Stressors and Resources of Caregivers of Patients With Incurable Progressive Illness in Sub-Saharan Africa

Dados Bibliográficos

ID4637486
AutoresJocelyn Streid (0000-0001-5659-1258, King’s College London, London, United Kingdom), Richard Harding (0000-0002-3839-9366), Godfrey Agupio (Hospice Africa Uganda, Kampala, Uganda), Natalya Dinat (University of the Witwatersrand, Soweto, South Africa), Julia Downing (0000-0002-3450-785X, African Palliative Care Association, Kampala, Uganda), Liz Gwyther (0000-0001-7602-6168, Hospice Palliative Care Association of South Africa, Cape Town, Western Cape, South Africa), Barbara Ikin (South Coast Hospice, KwaZulu Natal, South Africa), Thandi Mashao (University of Cape Town, Cape Town, Western Cape, South Africa), Keletso Mmoledi (0009-0009-5597-1182, University of the Witwatersrand, Soweto, South Africa), Anthony P Moll (Philanjalo Hospice, Tugela Ferry, South Africa), Lydia Mpanga Sebuyira (Hospice Africa Uganda, Kampala, Uganda), Irene J Higginson (0000-0002-3687-1313, King’s College London, London, United Kingdom), Lucy Selman (King’s College London, London, United Kingdom), Lucy E Selman (0000-0001-5747-2699, King's College London)
Ano2014
Volume24
Fascículo3
Páginas317-328
Data de publicação2014-03-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoQualitative Health Research (JOURNAL)
Identificadores do periódicoISSN: 1049-7323 • E-ISSN: 1552-7557
EditoraSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732314523682
PMID24583654
OpenAlexW2123218764
IdiomaEN
Citações recebidas9
Referências citadas24

Family caregivers are central to palliative care in sub-Saharan Africa. Yet although supporting caregivers requires a comprehensive understanding of caregiver burden, there has been little research into this topic in Africa. Using the Stress Process Model to investigate the burden experienced by caregivers in South Africa and Uganda, we interviewed 37 caregivers and analyzed the data thematically. Caregivers' primary stressors related to day-to-day patient care and emotional support; secondary stressors included financial hardship, family responsibilities, and social isolation. Caregivers' social, relational, spiritual, and psychological resources mediated the effects of these stressors. Strengthening one resource strengthened others, but the failure of one resource hindered other resources, exacerbating burden. In providing caregiver support, policymakers and service providers should focus on enhancing caregivers' resources as well as alleviating their stressors

Caregiver burden · Disease · Family caregivers · Palliative care · Psychotherapist · Social support · Stressor · Clinical Psychology · Family and Patient Care in Intensive Care Units · Family Support in Illness · Medicine · Nursing · Palliative Care and End-of-Life Issues · Psychology · Gerontology