Lucyna Lach
Biographic Data
| ID | 4871503 |
|---|---|
| NAME | Lucyna Lach |
| GIVEN NAMES | Lucyna |
| FAMILY NAME | Lach |
| SIGNATURE | LACH L |
| AFFILIATIONS | McGill University |
| ORCID | 0000-0003-3542-1529 |
| VERIFIED | Yes |
| TOTAL WORKS | 15 |
| TOTAL CITATIONS | 39 |
| AUTHOR COUNT | 15 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2006 |
| LATEST PUBLICATION YEAR | 2025 |
| H-INDEX | 3 |
One size does not fit all
Introduction: Youth with neurodevelopmental disabilities (NDD) were disproportionately impacted by the COVID-19 pandemic due to health and socioeconomic factors and system level disruption of essential supports. To date, few studies have engaged directly with youth with NDD to understand how they were been impacted by the pandemic. The aim of this study was to uncover experiences of youth with NDD during the COVID-19 pandemic. Methods: Purposive …
Barriers to, and facilitators of, education for children with disabilities worldwide
Background: Inclusionary ideals regarding the education of children with disabilities (CWD) are articulated in various international human rights treaties and instruments such as the United Nations Convention on the Rights (2006), the Salamanca Statement (1994), and the 2030 agenda of the UN's Sustainable Development Goals (SDGs). In the latter, the fourth goal explicitly focuses on the removal of barriers to education and supporting access to qu…
The consequences of "benevolent" colonial powers and structural inequities in the implementation of Jordan's Principle in Manitoba, Canada
Jordan's Principle is a legal requirement for the Canadian government to address gaps in services for First Nations children and ensure timely services that meet their needs and best interests. This article synthesizes and discusses some of the key research findings described in a report on the implementation of Jordan's Principle in Manitoba, produced by a team of academic researchers in partnership with the Assembly of Manitoba Chiefs. Findings…
Measuring family outcomes in parenting programs for children with neurodisabilities
Background Parenting programs for families of children with neurodisabilities are recommended as standard care because they often target child behavior problems that are tied to both child and parent well-being. Despite the family environment being the context in which skills learned through parenting programs are implemented, study outcomes typically focus on child and parent factors without consistently examining the family unit.Aims To identif…
Lifespan Navigation-Building Framework for Children/Youth With Neurodisability and Their Families
This study served to conceptualize neurodisability (ND) navigation-building. Capacity-building toward wide-reaching ND navigation or help-seeking service lacks empirical evidence. Researchers widely agree that a system-wide framework is absent. While research emphasizes service-level findings, other jurisdiction- and policy-level insights are lacking. Using Collective Community Impact and Participatory Action Research, government and nongovernmen…
Mapping of Financial Support Programs for Children With Neurodisabilities Across Canada
A cross-jurisdictional pan-Canadian environmental scan was conducted to identify provincial, territorial, and federal financial supports available to families with children living with neurodisabilities. In partnership with the organization Childhood Disability LINK, flowchart-styled pathway documents were developed for each financial support identified, mapping out the processes required to access each support. A critical analysis was completed …
Changes in Caregiver Health in the Years Surrounding the Birth of a Child With Health Problems
BACKGROUND: Caregivers of children with health problems (CHPs; usually mothers) experience more physical and psychological health problems than those of children without health problems (non-CHPs). Primarily cross-sectional and survey-driven, this literature has not yet explored whether these health differences existed before the birth of the CHPs, or are exacerbated postbirth. METHODS: Using linked administrative health data on all mother-child …
Parenting for the promotion of adolescent mental health
A scoping review of the literature on parenting programmes that target the promotion of adolescent mental health was conducted to examine the quality of the studies and unique content of programmes for parents from ethnoculturally diverse communities. PsycINFO and Web of Science were searched in April, 2011 (for all publications prior to that date) and again in August, 2015 (for publications from April, 2011 to August, 2015) using specific keywor…
Health-related quality of life in the aftermath of child maltreatment
Life Decisions of Taiwanese Women Who Care for a Sibling With Cerebral Palsy
We used a phenomenological method to examine how the caregiving experiences of Taiwanese women who care for a sibling with cerebral palsy (CP) influence their life decisions. In-depth qualitative interviews were conducted with six adult women, each of whom self-identified as being the sister most involved in caring for a sibling with CP. Themes emerging from caregivers' experiences were caring through interpretation, caring through protection, an…
Changes Over Time in the Health of Caregivers of Children With Health Problems
Objectives. We used Canadian population-based data to examine changes in the health of caregivers of children with complex health problems compared with caregivers of healthy children over a 10-year time period. Methods. The National Longitudinal Survey of Children and Youth collected data biennially from 9401 children and their caregivers in 6 waves from 1994–1995 to 2004–2005. We conducted growth-curve analyses of these data to model self-repor…
Contrasting Internet and Face-to-Face Focus Groups for Children with Chronic Health Conditions
In this study the authors examined Internet-mediated qualitative data collection methods among a sample of children with chronic health conditions. Specifically, focus groups via Internet technology were contrasted to traditional face-to-face focus groups. Internet focus groups consisted of asynchronous text-based chat rooms lasting a total of one week in duration. Participants comprised 23 children with cerebral palsy, spina bifida, or cystic fi…
Quality of life from the perspective of adolescents with cerebral palsy
Health Among Caregivers of Children With Health Problems
Objectives. We used population-based data to evaluate whether caring for a child with health problems had implications for caregiver health after we controlled for relevant covariates. Methods. We used data on 9401 children and their caregivers from a population-based Canadian study. We performed analyses to compare 3633 healthy children with 2485 children with health problems. Caregiver health outcomes included chronic conditions, activity limit…
Processes of Metastudy
Metastudy introduces a systematically aggregated interpretive portrayal of a body of literature, based on saturation and the synthesis of findings. In this metastudy, the authors examined qualitative studies addressing psychosocial adaptation to childhood chronic health conditions, published over a 30-year period (1970-2000). They describe metastudy processes, including study identification, strategies for study search and retrieval, adjudication…
Contrasting Internet and Face-to-Face Focus Groups for Children with Chronic Health Conditions
In this study the authors examined Internet-mediated qualitative data collection methods among a sample of children with chronic health conditions. Specifically, focus groups via Internet technology were contrasted to traditional face-to-face focus groups. Internet focus groups consisted of asynchronous text-based chat rooms lasting a total of one week in duration. Participants comprised 23 children with cerebral palsy, spina bifida, or cystic fi…
Health Among Caregivers of Children With Health Problems
Objectives. We used population-based data to evaluate whether caring for a child with health problems had implications for caregiver health after we controlled for relevant covariates. Methods. We used data on 9401 children and their caregivers from a population-based Canadian study. We performed analyses to compare 3633 healthy children with 2485 children with health problems. Caregiver health outcomes included chronic conditions, activity limit…
Changes Over Time in the Health of Caregivers of Children With Health Problems
Objectives. We used Canadian population-based data to examine changes in the health of caregivers of children with complex health problems compared with caregivers of healthy children over a 10-year time period. Methods. The National Longitudinal Survey of Children and Youth collected data biennially from 9401 children and their caregivers in 6 waves from 1994–1995 to 2004–2005. We conducted growth-curve analyses of these data to model self-repor…
The consequences of "benevolent" colonial powers and structural inequities in the implementation of Jordan's Principle in Manitoba, Canada
Jordan's Principle is a legal requirement for the Canadian government to address gaps in services for First Nations children and ensure timely services that meet their needs and best interests. This article synthesizes and discusses some of the key research findings described in a report on the implementation of Jordan's Principle in Manitoba, produced by a team of academic researchers in partnership with the Assembly of Manitoba Chiefs. Findings…
Processes of Metastudy
Metastudy introduces a systematically aggregated interpretive portrayal of a body of literature, based on saturation and the synthesis of findings. In this metastudy, the authors examined qualitative studies addressing psychosocial adaptation to childhood chronic health conditions, published over a 30-year period (1970-2000). They describe metastudy processes, including study identification, strategies for study search and retrieval, adjudication…
Processes of Metastudy
Metastudy introduces a systematically aggregated interpretive portrayal of a body of literature, based on saturation and the synthesis of findings. In this metastudy, the authors examined qualitative studies addressing psychosocial adaptation to childhood chronic health conditions, published over a 30-year period (1970-2000). They describe metastudy processes, including study identification, strategies for study search and retrieval, adjudication…
Quality of life from the perspective of adolescents with cerebral palsy
Health Among Caregivers of Children With Health Problems
Objectives. We used population-based data to evaluate whether caring for a child with health problems had implications for caregiver health after we controlled for relevant covariates. Methods. We used data on 9401 children and their caregivers from a population-based Canadian study. We performed analyses to compare 3633 healthy children with 2485 children with health problems. Caregiver health outcomes included chronic conditions, activity limit…
Contrasting Internet and Face-to-Face Focus Groups for Children with Chronic Health Conditions
In this study the authors examined Internet-mediated qualitative data collection methods among a sample of children with chronic health conditions. Specifically, focus groups via Internet technology were contrasted to traditional face-to-face focus groups. Internet focus groups consisted of asynchronous text-based chat rooms lasting a total of one week in duration. Participants comprised 23 children with cerebral palsy, spina bifida, or cystic fi…
