Parental illness work across the attention deficit hyperactivity disorder diagnostic journey
Dados Bibliográficos
| ID | 2250397 |
|---|---|
| Autores | Tom Nicholson (0000-0003-3211-5788, Faculty of Health & Life Sciences Northumbria University Newcastle UK, autor correspondente), Richard Lee (0000-0002-2196-4859, Faculty of Health & Life Sciences Northumbria University Newcastle UK) |
| Ano | 2024 |
| Volume | 46 |
| Fascículo | 8 |
| Páginas | 1647-1667 |
| Data de publicação | 2024-11-01 |
| Peer Reviewed | Sim |
| Open Access | Sim |
| Tipo | ARTICLE |
| Periódico | Sociology of Health & Illness (JOURNAL) |
| Identificadores do periódico | ISSN: 0141-9889 • E-ISSN: 1467-9566 |
| Editora | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/1467-9566.13817 |
| PMID | 39023845 |
| OpenAlex | W4400775569 |
| Idioma | EN |
| Referências citadas | 81 |
The process of referral, assessment, and diagnosis of attention deficit hyperactivity disorder (ADHD) within the UK is often protracted. Given that parents are frequently the instigators of the diagnostic process, understanding the experience of parents is important. Drawing on findings from a longitudinal study, this article explores how the parental experience of the ADHD diagnostic journey includes three significant and distinct forms of 'illness work'. Twenty-one semi-structured serial interviews were conducted over a 2-year period with seven parents of children on the ADHD diagnostic journey in North East England. We present three significant forms of parental illness work: (1) The 'diagnostic quest', parental work recognising and fighting for their children's needs and selfhood, seeking diagnosis and engaging with systems, (2) 'self-biographical illness work', the personal parental biographical response to the diagnostic journey and (3) 'child biographical illness work and recontextualizing the child', parental biographical adjustment and recontextualisation of their children. We advance Rasmussen et al.'s (2021) model by demonstrating its usefulness in understanding how parents with a personal ADHD diagnosis experience biographical disruption or cohesion in response to their children's diagnosis. That a child's diagnosis leads parents with ADHD to experience a self-biographical cohesive or disruptive response is a unique and significant finding
Developmental psychology · Family medicine · Psychiatry · Referral · Attention Deficit Hyperactivity Disorder · Clinical Psychology · Family and Disability Support Research · Infant Development and Preterm Care · Medicine · Psychology
Diagnostic and Statistical Manual of Mental Disorders
The Medicalization of Society
Qualitative Data Analysis
The World Federation of ADHD International Consensus Statement
The Worldwide Prevalence of ADHD
The Ethics of Care, Dependence, and Disability
Sensitive Child, Disturbed Kid
The Cerebral Subject and the Challenge of Neurodiversity
Evidence-based activism
The sociology of chronic illness
The Rhetorical Construction of the AD/HD Subject
Liminal still? Unmothering disabled children
Being a parent of an adult son or daughter with severe mental illness receiving professional care
Unending Work and Care
Sudden illness and biographical flow in narratives of stroke recovery
Citing conduct, individualizing symptoms
Self-treatment and its discussion in medical consultations
Biographical disruption or cohesion
Doing their jobs
Goals for living with a chronic condition
I'm a normal autistic person, not an abnormal neurotypical
Managing chronic illness at home
The Cultural Contradictions of Motherhood
The Cultural Contradictions of Motherhood
From Hyperactive Children to ADHD Adults
The Management of Courtesy Stigma in the Lives of Families With Teenagers With ADHD
Medicalization and Social Control
Chronic illness as biographical disruption
Loss of self
Parenting work and autism trajectories of care
The meaning of a label for teenagers negotiating identity
Behaviour change and social blinkers? The role of sociology in trials of self-management behaviour in chronic conditions
Developing biographies
Knowledgeable narratives
| Velocidade de citação | historical |
|---|---|
| Altamente citado | Não |