFoRm: An Interactive Fatigue Management Resource
We aimed to understand participants' experiences with a self-guided fatigue management resource, Multiple Sclerosis: An Interactive Fatigue Management Resource ( MS INFoRm), and the extent to which they found its contents relevant and useful to their daily lives. We recruited 35 persons with MS experiencing mild to moderate fatigue, provided them with MS INFoRm, and then conducted semistructured interviews 3 weeks and 3 months after they received…
Adherence in Youth With Multiple Sclerosis: A Qualitative Assessment of Habit Formation, Barriers, and Facilitators
Rates of medication nonadherence in youth with multiple sclerosis (MS) range from 10% to 60%. Qualitative studies of adherence can provide insight into children's own perspectives about barriers and facilitators to their adherence and inform future interventions. This qualitative longitudinal descriptive study included children with MS ( n = 28) participating in a randomized controlled trial focused on medication adherence ( clinicaltrials.gov : …
Is it worth it: The experiences of persons with multiple sclerosis as they access health care to manage their condition
BACKGROUND: People with multiple sclerosis (MS) require complex care throughout life. Canadians with MS are high users of health-care services, yet still report unmet health-care needs and low satisfaction with services received. OBJECTIVE: This study aimed to investigate the health-care access experiences of Ontarians with MS as they manage their condition. DESIGN AND PARTICIPANTS: Interpretive description guided data collection and analysis. Fo…
Multiple sclerosis caregiving: A systematic scoping review to map current state of knowledge
Unpaid caregivers, typically family and friends, provide significant amounts of support to people with multiple sclerosis (MS). Understanding their experiences, needs and challenges is necessary to ensure that caregivers receive the support that they require to continue in their role. Our aim was to map the current state of knowledge about unpaid caregivers of people with MS and identify gaps in knowledge to guide future research and practice. We…
Moral distress experienced by community service providers of home health and social care in Ontario, Canada
Moral distress occurs when one knows a morally correct action to take but feels powerless to act the way one believes is right. Moral distress has been studied in many contexts but there remains a gap in our understanding of the phenomenon as it manifests outside of hospital-based settings. The aim of this study was to explore the nature of the moral distress experience among community-based health and social care professionals working with older…
Healthcare access experiences of persons with MS explored through the Candidacy Framework
Canada has one of the highest rates of multiple sclerosis (MS) in the world, affecting 1 in every 385 individuals. This neurodegenerative condition is unpredictable and variable in symptom profile and disease course making it difficult to manage. Canadians with MS are high users of healthcare services; however, they report multiple unmet needs, high disease burden, and low satisfaction with healthcare. Access to healthcare is vital to health main…
Exploring Covid‐19 experiences for persons with multiple sclerosis and carers: An Australian qualitative study
OBJECTIVE: The COVID-19 pandemic continues to impact communities around the world. In this study, we explored the COVID-19 experiences of persons with multiple sclerosis (MS) and carers. METHODS: Using a qualitative approach, interviews were undertaken with 27 participants residing in Australia (10 persons with MS, 10 carers and 7 MS service providers). Demographic and background data were also collected. Interviews were analysed using an inducti…
How Community-Based Health and Social Care Professionals Support Unpaid Caregivers: Experiences From One Health Authority in Ontario, Canada
In Ontario, Canada, rising rates of caregiver distress have been the ‘canary in the coal mine’ for a health system out of balance with the needs of an ageing population. Community-based health and social care professionals are well placed to play an important role in the caregiver support process; however, a gap has remained in the understanding of if and how caregiver support strategies are operationalized or experienced by community service pro…
Understanding the Parental Caregiving of Children with Cerebral Palsy in Saudi Arabia: Discovering the Untold Story
Parents provide most of the support needed for children with cerebral palsy (CP) to increase the child's participation and independence. Understanding the experiences of parents caring for children with CP is essential for developing effective family programs and services. The current knowledge about parents' experiences in CP is based on studies in Western countries, with little known about this phenomenon in Arab countries like Saudi Arabia. Th…
Symptoms, Functional Impact and Perceived Healthcare Barriers Experienced by Racialized Communities Living with Long Covid in Canada: A Mixed-methods Study
Medicine (15 works) · Psychology (14 works) · Multiple Sclerosis Research Studies (11 works) · Nursing (11 works) · Health care (9 works) · Qualitative research (7 works) · Computer Science (6 works) · Business (5 works) · Political science (5 works) · Population (5 works)