Bryony Beresford
Biographic Data
| ID | 6328864 |
|---|---|
| NAME | Bryony Beresford |
| GIVEN NAMES | Bryony |
| FAMILY NAME | Beresford |
| SIGNATURE | BERESFORD B |
| AFFILIATIONS | University of York |
| ORCID | 0000-0003-0716-2902 |
| VERIFIED | Yes |
| TOTAL WORKS | 18 |
| TOTAL CITATIONS | 22 |
| WORKS AS AUTHOR | 18 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 1994 |
| LATEST PUBLICATION YEAR | 2024 |
| H-INDEX | 3 |
They Like to Try and Boss Them around a Little”
Increasing frailty or a medical crisis threatens older people’s autonomy. Further threats may arise from adult children if such changes or events are perceived as permitting or signalling a need to assume greater control over their parent’s life. In the context of reablement—a time‐limited intervention seeking to help older people regain their confidence and ability to live as independently as possible—this is observed in cases where adult childr…
Research priorities for homecare for older people
Homecare is generally understood to refer to services that support people to continue living in their own homes. Older people are the primary users and many countries report an increase in the number using homecare services and greater spending on such provision, driven in part by investment in 'ageing in place' policies. Despite this, and reflecting social care more generally, homecare is relatively under-researched. However, in the UK at least,…
Outcomes of reablement and their measurement
Reablement - or restorative care - is a central feature of many western governments' approaches to supporting and enabling older people to stay in their own homes and minimise demand for social care. Existing evidence supports this approach although further research is required to strengthen the certainty of conclusions being drawn. In countries where reablement has been rolled out nationally, an additional research priority - to develop an evide…
The Hopkins Rehabilitation Engagement Rating Scale – Reablement Version (HRERS‐RV)
Patient or user engagement with health and social care interventions is receiving increased attention and interest within practice settings and research. An English evaluation of three reablement services wished to include a measure of user-engagement so as to explore its association with outcomes. As no measure of reablement engagement existed, an existing measure designed for use with physical rehabilitation patients (the Hopkins Rehabilitation…
“It goes against the grain”
BACKGROUND: Parents caring for children with complex and long-term conditions at home take on responsibility for technical health-care procedures that may cause their child distress. Little evidence exists about parents' experience of this specific aspect of their caring role. AIMS: To explore and understand parents' experiences of administering distressing health-care procedures as part of caring for their child at home. DESIGN: An explorative q…
Researching the Lives of Disabled Children and Young People
It describes the context of our practice from a UK policy and international perspective. As paediatric physiotherapists, we have a unique perspective on the lived experiences of disabled children and young people
Working on Well‐Being
This paper reports the experiences of working with a group of disabled young people over a 12‐month period, during which perspectives of subjective well‐being were explored. Methodological experiences, and particularly strategies which facilitated accessing young people's views, are described. The paper then moves on to focusing on the challenges and dilemmas of taking a participative approach. These experiences are contextualised within wider de…
The development of satisfaction with service-related choices for disabled young people with degenerative conditions
Satisfaction with service-related choices has not received much research attention, especially beyond medical/health-related decisions. This paper reports findings from an analysis of parents' accounts of making service-related choices with, or on behalf of, a disabled son or daughter with a degenerative condition. It focuses particularly on factors and processes, which contribute to parents' satisfaction. This is particularly interesting given t…
Decision-making around moving on from full-time education
Little is known about the decision-making processes that take place within families when a disabled young person is moving on from full-time education and, particularly, parents' roles and experiences. This paper reports the analysis of data collected from a subsample of parents (representing seventeen families) participating in the Choice and Change Project who had discussed choices associated with their child leaving full-time education. (The C…
Every Child Matters outcomes
To date, little attention has been paid to the appropriateness of the Every Child Matters (ECM) outcomes framework to disabled children. 1 This article reports findings from a research project which sought the views of disabled children and their parents about their desired outcomes. Twenty‐nine children and 90 parents were interviewed. The findings indicate that ECM outcomes are appropriate to disabled children but can have different meanings. I…
Deaf Children and Young People’s Experiences of Using Specialist Mental Health Services
Deaf children have an increased prevalence of mental health problems compared with hearing children. Generic Child And Adolescent Mental Health Services do not have the skills or expertise to meet the mental health needs of this group of children. Three teams in England provide specialist mental health services for deaf children. This research explored children’s experiences of using these services. Twenty‐four deaf children participated in the s…
Desired Outcomes for Children and Adolescents with Autistic Spectrum Disorders
Within children's services, frameworks for assessing outcomes have been developed in the absence of consultation with children with autistic spectrum disorders and their parents. The research reported here worked with parents, other key adults and children with autistic spectrum disorders to identify desired outcomes. It found similarities with non‐autistic children in terms of the broad types of outcomes desired. However, the presence of autism …
Coping with the care of a severely disabled child
The unrelenting, and often overwhelming, stresses experienced by parents caring for a disabled child have been well charted, as have their impact on personal and family well-being. This paper reports on a study which took such research a step further by focusing on the ways parents cope with the stresses and strains of care. An in-depth qualitative approach was used in a longitudinal study of 20 families caring for a severely disabled child. The …
Doing research with children and young people who do not use speech for communication
