Mirjam A G Sprangers
Biographic Data
| ID | 4720544 |
|---|---|
| NAME | Mirjam A G Sprangers |
| GIVEN NAMES | Mirjam A G |
| FAMILY NAME | Sprangers |
| SIGNATURE | SPRANGERS M A G |
| AFFILIATIONS | University of Amsterdam |
| ORCID | 0000-0002-3728-6933 |
| VERIFIED | Yes |
| TOTAL WORKS | 64 |
| TOTAL CITATIONS | 121 |
| AUTHOR COUNT | 64 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 1987 |
| LATEST PUBLICATION YEAR | 2024 |
| H-INDEX | 4 |
Toward an improved conceptualization of emotions in patients with cancer
Cancer and its associated treatment is a major stressor, leading to emotions such as anxiety or depressive mood. Human emotions have developed through the course of evolution because they facilitate adaptation to important events, such as cancer and its associated treatment. On the other hand, emotions can be maladaptive and interfere with adaptation to cancer. Emotions are maladaptive if they are disproportionally severe or persistent, and if th…
Response shift in results of patient-reported outcome measures: A commentary to The Response Shift—in Sync Working Group initiative
Future response shift research will benefit from collaboration among diverse people, formulating alternative hypotheses of response shift, and conducting the most conclusive studies aimed at testing these (falsification)
Response shift in patient-reported outcomes: Definition, theory, and a revised model
It is our hope that this refined definition and model are useful in the further development of response shift theory. The model with its explicit list of assumptions and hypothesized relationships lends itself for critical, empirical examination. Future studies are needed to empirically test the assumptions and hypothesized relationships
Response shift after coronary revascularization
Results indicate response shift in HRQoL following coronary revascularization. While we did not find an impact of response shift on the estimates of change, the SEM approach provides a more comprehensive insight into the different types of change in HRQoL following coronary revascularization
Using structural equation modeling to investigate change and response shift in patient-reported outcomes: Practical considerations and recommendations
Background Patient-reported outcomes (PROs) are of increasing importance for health-care evaluations. However, the interpretation of change in PROs may be obfuscated due to changes in the meaning of the self-evaluation, i.e., response shift. Structural equation modeling (SEM) is the most widely used statistical approach for the investigation of response shift. Yet, non-technical descriptions of SEM for response shift investigation are lacking. Mo…
Implications of response shift for micro-, meso-, and macro-level healthcare decision-making using results of patient-reported outcome measures
Given empirical evidence of response shift, there is a critical need for guidelines and knowledge translation to avoid potential misinterpretations of PROM results and consequential biases in decision-making. Our framework with guiding questions provides a structure for developing strategies to address potential impacts of response shift at micro-, meso-, and macro-levels
Critical examination of current response shift methods and proposal for advancing new methods
No single response shift method is optimal; each method has strengths and limitations. Additionally, extra steps need to be taken to correctly interpret the results. Advancing new methods and conducting computer simulation studies that compare methods are recommended to move response shift research forward
Sub-optimal adherence to combination anti-retroviral therapy and its associated factors according to self-report, clinician-recorded and pharmacy-refill assessment methods among HIV-infected adults in…
Adherence to combination antiretroviral therapy (cART) is generally high in most resource-limited settings. However, sub-optimal adherence occurs in a sizable proportion of patients, and is independently predictive of detectable viremia. We investigated sub-optimal adherence according to self-report, clinician-recorded, and pharmacy-refill assessment methods, and their associated factors among HIV-infected adults receiving cART in Addis Ababa, Et…
Toward mindfulness in quality-of-life research: Perspectives on how to avoid rigor becoming rigidity
It is hoped that this overview will lead to a reconsideration of a more flexible application of research principles while retaining scientific rigor
Assessing reserve-building pursuits and person characteristics: Psychometric validation of the Reserve-Building Measure
Narrative meaning making and integration: Toward a better understanding of the way falling ill influences quality of life
Falling seriously ill is often experienced as a life event that causes conflict with people’s personal goals and expectations in life and evokes existential questions. This article presents a new humanities approach to the way people make meaning of such events and how this influences their quality of life. Incorporating theories on contingency, narrative identity, and quality of life, we developed a theoretical model entailing the concepts life …
Item bias detection in the Hospital Anxiety and Depression Scale using structural equation modeling: Comparison with other item bias detection methods
