Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

Changes Over Time in the Health of Caregivers of Children With Health Problems

Growth-Curve Findings From a 10-Year Canadian Population-Based Study

Bibliographic Data

ID11039638
AuthorsJamie C Brehaut (Jamie C. Brehaut is with the Ottawa Hospital Research Institute, Clinical Epidemiology Program, Ottawa, Ontario. Rochelle E. Garner and Dafna E. Kohen are with the Health Analysis Division, Statistics Canada, Ottawa. Anton R. Miller is with the Department of Pediatrics, University of British Columbia, Vancouver. Lucyna M. Lach is with the School of Social Work, McGill University, Montreal, Quebec. Anne F. Klassen and Peter L. Rosenbaum are with the Department of Pediatrics, Faculty of Health Sciences,...), Rochelle Garner (McGill University Health Centre), Rochelle E Garner (Jamie C. Brehaut is with the Ottawa Hospital Research Institute, Clinical Epidemiology Program, Ottawa, Ontario. Rochelle E. Garner and Dafna E. Kohen are with the Health Analysis Division, Statistics Canada, Ottawa. Anton R. Miller is with the Department of Pediatrics, University of British Columbia, Vancouver. Lucyna M. Lach is with the School of Social Work, McGill University, Montreal, Quebec. Anne F. Klassen and Peter L. Rosenbaum are with the Department of Pediatrics, Faculty of Health Sciences,...), Anton R Miller (0000-0002-6509-2589, Jamie C. Brehaut is with the Ottawa Hospital Research Institute, Clinical Epidemiology Program, Ottawa, Ontario. Rochelle E. Garner and Dafna E. Kohen are with the Health Analysis Division, Statistics Canada, Ottawa. Anton R. Miller is with the Department of Pediatrics, University of British Columbia, Vancouver. Lucyna M. Lach is with the School of Social Work, McGill University, Montreal, Quebec. Anne F. Klassen and Peter L. Rosenbaum are with the Department of Pediatrics, Faculty of Health Sciences,...), Lucyna M Lach (Jamie C. Brehaut is with the Ottawa Hospital Research Institute, Clinical Epidemiology Program, Ottawa, Ontario. Rochelle E. Garner and Dafna E. Kohen are with the Health Analysis Division, Statistics Canada, Ottawa. Anton R. Miller is with the Department of Pediatrics, University of British Columbia, Vancouver. Lucyna M. Lach is with the School of Social Work, McGill University, Montreal, Quebec. Anne F. Klassen and Peter L. Rosenbaum are with the Department of Pediatrics, Faculty of Health Sciences,...), Lucyna Lach (0000-0003-3542-1529, McGill University Health Centre), Anne F Klassen (0000-0003-4720-0096, Jamie C. Brehaut is with the Ottawa Hospital Research Institute, Clinical Epidemiology Program, Ottawa, Ontario. Rochelle E. Garner and Dafna E. Kohen are with the Health Analysis Division, Statistics Canada, Ottawa. Anton R. Miller is with the Department of Pediatrics, University of British Columbia, Vancouver. Lucyna M. Lach is with the School of Social Work, McGill University, Montreal, Quebec. Anne F. Klassen and Peter L. Rosenbaum are with the Department of Pediatrics, Faculty of Health Sciences,...), Peter L Rosenbaum (Jamie C. Brehaut is with the Ottawa Hospital Research Institute, Clinical Epidemiology Program, Ottawa, Ontario. Rochelle E. Garner and Dafna E. Kohen are with the Health Analysis Division, Statistics Canada, Ottawa. Anton R. Miller is with the Department of Pediatrics, University of British Columbia, Vancouver. Lucyna M. Lach is with the School of Social Work, McGill University, Montreal, Quebec. Anne F. Klassen and Peter L. Rosenbaum are with the Department of Pediatrics, Faculty of Health Sciences,...), Peter Rosenbaum (0000-0001-6751-5613, McGill University Health Centre), Dafna E Kohen (Jamie C. Brehaut is with the Ottawa Hospital Research Institute, Clinical Epidemiology Program, Ottawa, Ontario. Rochelle E. Garner and Dafna E. Kohen are with the Health Analysis Division, Statistics Canada, Ottawa. Anton R. Miller is with the Department of Pediatrics, University of British Columbia, Vancouver. Lucyna M. Lach is with the School of Social Work, McGill University, Montreal, Quebec. Anne F. Klassen and Peter L. Rosenbaum are with the Department of Pediatrics, Faculty of Health Sciences,...), Dafna Kohen (McGill University Health Centre)
Year2011
Volume101
Issue12
Pages2308-2316
Publication date2011-12-01
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueAmerican Journal of Public Health (JOURNAL)
Journal identifiersISSN: 0090-0036 • E-ISSN: 1541-0048
PublisherAmerican Public Health Association (PUBLISHER • US)
DOI10.2105/ajph.2011.300298
PMID22021302
PMCIDPMC3222435
OpenAlexW2024962757
LanguageEN
Citations received22
References cited43