Despite emphasis in policy on participation of disabled children,1 we still know relatively little about how to obtain the views of disabled children with significant communication impairment and their views are often overlooked in planning and service provision. This article describes how the views of children who do not use speech were accessed in research aiming to identify disabled children and young people's priorities regarding outcomes of …
Desired outcomes for children and young people with complex health care needs, and children who do not use speech for communication
Within recent policies and initiatives, there is a growing emphasis on outcomes-focused practice and user-defined outcomes to ensure that the children and families most at risk of social exclusion have every opportunity to build successful and independent lives. However, we still know little about what children and young people with disabilities consider constitutes a good quality of life. The present paper reports the findings of a qualitative r…
Meeting the housing needs of disabled children
This article is based on two pieces of work. The first, Homes Unfit for Children (Oldman & Beresford, 1998), was based on a postal survey and 40 in‐depth interviews with families with disabled children. The second, due to be published by the Policy Press in the spring this year, reports the results of a programme of consultation roadshows with a range of professionals from housing, social services and health, in a series of regional consultation …
Home, Sick Home
Using the example of a study of the housing needs of disabled children, the paper suggests a new framework for exploring the links between health, disability and housing. It examines the literature of housing and disability and of health and housing and finds that the former omits health issues and the latter neglects disability. The paper suggests that a key reason why housing, disability and health have not been linked in the past is an unwilli…
Experiencing Special Education
Home, Sick Home
Using the example of a study of the housing needs of disabled children, the paper suggests a new framework for exploring the links between health, disability and housing. It examines the literature of housing and disability and of health and housing and finds that the former omits health issues and the latter neglects disability. The paper suggests that a key reason why housing, disability and health have not been linked in the past is an unwilli…
Decision-making around moving on from full-time education
Little is known about the decision-making processes that take place within families when a disabled young person is moving on from full-time education and, particularly, parents' roles and experiences. This paper reports the analysis of data collected from a subsample of parents (representing seventeen families) participating in the Choice and Change Project who had discussed choices associated with their child leaving full-time education. (The C…
Desired outcomes for children and young people with complex health care needs, and children who do not use speech for communication
Within recent policies and initiatives, there is a growing emphasis on outcomes-focused practice and user-defined outcomes to ensure that the children and families most at risk of social exclusion have every opportunity to build successful and independent lives. However, we still know little about what children and young people with disabilities consider constitutes a good quality of life. The present paper reports the findings of a qualitative r…
Research priorities for homecare for older people
Homecare is generally understood to refer to services that support people to continue living in their own homes. Older people are the primary users and many countries report an increase in the number using homecare services and greater spending on such provision, driven in part by investment in 'ageing in place' policies. Despite this, and reflecting social care more generally, homecare is relatively under-researched. However, in the UK at least,…
Coping with the care of a severely disabled child
The unrelenting, and often overwhelming, stresses experienced by parents caring for a disabled child have been well charted, as have their impact on personal and family well-being. This paper reports on a study which took such research a step further by focusing on the ways parents cope with the stresses and strains of care. An in-depth qualitative approach was used in a longitudinal study of 20 families caring for a severely disabled child. The …
They Like to Try and Boss Them around a Little”
Increasing frailty or a medical crisis threatens older people’s autonomy. Further threats may arise from adult children if such changes or events are perceived as permitting or signalling a need to assume greater control over their parent’s life. In the context of reablement—a time‐limited intervention seeking to help older people regain their confidence and ability to live as independently as possible—this is observed in cases where adult childr…
The development of satisfaction with service-related choices for disabled young people with degenerative conditions
Satisfaction with service-related choices has not received much research attention, especially beyond medical/health-related decisions. This paper reports findings from an analysis of parents' accounts of making service-related choices with, or on behalf of, a disabled son or daughter with a degenerative condition. It focuses particularly on factors and processes, which contribute to parents' satisfaction. This is particularly interesting given t…
Experiencing Special Education
Meeting the housing needs of disabled children
This article is based on two pieces of work. The first, Homes Unfit for Children (Oldman & Beresford, 1998), was based on a postal survey and 40 in‐depth interviews with families with disabled children. The second, due to be published by the Policy Press in the spring this year, reports the results of a programme of consultation roadshows with a range of professionals from housing, social services and health, in a series of regional consultation …
Home, Sick Home
Using the example of a study of the housing needs of disabled children, the paper suggests a new framework for exploring the links between health, disability and housing. It examines the literature of housing and disability and of health and housing and finds that the former omits health issues and the latter neglects disability. The paper suggests that a key reason why housing, disability and health have not been linked in the past is an unwilli…
Doing research with children and young people who do not use speech for communication
Despite emphasis in policy on participation of disabled children,1 we still know relatively little about how to obtain the views of disabled children with significant communication impairment and their views are often overlooked in planning and service provision. This article describes how the views of children who do not use speech were accessed in research aiming to identify disabled children and young people's priorities regarding outcomes of …
Desired outcomes for children and young people with complex health care needs, and children who do not use speech for communication
