Lotte Haverman

Biographic Data

ID	5541533
NAME	Lotte Haverman
GIVEN NAMES	Lotte
FAMILY NAME	Haverman
SIGNATURE	HAVERMAN L
AFFILIATIONS	Emma Kinderziekenhuis
ORCID	0000-0001-7849-0562
VERIFIED	Yes
TOTAL WORKS	32
TOTAL CITATIONS	0
AUTHOR COUNT	32
EDITOR COUNT	0
FIRST PUBLICATION YEAR	2013
LATEST PUBLICATION YEAR	2026
H-INDEX	0

Making sense of PROM outcomes: A mixed method study to optimize graphical visualization formats for children
Open AccessSelina Limmen, Maud M van Muilekom et al.ARTICLEQuality of Life Research2026
Graphs are often used to increase patient understanding of Patient Reported Outcome Measure (PROM) scores. We aimed to investigate which graph visualization options are best interpreted by children. We conducted a quantitative study to assess children’s interpretation accuracy and perceived clarity of different PROM visualizations graphs through a test, and a qualitative study using ‘think aloud’ interviews about the same visualizations to explor…
Assessing quality of life in displaced children on Lesvos using PROMIS: A mixed methods study
Open AccessHanaâ Benjeddi, Kirsten de Groote et al.ARTICLEQuality of Life Research2026
Displaced children report high levels of anger, anxiety, pain behavior, and depressive symptoms, a prolonged stay in the camps even worsens these outcomes. This underscores the need for tailored interventions to enhance the overall well-being of this vulnerable population
EMpower Parents: Effectiveness of EMDR treatment for parental PTSD related to a child’s medical condition in a randomized controlled trial
Open AccessEsmée Maria Vesseur, Carlijn de Roos et al.ARTICLEBMC Psychology2025
clinicaltrials.gov (NCT06776744), registered on January 14th, 2025. https://clinicaltrials.gov/study/NCT06776744
Reducing patient burden of PROMs in healthcare through advanced computerized adaptive testing stopping rules
Open AccessMichiel A J Luijten, Benjamin D Schalet et al.ARTICLEQuality of Life Research2025
We conclude that the current approach allows us to determine an optimal SER threshold that improves measurement efficiency, especially when floor/ceiling effects are present in the target population. The threshold values will vary depending on the θ distribution of the target population and the IRT model parameters
Truth and dare: Patients dare to tell the truth when using PROMs in clinical practice
Open AccessLotte Haverman, Michiel A J Luijten et al.ARTICLEQuality of Life Research2024
This study does not support the hypothesis that patients systematically bias their PROM responses if they know that clinicians will see their results. These findings support using PROMs in clinical practice as a valid mechanism to promote patient-centered care
Development of a standard set of PROs and generic PROMs for Dutch medical specialist care: Recommendations from the Outcome-Based Healthcare Program Working Group Generic PROMs
Open AccessMartijn A H Oude Voshaar, Caroline B Terwee et al.ARTICLEQuality of Life Research2023
We developed a consensus-based standard set of Generic PROMs and a set of recommendations to facilitate healthcare system wide implementation across Dutch medical specialist care
Including the voice of paediatric patients: Cocreation of an engagement game
Open AccessLorynn Teela, Lieke E Verhagen et al.ARTICLEHealth Expectations2022
BACKGROUND: Engaging patients in health care, research and policy is essential to improving patient-important health outcomes and the quality of care. Although the importance of patient engagement is increasingly acknowledged, clinicians and researchers still find it difficult to engage patients, especially paediatric patients. To facilitate the engagement of children and adolescents in health care, the aim of this project is to develop an engage…
Health-related quality of life of perinatally HIV-infected young people: A longitudinal study
Open AccessAnne Marleen ter Haar, Malon Van den Hof et al.ARTICLEAIDS Care2022
Young people perinatally infected with HIV (pHIV) are at risk of a lowered health-related quality of life (HRQOL). Previous evaluation of the NeurOlogical, VIsual and Cognitive performance in HIV-infected Children (NOVICE)-cohort showed no difference in HRQOL between pHIV and matched HIV-uninfected controls (HIV-), yet a higher percentage of pHIV had impaired HRQOL. The aim of this study is to compare the change over time in HRQOL of pHIV to HIV-…
