Lucy E Selman
Dados Biográficos
| ID | 327784 |
|---|---|
| NOME | Lucy E Selman |
| PRENOMES | Lucy E |
| SOBRENOME | Selman |
| ASSINATURA | SELMAN L E |
| AFILIAÇÕES | University of Bristol |
| ORCID | 0000-0001-5747-2699 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 17 |
| TOTAL DE CITAÇÕES | 14 |
| TOTAL COMO AUTOR | 17 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2009 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2026 |
| ÍNDICE H | 2 |
Support needs, support use and perceived helpfulness of support in a cohort of people bereaved during the Covid-19 pandemic
Background: The negative impacts of the COVID-19 pandemic on grief outcomes are well documented. However, less is known about the evolving support needs of people bereaved during this time, what support they used and, crucially, how this support helped (or hindered) their coping, with applicability to contemporary bereavement support contexts. Methods: = 185) months post-bereavement. Support needs and support use were assessed at all time points,…
The system doesn’t really cater for the trauma that Black people have experienced” – Experiences of grief and bereavement in Black British and Black Caribbean heritage communities in England
People from Black and other minoritized ethnic communities are known to experience health and social care inequities, including barriers to accessing bereavement support. However, bereavement experiences and support needs in different population groups are poorly understood. This qualitative, co-produced study aimed to explore experiences of grief and bereavement among people of Black British and Black Caribbean heritage in England. Through commu…
From trusted intruder to real collaborator
While policy efforts to promote health through integration across sectors are not new, the 2022 UK Health and Care Act formalised Integrated Care Systems (ICSs) as legal entities with statutory powers in England. This includes a legal responsibility to commission adequate palliative and end-of-life care services, including bereavement support, for the communities they serve. Cross-sector partnerships that leverage community assets are recommended…
The grief exists in a bubble that the rest of the world doesn't see
People bereaved during the Covid-19 pandemic experienced profoundly altered death, mourning and grieving practices. Worsened grief outcomes have been widely reported but less is known about how people coped during these unprecedented times. Using reflexive thematic analysis critically informed by theories of biographical disruption and meaning-making, we analysed 39 interview transcripts from 24 people bereaved during the pandemic in the UK. We d…
Prolonged grief during and beyond the pandemic
Background: The COVID-19 pandemic has been a devastating and enduring mass-bereavement event, with uniquely difficult sets of circumstances experienced by people bereaved at this time. However, little is known about the long-term consequences of these experiences, including the prevalence of Prolonged Grief Disorder (PGD) and other conditions in pandemic-bereaved populations. Methods: = 185) months post-bereavement. Using measures of Prolonged Gr…
Treatment Decision-Making in Myocardial Infarction for People With Advanced Kidney Disease
Background: People with chronic kidney disease (CKD) have significantly higher morbidity and mortality following myocardial infarction (MI) than the general population. Despite this, they are less likely to receive invasive management and guideline-directed medications than those without kidney disease. It is unclear why this treatment variation exists and whether or not it reflects equal and appropriate access to care for the high-risk CKD popul…
The IN-Fakt Study Protocol
Background: In the UK 1500 kidney transplants fail each year. 2% of living-donor transplants and 5% of deceased-donor transplants fail within a year of transplantation. Many decisions need to be made when a kidney transplant fails, including whether the transplant should be removed, and which immunosuppression medication should be stopped. There is limited evidence on which to base these decisions. We do not understand how decisions are made in t…
How do Funeral Practices Impact Bereaved Relatives' Mental Health, Grief and Bereavement? A Mixed Methods Review with Implications for Covid-19
Those who are bereaved during the current COVID-19 pandemic are subject to restrictions on funeral sizes and practices. We conducted a rapid review synthesising the quantitative and qualitative evidence regarding the effect of funeral practices on bereaved relatives’ mental health and bereavement outcomes. Searches of MEDLINE, PsycINFO, KSR Evidence, and COVID-related resources were conducted. 805 records were screened; 17 studies of variable qua…
Expectations of a new opt‐out system of consent for deceased organ donation in England