SEM provides a flexible tool for the investigation of item bias in health-related questionnaires. Multidimensional SEM has practical and statistical advantages over multigroup SEM, and over other item bias detection methods, as it enables item bias detection with respect to multiple variables, of various measurement levels, and with more statistical power, ultimately providing more valid comparisons of patients' well-being in both research and cl…
Goal adjustment strategies operationalised and empirically examined in adolescents with cancer
Adolescents facing cancer may need to adjust their personal life goals. Theories identified several goal adjustment strategies, but their use has not been tested. Therefore, this study operationalises goal adjustment strategies and examines their use. Adolescent cancer patients listed their goals 3 and 12 months post-diagnosis. Goals received scores on five goal characteristics: life domain, level of abstraction, importance, attainability and eff…
Health-related quality of life of HIV-infected adults receiving combination antiretroviral therapy in Addis Ababa
Health-related quality of life (HRQoL) is an important outcome measure among HIV-infected patients receiving combination antiretroviral therapy (cART), but has not been studied extensively in resource-limited settings. Insight in the predictors or correlates of poor HRQoL may be helpful to identify patients most in need of additional support and to design appropriate interventions. A cross-sectional study was conducted between September 2012 and …
Using structural equation modeling to detect response shifts and true change in discrete variables: An application to the items of the SF-36
The proposed SEM approach to discrete data enables response shift detection at the item level. This will lead to a better understanding of the response shift phenomena at the item level and therefore enhances interpretation of change in the area of HRQL
Using a retrospective pretest instead of a conventional pretest is replacing biases: A qualitative study of cognitive processes underlying responses to thentest items
Both assumptions underlying the thentest design appear not to be supported by the patients' cognitive processes. Replacing the conventional pretest-posttest design with the thentest design may simply be replacing one set of biases with another
Long-term effects of goal disturbance and adjustment on well-being in cancer patients
The present study is the first to test the theoretical assumption that goal adjustment is beneficial after goal disturbance. Whereas these findings need to be confirmed in future research, the possibly beneficial role of goal disengagement and actual goal adjustment strategies can be used for psychological interventions
Method variation in the impact of missing data on response shift detection
Taking into account the impact of attrition on the assessment of response shift and true change: A multigroup structural equation modeling approach
How recent health-related life events affected my perspective on quality-of-life research
Cancer in full-colour: Use of a graphic novel to identify distress in women with breast cancer
The graphic novel Cancer Vixen about breast cancer was used as an example to examine whether reading of graphic novels may enhance insight into illness experiences. Content analysis showed that the graphic novel depicts the full range of distress, by portraying practical, social, emotional, religious/spiritual and physical problems. Findings were illustrated with descriptions from the book. The results indicate that - from a content perspective -…
Guidelines for secondary analysis in search of response shift
Meta-analysis shows clinically relevant and long-lasting deterioration in health-related quality of life after esophageal cancer surgery
International development of an EORTC questionnaire for assessing health-related quality of life in chronic myeloid leukemia patients: The EORTC QLQ-CML24
Let’s engage the patient within us: A personal perspective on patient engagement
Integrating response shift into health-related quality of life research: A Theoretical Model
Methodological approaches for assessing response shift in longitudinal health-related quality-of-life research
Narrative meaning making and integration: Toward a better understanding of the way falling ill influences quality of life
Falling seriously ill is often experienced as a life event that causes conflict with people’s personal goals and expectations in life and evokes existential questions. This article presents a new humanities approach to the way people make meaning of such events and how this influences their quality of life. Incorporating theories on contingency, narrative identity, and quality of life, we developed a theoretical model entailing the concepts life …
Cancer in full-colour: Use of a graphic novel to identify distress in women with breast cancer
The graphic novel Cancer Vixen about breast cancer was used as an example to examine whether reading of graphic novels may enhance insight into illness experiences. Content analysis showed that the graphic novel depicts the full range of distress, by portraying practical, social, emotional, religious/spiritual and physical problems. Findings were illustrated with descriptions from the book. The results indicate that - from a content perspective -…
Linking Concurrent Self-Reports and Retrospective Proxy Reports About the Last Year of Life: A Prevailing Picture of Life Satisfaction Decline
