Jany Rademakers
Biographic Data
| ID | 5874472 |
|---|---|
| NAME | Jany Rademakers |
| GIVEN NAMES | Jany |
| FAMILY NAME | Rademakers |
| SIGNATURE | RADEMAKERS J |
| AFFILIATIONS | Netherlands Institute for Health Services Research |
| ORCID | 0000-0003-2742-4543 |
| VERIFIED | Yes |
| TOTAL WORKS | 24 |
| TOTAL CITATIONS | 10 |
| AUTHOR COUNT | 24 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 1996 |
| LATEST PUBLICATION YEAR | 2025 |
| H-INDEX | 2 |
Evaluating the Involvement of People With Cancer and Informal Caregivers in the Development Process of a New Set of Quality of Life Questionnaires
INTRODUCTION: There is a general need for sharing practical examples of Patient and Public Involvement (PPI) within the research field to learn from and inspire. The aim of this article is to describe our process evaluation of PPI within the development process of the EUonQoL-Kit, a new set of quality of life questionnaires aimed at people with (past experience of) cancer. METHODS: Five co-researchers (people with cancer and informal caregivers) …
Preferences Regarding Self-Management Intervention Outcomes of Dutch Chronically Ill Patients With Limited Health Literacy
Background: For many chronically ill patients self-management of their disease is difficult. This may be especially true for people with limited health literacy as they are faced with additional challenges in the day-to-day management of their disease. Research has shown that self-management support is most effective when tailored to the needs and preferences of patients. Therefore, this study explores the preferences regarding self-management ou…
Measuring health insurance literacy in the Netherlands – First results of the Hilm-NL questionnaire
BACKGROUND: There are several indications that citizens in the Netherlands struggle to make critical, well-considered decisions about which insurance policy best fits their needs and preferences. This can lead to citizens being sub-optimally insured, facing unexpected costs or suffering inadequate coverage. This study aims to examine how health insurance literacy (HIL) is distributed among citizens in the Netherlands; and to find out whether ther…
Evaluating meaningful impact of Patient and Public Involvement
INTRODUCTION: Although Patient and Public Involvement (PPI) of young people with a chronic condition (YPCC) is receiving increasing attention, evidence of impact is lacking. This is partly due to inadequate understanding of what meaningful impact entails. This study aimed to gain an in-depth understanding of researchers' and YPCC's perspectives on meaningful impact. METHODS: We conducted a Q methodology study in a group of 26 researchers and a gr…
Children’s Health Literacy in Relation to Their BMI z-Score, Food Intake, and Physical Activity
Overweight and obesity in children are an increasing public health problem. Health literacy (HL) is a determinant of obesity and body mass index (BMI) rates in adults, but few studies have addressed the impact of children's own HL on their weight and lifestyle. In this study, we aim to assess the impact of Dutch children's HL on (1) their BMI z-score, (2) dietary behaviour, and (3) the amount of physical activity (PA) they engage in. A sample of …
Measuring and Exploring Children’s Health Literacy in The Netherlands
As health literacy (HL) is hypothesized to develop throughout life, enhancement during childhood will improve HL and health during life. There are few valid, age-appropriate tools to assess children's HL. The German-language European Health Literacy Survey Questionnaire Adapted for Children (HLS-Child-Q15-DE) is a self-report questionnaire adapted from the adult European Health Literacy Survey Questionnaire. This study aims to translate the HLS-C…
Patient and Public Involvement of young people with a chronic condition in projects in health and social care
Towards a comprehensive, person-centred assessment of health literacy
The Dutch version of the HLQ is a robust and reliable instrument that measures nine different domains of health literacy. The questionnaire was tested in a sample of chronically ill patients, and should be further tested in the general population as well as in different disease groups. The HLQ is a major addition to currently available instruments in the Netherlands, since it measures health literacy from a multi-dimensional perspective and build…
People with activity limitations’ perceptions of their health condition and their relationships with social participation and experienced autonomy
Background People with activity limitations participate less in society, which may be due to both societal barriers and personal factors. The aim of this study was to examine the role of one specific personal factor, namely the perceptions that people have of their health condition. We hypothesized that perceptions of more personal control and less negative consequences increase the likelihood of participation in social activities and of experien…
Beyond Reading and Understanding
Many health literacy interventions have a limited focus on functional/cognitive skills. In psychosocial models, the capacity to act however is seen as a major driver of behavioural change. This aspect is often lacking in health literacy concepts. In this study, we examine the impact of both aspects of health literacy (functional/cognitive and capacity to act) on specific healthcare outcomes (healthcare use, experiences with patient-centered care,…
Health literacy
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)
Why patients may not exercise their choice when referred for hospital care. An exploratory study based on interviews with patients
BACKGROUND: Various north-western European health-care systems encourage patients to make an active choice of health-care provider. This study explores, qualitatively, patients' hospital selection processes and provides insight into the reasons why patients do or do not make active choices. METHODS: Semi-structured individual interviews were conducted with 142 patients in two departments of three Dutch hospitals. Interviews were recorded, transcr…
The Net Promoter Score – an asset to patient experience surveys
BACKGROUND: In the search for more straightforward ways of summarizing patient experiences and satisfaction, there is growing interest in the Net Promoter Score (NPS): How likely is it that you would recommend our company to a friend or colleague? OBJECTIVE: To assess what the NPS adds to patient experience surveys. The NPS was tested against three other constructs already used in current surveys to summarize patient experiences and satisfaction:…
Participation of chronic patients in medical consultations
AIMS: Chronic patients are increasingly expected to participate actively in medical consultations. This study examined (i) patients' perceived efficacy and barriers to participation in consultations, (ii) patients' interest in communication support and (iii) correlates of perceived efficacy and barriers, with an emphasis on differences across providers' disciplines. METHODS: A representative panel of chronic patients (n = 1314) filled out the sho…
The Relationship Between Health, Education, and Health Literacy
Health literacy has been put forward as a potential mechanism explaining the well-documented relationship between education and health. However, little empirical research has been undertaken to explore this hypothesis. The present study aims to study whether health literacy could be a pathway by which level of education affects health status. Health literacy was measured by the Health Activities and Literacy Scale, using data from a subsample of …
Health literacy of Dutch adults
Perceived difficulties with health information vary between competences and domains of health. Health literacy competences are associated with indicators of socio-economic position and with the domain in which health information is provided
Consumers’ interpretation and use of comparative information on the quality of health care
Background Public reports about health‐care quality have not been effectively used by consumers thus far. A possible explanation is inadequate presentation of the information. Objective To assess which presentation features contribute to consumers’ correct interpretation and effective use of comparative health‐care quality information and to examine the influence of consumer characteristics. Design Fictitious Consumer Quality Index (CQI) data on …
Measuring patient activation in the Netherlands
The PAM-13 Dutch is a reliable instrument to measure patient activation. More research is needed into the validity of the Patient Activation Measure, especially with respect to a more comprehensive measure of Health literacy
The Psychological Measurement of Childhood Sexual Development in Western Societies
Children can display sexual behavior or have sexual experiences. Different psychological research methods are available for studying these kinds of behaviors and feelings, such as interviewing or observing children (direct methods), asking adolescents or adults to retrospectively report their childhood memories or using intermediaries to observe children (indirect methods). Each of these methods has its own advantages and limitations. Based on a …
Emerging Adolescent Sexuality
The United States has the highest rates of teen pregnancy, births, and abortions of all industrialized countries. On the contrary, The Netherlands has the lowest rates. Using qualitative and quantitative methods, this retrospective study investigated American and Dutch college women's sexual behavior, attitudes, and comfort to better understand the factors that lead to the disparity between these two countries. Survey results revealed that the Am…
Do patient experiences on priority aspects of health care predict their global rating of quality of care? A study in five patient groups
Background Patient‐given global ratings are frequently interpreted as summary measures of the patient perspective, with limited understanding of what these ratings summarize. Global ratings may be determined by patient experiences on priority aspects of care. Objectives (i) identify patient priorities regarding elements of care for breast cancer, hip‐ or knee surgery, cataract surgery, rheumatoid arthritis and diabetes, (ii) establish whether exp…
How do healthcare consumers process and evaluate comparative healthcare information? A qualitative study using cognitive interviews
Several barriers to an effective use of comparative healthcare information were identified, such as too much information and the ambiguity of terms presented on websites. Particularly important for future research is the question of how comparative healthcare information can be integrated with alternative information, such as patient reviews on the Internet. Furthermore, the readability of quality of care concepts is an issue that needs further a…
Reconstructing Hymens or Constructing Sexual Inequality? Service Provision to Islamic Young Women Coping with the Demand to be a Virgin
In Islamic culture, there is an imperative demand that women should be virgins on their wedding night. Service providers in The Netherlands are increasingly confronted by Islamic young women who find themselves in serious difficulties because they are no longer virgins, and are about to enter a forced or arranged marriage. These young women report a diversity of problems such as loneliness, social isolation, depression, despair, suicidal feelings…
Lessons from the Dutch Abortion Experience
Not only does the Netherlands have the lowest induced abortion rate in the world, but Dutch youth have the lowest rates of both adolescent pregnancy and abortion. This record is attributed to a general stance of openness and acceptance of sexuality as a healthy part of life that emerged in 1965-75 in response to recognition of the public health impact of unwanted pregnancy. Modern contraceptives (excluding condoms) are provided at no charge by th…
The Psychological Measurement of Childhood Sexual Development in Western Societies
Children can display sexual behavior or have sexual experiences. Different psychological research methods are available for studying these kinds of behaviors and feelings, such as interviewing or observing children (direct methods), asking adolescents or adults to retrospectively report their childhood memories or using intermediaries to observe children (indirect methods). Each of these methods has its own advantages and limitations. Based on a …
Lessons from the Dutch Abortion Experience
Not only does the Netherlands have the lowest induced abortion rate in the world, but Dutch youth have the lowest rates of both adolescent pregnancy and abortion. This record is attributed to a general stance of openness and acceptance of sexuality as a healthy part of life that emerged in 1965-75 in response to recognition of the public health impact of unwanted pregnancy. Modern contraceptives (excluding condoms) are provided at no charge by th…
Health literacy
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)
Reconstructing Hymens or Constructing Sexual Inequality? Service Provision to Islamic Young Women Coping with the Demand to be a Virgin
In Islamic culture, there is an imperative demand that women should be virgins on their wedding night. Service providers in The Netherlands are increasingly confronted by Islamic young women who find themselves in serious difficulties because they are no longer virgins, and are about to enter a forced or arranged marriage. These young women report a diversity of problems such as loneliness, social isolation, depression, despair, suicidal feelings…
Lessons from the Dutch Abortion Experience
Not only does the Netherlands have the lowest induced abortion rate in the world, but Dutch youth have the lowest rates of both adolescent pregnancy and abortion. This record is attributed to a general stance of openness and acceptance of sexuality as a healthy part of life that emerged in 1965-75 in response to recognition of the public health impact of unwanted pregnancy. Modern contraceptives (excluding condoms) are provided at no charge by th…
How do healthcare consumers process and evaluate comparative healthcare information? A qualitative study using cognitive interviews
Several barriers to an effective use of comparative healthcare information were identified, such as too much information and the ambiguity of terms presented on websites. Particularly important for future research is the question of how comparative healthcare information can be integrated with alternative information, such as patient reviews on the Internet. Furthermore, the readability of quality of care concepts is an issue that needs further a…
Emerging Adolescent Sexuality
The United States has the highest rates of teen pregnancy, births, and abortions of all industrialized countries. On the contrary, The Netherlands has the lowest rates. Using qualitative and quantitative methods, this retrospective study investigated American and Dutch college women's sexual behavior, attitudes, and comfort to better understand the factors that lead to the disparity between these two countries. Survey results revealed that the Am…
Do patient experiences on priority aspects of health care predict their global rating of quality of care? A study in five patient groups
Background Patient‐given global ratings are frequently interpreted as summary measures of the patient perspective, with limited understanding of what these ratings summarize. Global ratings may be determined by patient experiences on priority aspects of care. Objectives (i) identify patient priorities regarding elements of care for breast cancer, hip‐ or knee surgery, cataract surgery, rheumatoid arthritis and diabetes, (ii) establish whether exp…
The Psychological Measurement of Childhood Sexual Development in Western Societies
Children can display sexual behavior or have sexual experiences. Different psychological research methods are available for studying these kinds of behaviors and feelings, such as interviewing or observing children (direct methods), asking adolescents or adults to retrospectively report their childhood memories or using intermediaries to observe children (indirect methods). Each of these methods has its own advantages and limitations. Based on a …
Consumers’ interpretation and use of comparative information on the quality of health care
Background Public reports about health‐care quality have not been effectively used by consumers thus far. A possible explanation is inadequate presentation of the information. Objective To assess which presentation features contribute to consumers’ correct interpretation and effective use of comparative health‐care quality information and to examine the influence of consumer characteristics. Design Fictitious Consumer Quality Index (CQI) data on …
Measuring patient activation in the Netherlands
The PAM-13 Dutch is a reliable instrument to measure patient activation. More research is needed into the validity of the Patient Activation Measure, especially with respect to a more comprehensive measure of Health literacy
The Relationship Between Health, Education, and Health Literacy
Health literacy has been put forward as a potential mechanism explaining the well-documented relationship between education and health. However, little empirical research has been undertaken to explore this hypothesis. The present study aims to study whether health literacy could be a pathway by which level of education affects health status. Health literacy was measured by the Health Activities and Literacy Scale, using data from a subsample of …
Health literacy of Dutch adults
Perceived difficulties with health information vary between competences and domains of health. Health literacy competences are associated with indicators of socio-economic position and with the domain in which health information is provided
The Net Promoter Score – an asset to patient experience surveys
BACKGROUND: In the search for more straightforward ways of summarizing patient experiences and satisfaction, there is growing interest in the Net Promoter Score (NPS): How likely is it that you would recommend our company to a friend or colleague? OBJECTIVE: To assess what the NPS adds to patient experience surveys. The NPS was tested against three other constructs already used in current surveys to summarize patient experiences and satisfaction:…
Participation of chronic patients in medical consultations
AIMS: Chronic patients are increasingly expected to participate actively in medical consultations. This study examined (i) patients' perceived efficacy and barriers to participation in consultations, (ii) patients' interest in communication support and (iii) correlates of perceived efficacy and barriers, with an emphasis on differences across providers' disciplines. METHODS: A representative panel of chronic patients (n = 1314) filled out the sho…
Why patients may not exercise their choice when referred for hospital care. An exploratory study based on interviews with patients
BACKGROUND: Various north-western European health-care systems encourage patients to make an active choice of health-care provider. This study explores, qualitatively, patients' hospital selection processes and provides insight into the reasons why patients do or do not make active choices. METHODS: Semi-structured individual interviews were conducted with 142 patients in two departments of three Dutch hospitals. Interviews were recorded, transcr…
Beyond Reading and Understanding
Many health literacy interventions have a limited focus on functional/cognitive skills. In psychosocial models, the capacity to act however is seen as a major driver of behavioural change. This aspect is often lacking in health literacy concepts. In this study, we examine the impact of both aspects of health literacy (functional/cognitive and capacity to act) on specific healthcare outcomes (healthcare use, experiences with patient-centered care,…
Health literacy
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)
People with activity limitations’ perceptions of their health condition and their relationships with social participation and experienced autonomy
Background People with activity limitations participate less in society, which may be due to both societal barriers and personal factors. The aim of this study was to examine the role of one specific personal factor, namely the perceptions that people have of their health condition. We hypothesized that perceptions of more personal control and less negative consequences increase the likelihood of participation in social activities and of experien…
Patient and Public Involvement of young people with a chronic condition in projects in health and social care
Towards a comprehensive, person-centred assessment of health literacy
The Dutch version of the HLQ is a robust and reliable instrument that measures nine different domains of health literacy. The questionnaire was tested in a sample of chronically ill patients, and should be further tested in the general population as well as in different disease groups. The HLQ is a major addition to currently available instruments in the Netherlands, since it measures health literacy from a multi-dimensional perspective and build…
Measuring and Exploring Children’s Health Literacy in The Netherlands
As health literacy (HL) is hypothesized to develop throughout life, enhancement during childhood will improve HL and health during life. There are few valid, age-appropriate tools to assess children's HL. The German-language European Health Literacy Survey Questionnaire Adapted for Children (HLS-Child-Q15-DE) is a self-report questionnaire adapted from the adult European Health Literacy Survey Questionnaire. This study aims to translate the HLS-C…
Preferences Regarding Self-Management Intervention Outcomes of Dutch Chronically Ill Patients With Limited Health Literacy
Background: For many chronically ill patients self-management of their disease is difficult. This may be especially true for people with limited health literacy as they are faced with additional challenges in the day-to-day management of their disease. Research has shown that self-management support is most effective when tailored to the needs and preferences of patients. Therefore, this study explores the preferences regarding self-management ou…
Measuring health insurance literacy in the Netherlands – First results of the Hilm-NL questionnaire
BACKGROUND: There are several indications that citizens in the Netherlands struggle to make critical, well-considered decisions about which insurance policy best fits their needs and preferences. This can lead to citizens being sub-optimally insured, facing unexpected costs or suffering inadequate coverage. This study aims to examine how health insurance literacy (HIL) is distributed among citizens in the Netherlands; and to find out whether ther…
Evaluating meaningful impact of Patient and Public Involvement
INTRODUCTION: Although Patient and Public Involvement (PPI) of young people with a chronic condition (YPCC) is receiving increasing attention, evidence of impact is lacking. This is partly due to inadequate understanding of what meaningful impact entails. This study aimed to gain an in-depth understanding of researchers' and YPCC's perspectives on meaningful impact. METHODS: We conducted a Q methodology study in a group of 26 researchers and a gr…
Children’s Health Literacy in Relation to Their BMI z-Score, Food Intake, and Physical Activity
Overweight and obesity in children are an increasing public health problem. Health literacy (HL) is a determinant of obesity and body mass index (BMI) rates in adults, but few studies have addressed the impact of children's own HL on their weight and lifestyle. In this study, we aim to assess the impact of Dutch children's HL on (1) their BMI z-score, (2) dietary behaviour, and (3) the amount of physical activity (PA) they engage in. A sample of …
Evaluating the Involvement of People With Cancer and Informal Caregivers in the Development Process of a New Set of Quality of Life Questionnaires
INTRODUCTION: There is a general need for sharing practical examples of Patient and Public Involvement (PPI) within the research field to learn from and inspire. The aim of this article is to describe our process evaluation of PPI within the development process of the EUonQoL-Kit, a new set of quality of life questionnaires aimed at people with (past experience of) cancer. METHODS: Five co-researchers (people with cancer and informal caregivers) …
Medicine (19 works) · Psychology (18 works) · Health care (14 works) · Nursing (13 works) · Health literacy (11 works) · Health Literacy and Information Accessibility (11 works) · Public health (10 works) · Literacy (8 works) · Patient-Provider Communication in Healthcare (8 works) · Social Psychology (8 works)