INTRODUCTION: In 2020 England moved to an opt-out deceased donation law. We aimed to investigate the views of a mixed stakeholder group comprising people with kidney disease, family members and healthcare practitioners towards the change in legislation. We investigated the expected impacts of the new legislation on deceased-donor and living-donor transplantation, and views on media campaigns regarding the law change. METHODS: We undertook in-dept…
Factors Associated With Higher Levels of Grief and Support Needs Among People Bereaved During the Pandemic
We identified factors associated with higher levels of grief and support needs among 711 people bereaved during the COVID-19 pandemic in the UK (deaths 16 March 2020-2 January 2021). An online survey assessed grief using the Adult Attitude to Grief (AAG) scale, which calculates an overall index of vulnerability (IOV) (range 0-36), and practical and emotional support needs in 13 domains. Participants' mean age was 49.5 (SD 12.9); 628 (88.6%) femal…
Uncertainty and Covid-19
As if writing prophetically about the global Covid-19 pandemic, in 1984 Eddy suggested, “Uncertainty creeps into medical practice through every pore. Whether a physician is defining a disease, making a diagnosis, selecting a procedure, observing outcomes, assessing probabilities, assigning preferences, or putting it all together, he (or she) is walking on very slippery terrain” 1. Covid-19 has rapidly become a disease associated with unbridled un…
Effect of participation in a randomised controlled trial of an integrated palliative care intervention on HIV-associated stigma
We conducted in Kenya a mixed-methods randomised controlled trial (RCT) of a nurse-led palliative care intervention integrated with anti-retroviral therapy (ART) provision for the management of HIV. Here we report qualitative findings showing increased resistance to HIV-associated stigma among trial participants. A mixed method design was chosen to enable identification of the active ingredients of the intervention and exploration of participants…
You are labelled by your children’s disability’ – A community-based, participatory study of stigma among Somali parents of children with autism living in the United Kingdom
Findings inform support for this community, highlighting the need to raise awareness of autism, enable parents to speak openly, and ensure appropriate professional services and interventions are available
Conducting experimental research in marginalised populations
Experimental studies to test interventions for people living with HIV in low- and middle-income countries are essential to ensure appropriate and effective clinical care. The implications of study participation on outcome data in such populations have been discussed theoretically, but rarely empirically examined. We aimed to explore the effects of participating in a randomised controlled trial conducted in an HIV clinic in Mombasa, Kenya. We repo…
Measuring health-related quality of life in patients with conservatively managed stage 5 chronic kidney disease
This small study of patients with conservatively managed stage 5 CKD found that only the summary measures of SF-36 and 2 of its 8 scales can be used to assess changes in HRQoL over time. These findings suggest that in this population, alternative HRQoL assessment tools should be considered for future studies
Stressors and Resources of Caregivers of Patients With Incurable Progressive Illness in Sub-Saharan Africa
Family caregivers are central to palliative care in sub-Saharan Africa. Yet although supporting caregivers requires a comprehensive understanding of caregiver burden, there has been little research into this topic in Africa. Using the Stress Process Model to investigate the burden experienced by caregivers in South Africa and Uganda, we interviewed 37 caregivers and analyzed the data thematically. Caregivers' primary stressors related to day-to-d…
Palliative care
Stressors and Resources of Caregivers of Patients With Incurable Progressive Illness in Sub-Saharan Africa
Family caregivers are central to palliative care in sub-Saharan Africa. Yet although supporting caregivers requires a comprehensive understanding of caregiver burden, there has been little research into this topic in Africa. Using the Stress Process Model to investigate the burden experienced by caregivers in South Africa and Uganda, we interviewed 37 caregivers and analyzed the data thematically. Caregivers' primary stressors related to day-to-d…
You are labelled by your children’s disability’ – A community-based, participatory study of stigma among Somali parents of children with autism living in the United Kingdom
Findings inform support for this community, highlighting the need to raise awareness of autism, enable parents to speak openly, and ensure appropriate professional services and interventions are available