Objectives. We used Canadian population-based data to examine changes in the health of caregivers of children with complex health problems compared with caregivers of healthy children over a 10-year time period. Methods. The National Longitudinal Survey of Children and Youth collected data biennially from 9401 children and their caregivers in 6 waves from 1994–1995 to 2004–2005. We conducted growth-curve analyses of these data to model self-reported general health and depressive symptoms for 4 groups of caregivers: caregivers of healthy children, and caregivers of children with 1, 2, or at least 3 of 4 conceptually distinct indicators of child health problems. We modeled covariates for children (age, gender, only-child status) and caregivers (age, gender, education, income, marital status). Results. After we controlled for covariates, caregiver health outcomes worsened incrementally with increasing complexity of child health problems. Change in self-reported general health and depressive symptoms over the 10-year period was consistent across all groups of caregivers. Conclusions. Poorer health among caregivers of children with health problems can persist for many years and is associated with complexity of child health problems. Attention to parental health should form a component of health care services for children with health problems

Environmental health · Health care · Longitudinal study · Marital status · Population · Childhood Cancer Survivors' Quality of Life · Demography · Family and Disability Support Research · Family Support in Illness · Medicine · Gerontology

  • Personality metatraits predict resilience among family caregivers responsible for a dependent youth’s chronic respiratory management

    Open Access•Sidai Dong, Thomas Elliott et al.•BMC Psychology•2022

  • The Comorbidity of Physical, Mental, and Developmental Conditions Associated with Childhood Adversity

    Open Access•Melissa A Bright, Caprice Knapp et al.•Maternal and Child Health Journal•2015

  • Quality of Life and Concerns in Parent Caregivers of Adult Children Diagnosed with Intellectual Disability

    Open Access•María Inmaculada Fernández‐Ávalos, María Inmaculada Fernández-Ávalos et al.•International Journal of…•2020

  • Healthy Parent Carers programme

    Open Access•Aleksandra Borek, Aleksandra J Borek et al.•BMC Public Health•2018

  • The Experience of Caring for a Medically Complex Child in the Neonatal Intensive Care Unit

    Open Access•Natascia Bertoncelli, Martina Buttera et al.•Children•2025

  • The Mental and Physical Health of Mothers of Children with Special Health Care Needs in the United States

    Open Access•Thomas K Hagerman, Gina McKernan et al.•Maternal and Child Health Journal•2022

  • Changes in Self-Reported Adult Health and Household Food Security With the 2021 Expanded Child Tax Credit Monthly Payments

    Open Access•Jordan M Rook, Cecile Yama et al.•JAMA Health Forum•2023

  • Family Needs Assessment of Patients with Cerebral Palsy Attending Two Hospitals in Accra, Ghana

    Open Access•Abena K Aduful, Faye Boamah-Mensah et al.•Children•2023

  • Changing Directions and Expanding Horizons

    Open Access•Monika Novak‐Pavlic, Peter Rosenbaum et al.•International Journal of…•2023

  • Tactics and Strategies of Family Adaptation among Parents Caring for Children and Youth with Developmental Disabilities

    Open Access•Elise J Matthews, Vivian Puplampu et al.•Global Qualitative Nursing Research•2021

  • Parenting in the Context of Children’s Chronic Pain

    Open Access•Jessica W Guite, Bob Russell et al.•Children•2018

  • Supporting Parent Caregivers of Children with Life-Limiting Illness

    Open Access•Kendra D Koch, Barbara L Jones•Children•2018

  • Child health services research with the people who know best

    Open Access•Elizabeth Chambers, A Cross et al.•Frontiers in Public Health•2026

  • Experiences of Parents as Caregivers for Children Diagnosed With Mild Intellectual Disability