The Use of Patient-Reported Outcome Measures in Daily Clinical Practice of a Pediatric Nephrology Department
Open AccessFloor Veltkamp, Lorynn Teela et al.ARTICLEInternational Journal of…2022
(1) Background: Health-related quality of life (HRQoL) is lower in patients with chronic kidney disease (CKD) compared to the general population. In 2011, the KLIK PROM portal was implemented in the Emma Children's Hospital to monitor and discuss HRQoL in daily care. This study describes and assesses the implementation and use of the KLIK PROM portal in the pediatric nephrology department. (2) Methods: CKD patients (self-report, if 8-18 years of …
Perceived stress, family impact, and changes in physical and social daily life activities of children with chronic somatic conditions during the Covid-19 pandemic
Open AccessAnne Krijger, Karolijn Dulfer et al.ARTICLEBMC Public Health2022
The impact of COVID-19 on children with CSC and their parents differed from those in the general population. Addressing the collateral damage of COVID-19 measures in children and their families may give direction to policy and potentially prevent lifelong impact
Linking the RCADS-25 to the PROMIS® pediatric item banks Anxiety and Depressive Symptoms in a general Dutch population sample
Open AccessLeonie Klaufus, Xiaodan Tang et al.ARTICLEQuality of Life Research2022
Preconception expanded carrier screening: A focus group study with relatives of mucopolysaccharidosis type III patients and the general population
Open AccessThirsa Conijn, Ivy van Dijke et al.ARTICLEJournal of Community Genetics2021
Preconception expanded carrier screening (ECS) enables prospective parents to assess their risk of having a child with an autosomal recessive disorder. Knowledge on motivations, feelings, and considerations people have towards the offer and use of ECS is limited. To enrich the public and professional discussion on ECS implementation, this study explored the perspectives towards various aspects of ECS in seven focus groups compromising first- and …
Mental and Social Health of Children and Adolescents With Pre-existing Mental or Somatic Problems During the Covid-19 Pandemic Lockdown
Open AccessJosjan Zijlmans, Lorynn Teela et al.ARTICLEFrontiers in Psychiatry2021
Background: The COVID-19 lockdown increases psychological problems in children and adolescents from the general population. Here we investigate the mental and social health during the COVID-19 lockdown in children and adolescents with pre-existing mental or somatic problems. Methods: We included participants (8-18 years) from a psychiatric ( N = 249) and pediatric ( N = 90) sample, and compared them to a general population sample ( N = 844). Meas…
Psychometric properties of the Patient-Reported Outcomes Measurement Information System (PROMIS®) pediatric item bank peer relationships in the Dutch general population
Open AccessMichiel A J Luijten, Raphaële R L van Litsenburg et al.ARTICLEQuality of Life Research2021
The pediatric PROMIS Peer Relationships item bank was successfully validated for use within the Dutch population and reference data are now available
The impact of lockdown during the Covid-19 pandemic on mental and social health of children and adolescents
Open AccessMichiel A J Luijten, Maud M van Muilekom et al.ARTICLEQuality of Life Research2021
This study showed that governmental regulations regarding lockdown pose a serious mental/social health threat on children/adolescents that should be brought to the forefront of political decision-making and mental healthcare policy, intervention, and prevention
Patients’ and parents’ perspective on the implementation of Patient Reported Outcome Measures in pediatric clinical practice using the KLIK PROM portal
Open AccessMaud M van Muilekom, Lorynn Teela et al.ARTICLEQuality of Life Research2021
Patients and parents are generally satisfied with KLIK, however, points of improvement were mentioned. These are currently being addressed by e.g., upgrading the KLIK website, implementing PROMIS item banks in KLIK to reduce irrelevancy and repetitiveness of PROMs, and implementation strategies to improve the discussion-rate. In this way, implementation of the KLIK PROM portal can be further optimized, with the ultimate goal to improve quality of…