From trusted intruder to real collaborator
While policy efforts to promote health through integration across sectors are not new, the 2022 UK Health and Care Act formalised Integrated Care Systems (ICSs) as legal entities with statutory powers in England. This includes a legal responsibility to commission adequate palliative and end-of-life care services, including bereavement support, for the communities they serve. Cross-sector partnerships that leverage community assets are recommended…
The grief exists in a bubble that the rest of the world doesn't see
People bereaved during the Covid-19 pandemic experienced profoundly altered death, mourning and grieving practices. Worsened grief outcomes have been widely reported but less is known about how people coped during these unprecedented times. Using reflexive thematic analysis critically informed by theories of biographical disruption and meaning-making, we analysed 39 interview transcripts from 24 people bereaved during the pandemic in the UK. We d…
Palliative care
Stressors and Resources of Caregivers of Patients With Incurable Progressive Illness in Sub-Saharan Africa
Family caregivers are central to palliative care in sub-Saharan Africa. Yet although supporting caregivers requires a comprehensive understanding of caregiver burden, there has been little research into this topic in Africa. Using the Stress Process Model to investigate the burden experienced by caregivers in South Africa and Uganda, we interviewed 37 caregivers and analyzed the data thematically. Caregivers' primary stressors related to day-to-d…
Conducting experimental research in marginalised populations
Experimental studies to test interventions for people living with HIV in low- and middle-income countries are essential to ensure appropriate and effective clinical care. The implications of study participation on outcome data in such populations have been discussed theoretically, but rarely empirically examined. We aimed to explore the effects of participating in a randomised controlled trial conducted in an HIV clinic in Mombasa, Kenya. We repo…
Measuring health-related quality of life in patients with conservatively managed stage 5 chronic kidney disease
This small study of patients with conservatively managed stage 5 CKD found that only the summary measures of SF-36 and 2 of its 8 scales can be used to assess changes in HRQoL over time. These findings suggest that in this population, alternative HRQoL assessment tools should be considered for future studies
You are labelled by your children’s disability’ – A community-based, participatory study of stigma among Somali parents of children with autism living in the United Kingdom
Findings inform support for this community, highlighting the need to raise awareness of autism, enable parents to speak openly, and ensure appropriate professional services and interventions are available
Effect of participation in a randomised controlled trial of an integrated palliative care intervention on HIV-associated stigma
We conducted in Kenya a mixed-methods randomised controlled trial (RCT) of a nurse-led palliative care intervention integrated with anti-retroviral therapy (ART) provision for the management of HIV. Here we report qualitative findings showing increased resistance to HIV-associated stigma among trial participants. A mixed method design was chosen to enable identification of the active ingredients of the intervention and exploration of participants…
Uncertainty and Covid-19
As if writing prophetically about the global Covid-19 pandemic, in 1984 Eddy suggested, “Uncertainty creeps into medical practice through every pore. Whether a physician is defining a disease, making a diagnosis, selecting a procedure, observing outcomes, assessing probabilities, assigning preferences, or putting it all together, he (or she) is walking on very slippery terrain” 1. Covid-19 has rapidly become a disease associated with unbridled un…
How do Funeral Practices Impact Bereaved Relatives' Mental Health, Grief and Bereavement? A Mixed Methods Review with Implications for Covid-19
Those who are bereaved during the current COVID-19 pandemic are subject to restrictions on funeral sizes and practices. We conducted a rapid review synthesising the quantitative and qualitative evidence regarding the effect of funeral practices on bereaved relatives’ mental health and bereavement outcomes. Searches of MEDLINE, PsycINFO, KSR Evidence, and COVID-related resources were conducted. 805 records were screened; 17 studies of variable qua…
Expectations of a new opt‐out system of consent for deceased organ donation in England
