Benjamin E Berkman
Biographic Data
| ID | 9271139 |
|---|---|
| NAME | Benjamin E Berkman |
| GIVEN NAMES | Benjamin E |
| FAMILY NAME | Berkman |
| SIGNATURE | BERKMAN B E |
| AFFILIATIONS | National Institutes of Health |
| ORCID | 0000-0002-9098-0799 |
| VERIFIED | Yes |
| TOTAL WORKS | 7 |
| TOTAL CITATIONS | 0 |
| WORKS AS AUTHOR | 7 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2012 |
| LATEST PUBLICATION YEAR | 2024 |
| H-INDEX | 0 |
Should institutions fund the feedback of individual findings in genomic research
The article argues the thesis that institutions have a prima facie obligation to fund the feedback of individual findings in genomic research conducted on the African continent by drawing arguments from an underexplored Afro-communitarian view of distributive justice and rights of researchers to be aided. Whilst some studies have explored how institutions have a duty to support return as a form of ancillary care or additional foreseeable service …
Autonomy concerns with using contracts to enhance patient adherence
The failure of many patients with chronic conditions to correctly follow medical advice that they hope or intend to follow is a major concern, especially as effective long‐term therapies for chronic conditions materialize. Some US healthcare providers have responded with strategies that involve implementing contracts with their patients, including provisions that may deny future treatments after continued nonadherence. This is among the first art…
Allocation of scarce biospecimens for use in research
Hundreds of millions of rare biospecimens are stored in laboratories and biobanks around the world. Often, the researchers who possess these specimens do not plan to use them, while other researchers limit the scope of their work because they cannot acquire biospecimens that meet their needs. This situation raises an important and underexplored question: how should scientists allocate biospecimens that they do not intend to use? We argue that all…
Commentary on ‘The right not to know and the obligation not to know’
Incidental Findings in Low‐Resource Settings
Much new global genetic research employs whole genome sequencing, which provides researchers with large amounts of data. The quantity of data has led to the generation and discovery of more incidental or secondary findings and to vigorous theoretical discussions about the ethical obligations that follow from these incidental findings. After a decade of debate in the genetic research community, there is a growing consensus that researchers should,…
When Should Genome Researchers Disclose Misattributed Pahentage
As analytic tools for genomic sequencing improve, biomedical research will increasingly use this method to draw inferences based on comparisons between the genetic data of a set of individuals thought to be related to each other. Cases in which genomic sequencing will be very useful include those in which a child has a rare or undiagnosed disease that might have an underlying genetic etiology. Researchers will be able to sequence the pediatric pr…
Prenatal Whole Genome Sequencing
Whole genome sequencing is quickly becoming more affordable and accessible, with the prospect of personal genome sequencing for under $1,000 now widely said to be in sight. The ethical issues raised by the use of this technology in the research context have received some significant attention, but little has been written on its use in the clinical context, and most of this analysis has been futuristic forecasting. This is problematic, given the s…
No prominent works on this page.
Prenatal Whole Genome Sequencing
Whole genome sequencing is quickly becoming more affordable and accessible, with the prospect of personal genome sequencing for under $1,000 now widely said to be in sight. The ethical issues raised by the use of this technology in the research context have received some significant attention, but little has been written on its use in the clinical context, and most of this analysis has been futuristic forecasting. This is problematic, given the s…
When Should Genome Researchers Disclose Misattributed Pahentage
As analytic tools for genomic sequencing improve, biomedical research will increasingly use this method to draw inferences based on comparisons between the genetic data of a set of individuals thought to be related to each other. Cases in which genomic sequencing will be very useful include those in which a child has a rare or undiagnosed disease that might have an underlying genetic etiology. Researchers will be able to sequence the pediatric pr…
Incidental Findings in Low‐Resource Settings
Much new global genetic research employs whole genome sequencing, which provides researchers with large amounts of data. The quantity of data has led to the generation and discovery of more incidental or secondary findings and to vigorous theoretical discussions about the ethical obligations that follow from these incidental findings. After a decade of debate in the genetic research community, there is a growing consensus that researchers should,…
Commentary on ‘The right not to know and the obligation not to know’
Allocation of scarce biospecimens for use in research
Hundreds of millions of rare biospecimens are stored in laboratories and biobanks around the world. Often, the researchers who possess these specimens do not plan to use them, while other researchers limit the scope of their work because they cannot acquire biospecimens that meet their needs. This situation raises an important and underexplored question: how should scientists allocate biospecimens that they do not intend to use? We argue that all…
Autonomy concerns with using contracts to enhance patient adherence
The failure of many patients with chronic conditions to correctly follow medical advice that they hope or intend to follow is a major concern, especially as effective long‐term therapies for chronic conditions materialize. Some US healthcare providers have responded with strategies that involve implementing contracts with their patients, including provisions that may deny future treatments after continued nonadherence. This is among the first art…
Should institutions fund the feedback of individual findings in genomic research
The article argues the thesis that institutions have a prima facie obligation to fund the feedback of individual findings in genomic research conducted on the African continent by drawing arguments from an underexplored Afro-communitarian view of distributive justice and rights of researchers to be aided. Whilst some studies have explored how institutions have a duty to support return as a form of ancillary care or additional foreseeable service …
Political science (5 works) · Biomedical Ethics and Regulation (4 works) · Ethics in Clinical Research (4 works) · Law (4 works) · Computer Science (3 works) · Health Systems, Economic Evaluations, Quality of Life (3 works) · Autonomy (2 works) · Medicine (2 works) · Normative (2 works) · Prenatal Screening and Diagnostics (2 works)