    Open Access•Maheen Bint Rabbani, Sumbal Nawaz•SAGE Open•2026

  • Pushing the boundaries

    Kelly E Tenzek, Tahleen A Lattimer et al.•Journal of Applied Communication…•2024

  • A first glance into the black box of life satisfaction surrounding childbearing

    Open Access•A Aassve, Francesca Luppi et al.•Journal of Population Research•2021

  • Emotion‐oriented coping and parental competency

    Open Access•Man Yee Ho, Siya Liang•Child & Family Social Work•2021

  • What Are the Important Health and Well‐Being Outcome Dimensions for Parent Carers of Disabled Children? A Qualitative Study

    Open Access•Caomhán McGlinchey, Phillip Harniess et al.•Health Expectations•2025

  • What aspects of health and wellbeing are most important to parent carers of children with disabilities

    Open Access•Caomhán McGlinchey, Phillip Harniess et al.•Health Expectations•2024

  • Caregiver Burden in Caregivers of Children With Special Health Care Needs and Association With Chronic Pain

    Wendy Camelo Castillo, Oluwadamilola Onasanya et al.•Medical Care•2022

  • Changes in Caregiver Health in the Years Surrounding the Birth of a Child With Health Problems

    Jamie C Brehaut, Anne Guèvremont et al.•Medical Care•2019

  • Analysis of Support for Parents in Raising Children with Dyslexia

    Open Access•Athira Amira Abd Rauf, Maizatul Akmar Ismail et al.•Journal of Family Issues•2021

  • Gain in the Caregiving Experience

    B Josea Kramer•The Gerontologist•1997

  • Appraisal, coping, and social support as mediators of well-being in Black and White family caregivers of patients with Alzheimer's disease.

    William E Haley, David L Roth et al.•Journal of Consulting and…•1996

  • Negative and positive health effects of caring for a disabled spouse

    Scott R Beach, Richard Schulz et al.•Psychology and Aging•2000

  • Caregiving Behavior Is Associated With Decreased Mortality Risk

    Open Access•Stephanie L Brown, Dylan M Smith et al.•Psychological Science•2009

  • Caregiving as a Risk Factor for Mortality

    Richard Schulz, Scott R Beach•JAMA•1999

  • Agreement Between Questionnaire Data and Medical Records

    Siobán D Harlow, Martha S Linet•American Journal of Epidemiology•1989

  • Parent proxy-report of their children's health-related quality of life

    Open Access•James W Varni, Christine A Limbers et al.•Health and Quality of Life Outcomes•2007

  • Stress, appraisal, coping, and social support as predictors of adaptational outcome among dementia caregivers.

    William E Haley, Ellen G Levine et al.•Psychology and Aging•1987

  • Positive aspects of caregiving

    Open Access•Carole Cohen, Carole A Cohen et al.•International Journal of…•2002

  • Caregiving process and caregiver burden

    Open Access•Parminder Raina, Maureen O'Donnell et al.•BMC Pediatrics•2004

  • Identifying Children With Special Health Care Needs

    Open Access•Christina Bethell, Christina D Bethell et al.•Ambulatory Pediatrics•2002

  • The CES-D Scale

    Open Access•Lenore Sawyer Radloff•Applied Psychological Measurement•1977

  • Economic Costs of Caring for Children with Disabilities in Canada

    Peter Burton, Shelley Phipps•Canadian Public Policy•2009

  • Paths of psychological health

    Open Access•Constance J Jones, Norman Livson et al.•Journal of Research in Personality•2006

  • Health Among Caregivers of Children With Health Problems

    Jamie C Brehaut, Dafna E Kohen et al.•American Journal of Public Health•2009

  • Financial Well-Being of Young Children with Disabilities and Their Families

    Susan L Parish, Jennifer Cloud et al.•Social Work•2006

  • Use of Health Services by Chronically Ill and Disabled Children

    Kathleen Smyth-Staruch, Naomi Breslau et al.•Medical Care•1984

  • Measuring Population Health

    Open Access•Jacek A Kopec, J Ivan Williams et al.•Canadian Journal of Public Health•2000

Unique citing works22
Citations per year2
Citation span2015 - 2026 (12)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 22

Tools

Open DOISci-HubOpen Access
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae