Pranesh Chakraborty
Biographic Data
| ID | 6161350 |
|---|---|
| NAME | Pranesh Chakraborty |
| GIVEN NAMES | Pranesh |
| FAMILY NAME | Chakraborty |
| SIGNATURE | CHAKRABORTY P |
| AFFILIATIONS | University of Ottawa |
| ORCID | 0000-0002-7719-0821 |
| VERIFIED | Yes |
| TOTAL WORKS | 9 |
| TOTAL CITATIONS | 1 |
| AUTHOR COUNT | 9 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2007 |
| LATEST PUBLICATION YEAR | 2024 |
| H-INDEX | 1 |
Family‐centred care interventions for children with chronic conditions
Parental Preferences for Expanded Newborn Screening
The use of next-generation sequencing technologies such as genomic sequencing in newborn screening (NBS) could enable the detection of a broader range of conditions. We explored parental preferences and attitudes towards screening for conditions for which varying types of treatment exist with a cross-sectional survey completed by 100 parents of newborns who received NBS in Ontario, Canada. The survey included four vignettes illustrative of hypoth…
Ethical and practical considerations related to data sharing when collecting patient-reported outcomes in care-based child health research
We propose a PRO data sharing model that can be used across diverse research settings and contributes to improved transparency, communication, and patient-centered care and research
Real world external validation of metabolic gestational age assessment in Kenya
Using data from Ontario Canada, we previously developed machine learning-based algorithms incorporating newborn screening metabolites to estimate gestational age (GA). The objective of this study was to evaluate the use of these algorithms in a population of infants born in Siaya county, Kenya. Cord and heel prick samples were collected from newborns in Kenya and metabolic analysis was carried out by Newborn Screening Ontario in Ottawa, Canada. P…
Unlocking the global health potential of dried blood spot cards
A key challenge to providing care for newborn infants in low- and middle-income countries (LMICs) is the lack of timely diagnostic testing due to weak local infrastructures such as laboratory capacity and imaging technologies. To address this challenge, low-cost diagnostic testing that does not require extensive laboratory processing or costly storage procedures has been prioritised. [...]
A novel way of determining gestational age upon the birth of a child
reterm birth is the leading cause of infant morbidity and mortality globally [1]. Determining whether an infant was born preterm can be challenging, especially in low-resource settings due to a paucity of prenatal care and dating ultrasounds, the unreliability of recall of last menstrual period, and recognised limitations of Ballard score and other newborn clinical assessment and anthropometric measurements [2]. Accurate estimation of gestational…
Expectations and values about expanded newborn screening
OBJECTIVES: Newborn bloodspot screening (NBS) panels have expanded to include conditions for which treatment effects are less certain, creating debate about population-based screening criteria. We investigated Canadian public expectations and values regarding the types of conditions that should be included in NBS and whether parents should provide consent. METHODS: Eight focus groups (FG; n = 60) included education, deliberative discussion and pr…
The Epidemiology and Health System Impact of Medium-Chain Acyl-Coa Dehydrogenase Deficiency Among Affected Children and Those With False Positive Newborn Screening Results in Ontario, Canada
Introduction Limited research has focused on the health system impact of rare genetic disorders, including inborn errors of metabolism (IEM). Investigating patterns of health services use and their association with social and geographic characteristics is important for understanding the burden of disease, including the impact of screening and clinical management; and for identifying potential inequities in access to care. Objectives We conducted …
Gender‐specific differences in the psychosocial adjustment of parents of a child with duchenne muscular dystrophy (DMD) ‐ Two points of view for a shared experience
Research was conducted on parents’ experience of caring for a child living with Duchenne muscular dystrophy (DMD). The focus of this research was on the key psychological aspects of the process of adjustment to the illness of their child (family and spousal relationship, daily life, emotions, career, spirituality, and coping strategies). There was evidence throughout the study of gender‐specific differences in constructing the different aspects o…
Gender‐specific differences in the psychosocial adjustment of parents of a child with duchenne muscular dystrophy (DMD) ‐ Two points of view for a shared experience
Research was conducted on parents’ experience of caring for a child living with Duchenne muscular dystrophy (DMD). The focus of this research was on the key psychological aspects of the process of adjustment to the illness of their child (family and spousal relationship, daily life, emotions, career, spirituality, and coping strategies). There was evidence throughout the study of gender‐specific differences in constructing the different aspects o…
Gender‐specific differences in the psychosocial adjustment of parents of a child with duchenne muscular dystrophy (DMD) ‐ Two points of view for a shared experience
Research was conducted on parents’ experience of caring for a child living with Duchenne muscular dystrophy (DMD). The focus of this research was on the key psychological aspects of the process of adjustment to the illness of their child (family and spousal relationship, daily life, emotions, career, spirituality, and coping strategies). There was evidence throughout the study of gender‐specific differences in constructing the different aspects o…
The Epidemiology and Health System Impact of Medium-Chain Acyl-Coa Dehydrogenase Deficiency Among Affected Children and Those With False Positive Newborn Screening Results in Ontario, Canada
Introduction Limited research has focused on the health system impact of rare genetic disorders, including inborn errors of metabolism (IEM). Investigating patterns of health services use and their association with social and geographic characteristics is important for understanding the burden of disease, including the impact of screening and clinical management; and for identifying potential inequities in access to care. Objectives We conducted …
Expectations and values about expanded newborn screening
OBJECTIVES: Newborn bloodspot screening (NBS) panels have expanded to include conditions for which treatment effects are less certain, creating debate about population-based screening criteria. We investigated Canadian public expectations and values regarding the types of conditions that should be included in NBS and whether parents should provide consent. METHODS: Eight focus groups (FG; n = 60) included education, deliberative discussion and pr…
A novel way of determining gestational age upon the birth of a child
reterm birth is the leading cause of infant morbidity and mortality globally [1]. Determining whether an infant was born preterm can be challenging, especially in low-resource settings due to a paucity of prenatal care and dating ultrasounds, the unreliability of recall of last menstrual period, and recognised limitations of Ballard score and other newborn clinical assessment and anthropometric measurements [2]. Accurate estimation of gestational…
Real world external validation of metabolic gestational age assessment in Kenya
Using data from Ontario Canada, we previously developed machine learning-based algorithms incorporating newborn screening metabolites to estimate gestational age (GA). The objective of this study was to evaluate the use of these algorithms in a population of infants born in Siaya county, Kenya. Cord and heel prick samples were collected from newborns in Kenya and metabolic analysis was carried out by Newborn Screening Ontario in Ottawa, Canada. P…
Unlocking the global health potential of dried blood spot cards
A key challenge to providing care for newborn infants in low- and middle-income countries (LMICs) is the lack of timely diagnostic testing due to weak local infrastructures such as laboratory capacity and imaging technologies. To address this challenge, low-cost diagnostic testing that does not require extensive laboratory processing or costly storage procedures has been prioritised. [...]
Parental Preferences for Expanded Newborn Screening
The use of next-generation sequencing technologies such as genomic sequencing in newborn screening (NBS) could enable the detection of a broader range of conditions. We explored parental preferences and attitudes towards screening for conditions for which varying types of treatment exist with a cross-sectional survey completed by 100 parents of newborns who received NBS in Ontario, Canada. The survey included four vignettes illustrative of hypoth…
Ethical and practical considerations related to data sharing when collecting patient-reported outcomes in care-based child health research
We propose a PRO data sharing model that can be used across diverse research settings and contributes to improved transparency, communication, and patient-centered care and research
Family‐centred care interventions for children with chronic conditions
Medicine (9 works) · Psychology (5 works) · Environmental health (4 works) · Newborn screening (4 works) · Pediatrics (4 works) · Population (4 works) · Clinical Psychology (3 works) · Family medicine (3 works) · Psychiatry (3 works) · Adolescent and Pediatric Healthcare (2 works)