Patient-reported outcome measures in pediatric solid organ transplantation: Exploring stakeholder perspectives on clinical implementation through qualitative description
Open AccessSamantha J Anthony, Katarina Young et al.ARTICLEQuality of Life Research2021
This study contributes to current research that supports the use of PROMs in clinical pediatric care and guides their effective implementation into practice. Future directions include the development, usability testing, and evaluation of a proposed electronic PROM platform that will inform future research initiatives
Psychometric properties of the Dutch-Flemish PROMIS® pediatric item banks Anxiety and Depressive Symptoms in a general population
Open AccessLeonie Klaufus, Michiel A J Luijten et al.ARTICLEQuality of Life Research2021
Matching Psychosocial Support Needs of Parents of a Child with a Chronic Illness to a Feasible Intervention
Open AccessMiriam Douma, Charlotte P Bouman et al.ARTICLEMaternal and Child Health Journal2020
Parents have a need for psychosocial support focusing on different themes. Professionals should explain and demonstrate an online intervention to parents. Based on these results, Op Koers Online for parents was developed. An RCT to assess feasibility and effectiveness of the intervention is currently running
A retrospective assessment of the KLIK PROM portal implementation using the Consolidated Framework for Implementation Research (CFIR)
Open AccessHedy A van Oers, Lorynn Teela et al.ARTICLEQuality of Life Research2020
Using an implementation science framework, e.g., CFIR, is recommended for groups starting to use PROMs in clinical care as it offers a structured approach and provides insight into possible enablers and barriers
Clinicians’ perspective on the implemented KLIK PROM portal in clinical practice
Open AccessLorynn Teela, Maud M van Muilekom et al.ARTICLEQuality of Life Research2020
Participating clinicians are generally satisfied with KLIK. Improvements to the KLIK PROM portal are now realized based on the mentioned disadvantages (e.g., shorten PROM completion by use of PROMIS and integrating KLIK with Electronic Health Records)
Using an implementation science approach to implement and evaluate patient-reported outcome measures (PROM) initiatives in routine care settings
Open AccessAngela M Stover, Lotte Haverman et al.ARTICLEQuality of Life Research2020
Multilevel IS frameworks are necessary for PROM/PREM implementation given the complexity. In cross-study comparisons, barriers to PROM/PREM implementation were consistent across patient populations and care settings, but enablers were context specific, suggesting the need for tailored implementation strategies based on clinic resources. Theoretically guided studies are needed to clarify how, why, and in what circumstances IS principles lead to su…
Options for the Interpretation of and Recommendations for Acting on Different PROMs in Daily Clinical Practice Using KLIK
Lotte Haverman, Hedy A van Oers et al.ARTICLEMedical Care2019References: 28
INTRODUCTION: This paper describes the different ways in which information is being fed back to health care providers (HCPs) using the Dutch evidence-based KLIK Patient-Reported Outcome Measures (PROMs) portal (www.hetklikt.nu). KLIK was initially developed for children with a chronic illness and their parents, and recently expanded for use in adult health care. Patients complete online PROMs at home about their health-related quality of life (HR…
Children on dialysis as well as renal transplanted children report severely impaired health-related quality of life
Open AccessAnouck Splinter, Lidwien Tjaden et al.ARTICLEQuality of Life Research2018
Dialysis and renal transplantation both have a severe impact on the HRQoL of children with ESRD. Physicians should be aware of this continuous burden. Furthermore, to develop tailored interventions for children with ESRD, qualitative studies are needed to gain more insight in the determinants of HRQoL in the different treatment modalities
Health-related quality of life, developmental milestones, and self-esteem in young adults with bleeding disorders
Open AccessPerrine F Limperg, Lotte Haverman et al.ARTICLEQuality of Life Research2017
This study demonstrates some impairments in HRQOL and self-esteem in YA men with bleeding disorders. By monitoring HRQOL, problems can be identified early, especially with regard to their physical and professional/school functioning