Within recent policies and initiatives, there is a growing emphasis on outcomes-focused practice and user-defined outcomes to ensure that the children and families most at risk of social exclusion have every opportunity to build successful and independent lives. However, we still know little about what children and young people with disabilities consider constitutes a good quality of life. The present paper reports the findings of a qualitative r…
Desired Outcomes for Children and Adolescents with Autistic Spectrum Disorders
Within children's services, frameworks for assessing outcomes have been developed in the absence of consultation with children with autistic spectrum disorders and their parents. The research reported here worked with parents, other key adults and children with autistic spectrum disorders to identify desired outcomes. It found similarities with non‐autistic children in terms of the broad types of outcomes desired. However, the presence of autism …
Coping with the care of a severely disabled child
The unrelenting, and often overwhelming, stresses experienced by parents caring for a disabled child have been well charted, as have their impact on personal and family well-being. This paper reports on a study which took such research a step further by focusing on the ways parents cope with the stresses and strains of care. An in-depth qualitative approach was used in a longitudinal study of 20 families caring for a severely disabled child. The …
Every Child Matters outcomes
To date, little attention has been paid to the appropriateness of the Every Child Matters (ECM) outcomes framework to disabled children. 1 This article reports findings from a research project which sought the views of disabled children and their parents about their desired outcomes. Twenty‐nine children and 90 parents were interviewed. The findings indicate that ECM outcomes are appropriate to disabled children but can have different meanings. I…
Deaf Children and Young People’s Experiences of Using Specialist Mental Health Services
Deaf children have an increased prevalence of mental health problems compared with hearing children. Generic Child And Adolescent Mental Health Services do not have the skills or expertise to meet the mental health needs of this group of children. Three teams in England provide specialist mental health services for deaf children. This research explored children’s experiences of using these services. Twenty‐four deaf children participated in the s…
Researching the Lives of Disabled Children and Young People
It describes the context of our practice from a UK policy and international perspective. As paediatric physiotherapists, we have a unique perspective on the lived experiences of disabled children and young people
Working on Well‐Being
This paper reports the experiences of working with a group of disabled young people over a 12‐month period, during which perspectives of subjective well‐being were explored. Methodological experiences, and particularly strategies which facilitated accessing young people's views, are described. The paper then moves on to focusing on the challenges and dilemmas of taking a participative approach. These experiences are contextualised within wider de…
The development of satisfaction with service-related choices for disabled young people with degenerative conditions
Satisfaction with service-related choices has not received much research attention, especially beyond medical/health-related decisions. This paper reports findings from an analysis of parents' accounts of making service-related choices with, or on behalf of, a disabled son or daughter with a degenerative condition. It focuses particularly on factors and processes, which contribute to parents' satisfaction. This is particularly interesting given t…
Decision-making around moving on from full-time education
Little is known about the decision-making processes that take place within families when a disabled young person is moving on from full-time education and, particularly, parents' roles and experiences. This paper reports the analysis of data collected from a subsample of parents (representing seventeen families) participating in the Choice and Change Project who had discussed choices associated with their child leaving full-time education. (The C…
“It goes against the grain”
BACKGROUND: Parents caring for children with complex and long-term conditions at home take on responsibility for technical health-care procedures that may cause their child distress. Little evidence exists about parents' experience of this specific aspect of their caring role. AIMS: To explore and understand parents' experiences of administering distressing health-care procedures as part of caring for their child at home. DESIGN: An explorative q…
The Hopkins Rehabilitation Engagement Rating Scale – Reablement Version (HRERS‐RV)
Patient or user engagement with health and social care interventions is receiving increased attention and interest within practice settings and research. An English evaluation of three reablement services wished to include a measure of user-engagement so as to explore its association with outcomes. As no measure of reablement engagement existed, an existing measure designed for use with physical rehabilitation patients (the Hopkins Rehabilitation…
Outcomes of reablement and their measurement
Reablement - or restorative care - is a central feature of many western governments' approaches to supporting and enabling older people to stay in their own homes and minimise demand for social care. Existing evidence supports this approach although further research is required to strengthen the certainty of conclusions being drawn. In countries where reablement has been rolled out nationally, an additional research priority - to develop an evide…
Research priorities for homecare for older people
Homecare is generally understood to refer to services that support people to continue living in their own homes. Older people are the primary users and many countries report an increase in the number using homecare services and greater spending on such provision, driven in part by investment in 'ageing in place' policies. Despite this, and reflecting social care more generally, homecare is relatively under-researched. However, in the UK at least,…
They Like to Try and Boss Them around a Little”
Increasing frailty or a medical crisis threatens older people’s autonomy. Further threats may arise from adult children if such changes or events are perceived as permitting or signalling a need to assume greater control over their parent’s life. In the context of reablement—a time‐limited intervention seeking to help older people regain their confidence and ability to live as independently as possible—this is observed in cases where adult childr…
Psychology (15 works) · Healthcare innovation and challenges (9 works) · Developmental psychology (8 works) · Family and Disability Support Research (8 works) · Medicine (8 works) · Sociology (6 works) · Applied Psychology (5 works) · Applied Psychology (5 works) · Disabled people (5 works) · Psychiatry (5 works)