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Allocation of scarce biospecimens for use in research

Bibliographic Data

ID21515250
AuthorsLeah Pierson (0000-0001-7135-8825, Harvard University, corresponding author), Sophie Gibert (0000-0001-9607-1484, Massachusetts Institute of Technology), Sophia Gibert, Benjamin E Berkman (0000-0002-9098-0799, National Institutes of Health), Benjamin Berkman, Marion Danis (0000-0002-4749-4568, National Institutes of Health), Joseph Millum (0000-0003-0716-9880, National Institutes of Health)
Year2021
Volume47
Issue11
Pages740-743
Publication date2021-11-01
Open AccessNo
TypeARTICLE
VenueJournal of Medical Ethics (JOURNAL)
Journal identifiersISSN: 0306-6800 • E-ISSN: 1473-4257
PublisherBMJ (PUBLISHER • GB)
DOI10.1136/medethics-2019-105766
PMID32220871
OpenAlexW3013654036
LanguageEN
References cited11

Hundreds of millions of rare biospecimens are stored in laboratories and biobanks around the world. Often, the researchers who possess these specimens do not plan to use them, while other researchers limit the scope of their work because they cannot acquire biospecimens that meet their needs. This situation raises an important and underexplored question: how should scientists allocate biospecimens that they do not intend to use? We argue that allocators should aim to maximise the social value of the research enterprise when allocating scarce biospecimens. We provide an ethical framework for assessing the social value of proposed research projects and describe how the framework could be implemented

Allocator · Biobank · Bioinformatics · Data science · Engineering ethics · Knowledge management · Political science · Politics · Research ethics · Scarcity · Biomedical Ethics and Regulation · Computer Science · Engineering · Ethics in Clinical Research · Health Systems, Economic Evaluations, Quality of Life

  • What Makes Clinical Research Ethical?

    Ezekiel J Emanuel•JAMA•2000

Highly citedNo

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