Results qualify theoretical expectations and empirical results based on self-report data that are typically available 1 or 2 years before death. We discuss that retrospective proxy reports in panel surveys can be used as a hypothesis-generating tool to gather insights into late life
A constructive replication of White's alleged refutation of Nisbett and Wilson and of Bem: Limitations of verbal reports of internal events
Response-Style Effects, Response-Shift Bias and a Bogus-Pipeline
The influence of response-style effects on subjects' self-ratings was assessed, utilizing a bogus-pipeline technique. The design was a pretest-posttest design, including retrospective preratings. Subjects were 73 psychology freshmen fulfilling a course requirement. Subjects were led to believe that the veracity of their self-reports could be checked by means of objective measures. The bogus-pipeline induction in the pretesting did lower self-repo…
A constructive replication of White's alleged refutation of Nisbett and Wilson and of Bem: Limitations of verbal reports of internal events
Response-Style Effects, Response-Shift Bias, and a Bogus-Pipeline: A Replication
In an earlier study by Sprangers and Hoogstraten, a bogus-pipeline induction did remove response-style effects in the self-reported pretest. Response-shift bias, defined as a significant mean difference between conventional pre- and retrospective preratings, was consequently eliminated. It was concluded that response-style effects in the pretesting are a likely cause of response-shift bias. The present experiment was designed to examine whether t…
The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: A review
Quality of life assessment: International perspectives
Translation, Validation, and Norming of the Dutch Language Version of the SF-36 Health Survey in Community and Chronic Disease Populations
Disease-specific quality of life: Is it one construct
Integrating response shift into health-related quality of life research: A Theoretical Model
Methodological approaches for assessing response shift in longitudinal health-related quality-of-life research
Understanding self-rated health
Use of differential item functioning analysis to assess the equivalence of translations of a questionnaire
Is a single-item visual analogue scale as valid, reliable and responsive as multi-item scales in measuring quality of life
The value of the Hospital Anxiety and Depression Scale (Hads) for comparing women with early onset breast cancer with population-based reference women
Methods to detect response shift in quality of life data: A convergent validity study
An application of structural equation modeling to detect response shifts and true change in quality of life data from cancer patients undergoing invasive surgery
The use of differential item functioning analyses to identify cultural differences in responses to the EORTC QLQ-C30
Comparing translations of the EORTC QLQ-C30 using differential item functioning analyses
Multidimensional Computerized Adaptive Testing of the EORTC QLQ-C30: Basic Developments and Evaluations
Response to Commentary on Comparing translations of the EORTC QLQ-C30 using differential item functioning analyses
Spontaneous reports of most distressing concerns in patients with inoperable lung cancer: At present, in retrospect and in comparison with EORTC-QLQ-C30+LC13
Small-cell lung cancer patients are just ‘a little bit’ tired: Response shift and self-presentation in the measurement of fatigue
In addition to response shift, this study suggests that 'self-presentation' might be an important mechanism affecting QoL measurement, particularly during phases when a new equilibrium needs to be found
Are Retrospective Measures of Change in Quality of Life More Valid Than Prospective Measures
BACKGROUND: Adaptation to changing health presents a challenge to measuring change in quality of life (QoL). Previous studies have shown that different methods for measuring change yield different results, but it is unclear which method provides a more valid measurement of change. We investigated which of 3 commonly used methods for measuring change in QoL yielded the strongest associations with clinical measures of change in health status. METHO…
Doing Cross-Cultural Research: Ethical and Methodological Perspectives
Clarifying quality of life assessment: Do theoretical models capture the underlying cognitive processes
The two models combined are useful in describing the cognitive processes cancer patients use in answering QoL items, and as such facilitate insight into patients' self-reported QoL assessments. Interestingly, the content of the cognitive processes not only differed between patients but also between items within patients and over time
Listen to their answers! Response behaviour in the measurement of physical and role functioning
Terminally ill patients evaluate their functioning in terms of what they perceive to be normal under the circumstances. Their answers can be interpreted in terms of change in the appraisal process (Rapkin and Schwartz 2004; Health and Quality of Life Outcomes, 2, 14). More care should be taken in assessing the quality of a set of questions about physical and role functioning
Medicine (55 works) · Psychology (48 works) · Public health (34 works) · Quality of Life Research (32 works) · Quality of life (healthcare (29 works) · Clinical Psychology (26 works) · Statistics (22 works) · Clinical Psychology (21 works) · Computer Science (21 works) · Health Systems, Economic Evaluations, Quality of Life (20 works)