Changes Over Time in the Health of Caregivers of Children With Health Problems
Objectives. We used Canadian population-based data to examine changes in the health of caregivers of children with complex health problems compared with caregivers of healthy children over a 10-year time period. Methods. The National Longitudinal Survey of Children and Youth collected data biennially from 9401 children and their caregivers in 6 waves from 1994–1995 to 2004–2005. We conducted growth-curve analyses of these data to model self-repor…
Health-related quality of life in the aftermath of child maltreatment
Life Decisions of Taiwanese Women Who Care for a Sibling With Cerebral Palsy
We used a phenomenological method to examine how the caregiving experiences of Taiwanese women who care for a sibling with cerebral palsy (CP) influence their life decisions. In-depth qualitative interviews were conducted with six adult women, each of whom self-identified as being the sister most involved in caring for a sibling with CP. Themes emerging from caregivers' experiences were caring through interpretation, caring through protection, an…
Parenting for the promotion of adolescent mental health
A scoping review of the literature on parenting programmes that target the promotion of adolescent mental health was conducted to examine the quality of the studies and unique content of programmes for parents from ethnoculturally diverse communities. PsycINFO and Web of Science were searched in April, 2011 (for all publications prior to that date) and again in August, 2015 (for publications from April, 2011 to August, 2015) using specific keywor…
Changes in Caregiver Health in the Years Surrounding the Birth of a Child With Health Problems
BACKGROUND: Caregivers of children with health problems (CHPs; usually mothers) experience more physical and psychological health problems than those of children without health problems (non-CHPs). Primarily cross-sectional and survey-driven, this literature has not yet explored whether these health differences existed before the birth of the CHPs, or are exacerbated postbirth. METHODS: Using linked administrative health data on all mother-child …
Lifespan Navigation-Building Framework for Children/Youth With Neurodisability and Their Families
This study served to conceptualize neurodisability (ND) navigation-building. Capacity-building toward wide-reaching ND navigation or help-seeking service lacks empirical evidence. Researchers widely agree that a system-wide framework is absent. While research emphasizes service-level findings, other jurisdiction- and policy-level insights are lacking. Using Collective Community Impact and Participatory Action Research, government and nongovernmen…
Mapping of Financial Support Programs for Children With Neurodisabilities Across Canada
A cross-jurisdictional pan-Canadian environmental scan was conducted to identify provincial, territorial, and federal financial supports available to families with children living with neurodisabilities. In partnership with the organization Childhood Disability LINK, flowchart-styled pathway documents were developed for each financial support identified, mapping out the processes required to access each support. A critical analysis was completed …
Measuring family outcomes in parenting programs for children with neurodisabilities
Background Parenting programs for families of children with neurodisabilities are recommended as standard care because they often target child behavior problems that are tied to both child and parent well-being. Despite the family environment being the context in which skills learned through parenting programs are implemented, study outcomes typically focus on child and parent factors without consistently examining the family unit.Aims To identif…
Barriers to, and facilitators of, education for children with disabilities worldwide
Background: Inclusionary ideals regarding the education of children with disabilities (CWD) are articulated in various international human rights treaties and instruments such as the United Nations Convention on the Rights (2006), the Salamanca Statement (1994), and the 2030 agenda of the UN's Sustainable Development Goals (SDGs). In the latter, the fourth goal explicitly focuses on the removal of barriers to education and supporting access to qu…
The consequences of "benevolent" colonial powers and structural inequities in the implementation of Jordan's Principle in Manitoba, Canada
Jordan's Principle is a legal requirement for the Canadian government to address gaps in services for First Nations children and ensure timely services that meet their needs and best interests. This article synthesizes and discusses some of the key research findings described in a report on the implementation of Jordan's Principle in Manitoba, produced by a team of academic researchers in partnership with the Assembly of Manitoba Chiefs. Findings…
One size does not fit all
Introduction: Youth with neurodevelopmental disabilities (NDD) were disproportionately impacted by the COVID-19 pandemic due to health and socioeconomic factors and system level disruption of essential supports. To date, few studies have engaged directly with youth with NDD to understand how they were been impacted by the pandemic. The aim of this study was to uncover experiences of youth with NDD during the COVID-19 pandemic. Methods: Purposive …
Family and Disability Support Research (9 works) · Medicine (9 works) · Psychology (7 works) · Cerebral Palsy and Movement Disorders (6 works) · Qualitative research (6 works) · Childhood Cancer Survivors' Quality of Life (5 works) · Developmental psychology (5 works) · Political science (5 works) · Psychiatry (5 works) · Sociology (5 works)