INTRODUCTION: In 2020 England moved to an opt-out deceased donation law. We aimed to investigate the views of a mixed stakeholder group comprising people with kidney disease, family members and healthcare practitioners towards the change in legislation. We investigated the expected impacts of the new legislation on deceased-donor and living-donor transplantation, and views on media campaigns regarding the law change. METHODS: We undertook in-dept…
Factors Associated With Higher Levels of Grief and Support Needs Among People Bereaved During the Pandemic
We identified factors associated with higher levels of grief and support needs among 711 people bereaved during the COVID-19 pandemic in the UK (deaths 16 March 2020-2 January 2021). An online survey assessed grief using the Adult Attitude to Grief (AAG) scale, which calculates an overall index of vulnerability (IOV) (range 0-36), and practical and emotional support needs in 13 domains. Participants' mean age was 49.5 (SD 12.9); 628 (88.6%) femal…
Prolonged grief during and beyond the pandemic
Background: The COVID-19 pandemic has been a devastating and enduring mass-bereavement event, with uniquely difficult sets of circumstances experienced by people bereaved at this time. However, little is known about the long-term consequences of these experiences, including the prevalence of Prolonged Grief Disorder (PGD) and other conditions in pandemic-bereaved populations. Methods: = 185) months post-bereavement. Using measures of Prolonged Gr…
Treatment Decision-Making in Myocardial Infarction for People With Advanced Kidney Disease
Background: People with chronic kidney disease (CKD) have significantly higher morbidity and mortality following myocardial infarction (MI) than the general population. Despite this, they are less likely to receive invasive management and guideline-directed medications than those without kidney disease. It is unclear why this treatment variation exists and whether or not it reflects equal and appropriate access to care for the high-risk CKD popul…
The IN-Fakt Study Protocol
Background: In the UK 1500 kidney transplants fail each year. 2% of living-donor transplants and 5% of deceased-donor transplants fail within a year of transplantation. Many decisions need to be made when a kidney transplant fails, including whether the transplant should be removed, and which immunosuppression medication should be stopped. There is limited evidence on which to base these decisions. We do not understand how decisions are made in t…
The system doesn’t really cater for the trauma that Black people have experienced” – Experiences of grief and bereavement in Black British and Black Caribbean heritage communities in England
People from Black and other minoritized ethnic communities are known to experience health and social care inequities, including barriers to accessing bereavement support. However, bereavement experiences and support needs in different population groups are poorly understood. This qualitative, co-produced study aimed to explore experiences of grief and bereavement among people of Black British and Black Caribbean heritage in England. Through commu…
From trusted intruder to real collaborator
While policy efforts to promote health through integration across sectors are not new, the 2022 UK Health and Care Act formalised Integrated Care Systems (ICSs) as legal entities with statutory powers in England. This includes a legal responsibility to commission adequate palliative and end-of-life care services, including bereavement support, for the communities they serve. Cross-sector partnerships that leverage community assets are recommended…
The grief exists in a bubble that the rest of the world doesn't see
People bereaved during the Covid-19 pandemic experienced profoundly altered death, mourning and grieving practices. Worsened grief outcomes have been widely reported but less is known about how people coped during these unprecedented times. Using reflexive thematic analysis critically informed by theories of biographical disruption and meaning-making, we analysed 39 interview transcripts from 24 people bereaved during the pandemic in the UK. We d…
Support needs, support use and perceived helpfulness of support in a cohort of people bereaved during the Covid-19 pandemic
Background: The negative impacts of the COVID-19 pandemic on grief outcomes are well documented. However, less is known about the evolving support needs of people bereaved during this time, what support they used and, crucially, how this support helped (or hindered) their coping, with applicability to contemporary bereavement support contexts. Methods: = 185) months post-bereavement. Support needs and support use were assessed at all time points,…
Medicine (13 obras) · Psychology (11 obras) · Nursing (7 obras) · Disease (6 obras) · Family medicine (6 obras) · Grief, Bereavement, and Mental Health (6 obras) · Grief (5 obras) · Health care (5 obras) · Internal Medicine (5 obras) · Palliative Care and End-of-Life Issues (5 obras)