Bethan Page
Biographic Data
| ID | 4415017 |
|---|---|
| NAME | Bethan Page |
| GIVEN NAMES | Bethan |
| FAMILY NAME | Page |
| SIGNATURE | PAGE B |
| AFFILIATIONS | Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation King's College London London UK |
| ORCID | 0000-0002-9937-6176 |
| VERIFIED | Yes |
| TOTAL WORKS | 7 |
| TOTAL CITATIONS | 1 |
| AUTHOR COUNT | 7 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2020 |
| LATEST PUBLICATION YEAR | 2025 |
| H-INDEX | 1 |
Family Caregivers' Experiences of Services for Children With Medical Complexity: A Systematic Review and Qualitative Evidence Synthesis
BACKGROUND: Many high-income countries are seeking to adapt services to meet the needs of the growing population of children with medical complexity and their families but concerns have been raised about the quality of this care. To understand family caregivers' experiences of services and identify priorities for improvement we need to synthesise research about families' experiences of services for children with medical complexity. OBJECTIVES: To…
Patient and Public Involvement Work With Parents of Children With Life‐Limiting Conditions and Bereaved Parents: A Rapid Systematic Review
Floundering or Flourishing? Early Insights from the Inception of Integrated Care Systems in England
Despite ICS's investing in the structural and relational components of integrated care, the unprecedented pressures on systems to reduce demand on primary and emergency care tackling elective backlogs may detract from a key goal of ICSs, improving population health and prevention
Parent's Experience of a New Approach to Family Safeguarding in Oxfordshire Children Social Care Services
The Family Safeguarding Practice (FSP) framework represents a major shift in the approach to family safeguarding and services, with a much greater emphasis on empowering and supporting the family to be able to care for their child safely and independently. The aim of the study was to understand the impact of the new model to family's experience with children social services and what parts of the model were helpful or challenging. We recruited par…
Integrated Care Systems in England: Progress towards forming new multi-stakeholder partnerships to develop quality
Background: Health and social care services in England have been restructured to 42 Integrated Care Systems (ICS). ICSs are responsible for delivering integrated services in their local area to prevent illness; identify and treat illness effectively; and provide support to improve quality of life for people with long-term illness or disability. Under the umbrella of ICSs, previously siloed organisations need to work together to deliver quality ca…
Coproducing a library of videos to support families caring for children with gastrostomies: A mixed‐methods evaluation with family carers and clinicians
INTRODUCTION: Many families now perform specialist medical procedures at home. Families need appropriate training and support to do this. The aim of this study was to evaluate a library of videos, coproduced with parents and healthcare professionals, to support and educate families caring for a child with a gastrostomy. METHODS: A mixed-methods online survey evaluating the videos was completed by 43 family carers who care for children with gastro…
The challenges of caring for children who require complex medical care at home: ‘The go between for everyone is the parent and as the parent that’s an awful lot of responsibility’
BACKGROUND: Increasing numbers of children with complex health-care needs are cared for at home by their family. The aim of this qualitative study was to explore the challenges experienced by families caring for children who need complex medical care at home. METHODS: We conducted a thematic analysis of eleven in-depth interviews with parents who carry out specialist medical procedures (eg, enteral feeding, bowel washouts and tracheostomy care) f…
Floundering or Flourishing? Early Insights from the Inception of Integrated Care Systems in England
Despite ICS's investing in the structural and relational components of integrated care, the unprecedented pressures on systems to reduce demand on primary and emergency care tackling elective backlogs may detract from a key goal of ICSs, improving population health and prevention
The challenges of caring for children who require complex medical care at home: ‘The go between for everyone is the parent and as the parent that’s an awful lot of responsibility’
BACKGROUND: Increasing numbers of children with complex health-care needs are cared for at home by their family. The aim of this qualitative study was to explore the challenges experienced by families caring for children who need complex medical care at home. METHODS: We conducted a thematic analysis of eleven in-depth interviews with parents who carry out specialist medical procedures (eg, enteral feeding, bowel washouts and tracheostomy care) f…
Coproducing a library of videos to support families caring for children with gastrostomies: A mixed‐methods evaluation with family carers and clinicians
INTRODUCTION: Many families now perform specialist medical procedures at home. Families need appropriate training and support to do this. The aim of this study was to evaluate a library of videos, coproduced with parents and healthcare professionals, to support and educate families caring for a child with a gastrostomy. METHODS: A mixed-methods online survey evaluating the videos was completed by 43 family carers who care for children with gastro…
Integrated Care Systems in England: Progress towards forming new multi-stakeholder partnerships to develop quality
Background: Health and social care services in England have been restructured to 42 Integrated Care Systems (ICS). ICSs are responsible for delivering integrated services in their local area to prevent illness; identify and treat illness effectively; and provide support to improve quality of life for people with long-term illness or disability. Under the umbrella of ICSs, previously siloed organisations need to work together to deliver quality ca…
Patient and Public Involvement Work With Parents of Children With Life‐Limiting Conditions and Bereaved Parents: A Rapid Systematic Review
Floundering or Flourishing? Early Insights from the Inception of Integrated Care Systems in England
Despite ICS's investing in the structural and relational components of integrated care, the unprecedented pressures on systems to reduce demand on primary and emergency care tackling elective backlogs may detract from a key goal of ICSs, improving population health and prevention
Parent's Experience of a New Approach to Family Safeguarding in Oxfordshire Children Social Care Services
The Family Safeguarding Practice (FSP) framework represents a major shift in the approach to family safeguarding and services, with a much greater emphasis on empowering and supporting the family to be able to care for their child safely and independently. The aim of the study was to understand the impact of the new model to family's experience with children social services and what parts of the model were helpful or challenging. We recruited par…
Family Caregivers' Experiences of Services for Children With Medical Complexity: A Systematic Review and Qualitative Evidence Synthesis
BACKGROUND: Many high-income countries are seeking to adapt services to meet the needs of the growing population of children with medical complexity and their families but concerns have been raised about the quality of this care. To understand family caregivers' experiences of services and identify priorities for improvement we need to synthesise research about families' experiences of services for children with medical complexity. OBJECTIVES: To…
Medicine (4 works) · Nursing (4 works) · Psychology (4 works) · Infant Development and Preterm Care (3 works) · Qualitative research (3 works) · Sociology (3 works) · Childhood Cancer Survivors' Quality of Life (2 works) · Family medicine (2 works) · Health care (2 works) · Interprofessional Education and Collaboration (2 works)