Immigrants to Health
Negotiating Liminality and Belonging with Cystic Fibrosis in Germany
Dados Bibliográficos
| ID | 4564322 |
|---|---|
| Autores | Stefan Reinsch (0000-0002-3609-5115, Brandenburg Medical School - Theodor Fontane, autor correspondente) |
| Ano | 2025 |
| Volume | 44 |
| Fascículo | 5 |
| Páginas | 457-472 |
| Data de publicação | 2025-07-04 |
| Peer Reviewed | Sim |
| Open Access | Sim |
| Tipo | ARTICLE |
| Periódico | Medical Anthropology (JOURNAL) |
| Identificadores do periódico | ISSN: 0145-9740 • E-ISSN: 1545-5882 |
| Editora | Informa UK Limited (PUBLISHER • GB) |
| DOI | 10.1080/01459740.2025.2507972 |
| PMID | 40407871 |
| OpenAlex | W4410629126 |
| Idioma | EN |
| Citações recebidas | 1 |
| Referências citadas | 50 |
Cystic fibrosis is a rare genetic disease that significantly reduces life expectancy. Therapy can delay the progression of the disease, but it is onerous, time-consuming and makes the disease more visible, creating a sense of not belonging to the healthy peer group that young people desperately want. Recent, very expensive advances in therapeutic interventions have dramatically reduced both the therapeutic load and the visibility of the condition. Drawing on a long-term ethnographic study in Germany, I explore how this changes the ways people with cystic fibrosis negotiate belonging, which is experienced as a metaphorical immigration into the world of the healthy
Cystic fibrosis · Disease · Environmental health · Ethnography · Immigration · Life expectancy · Liminality · Negotiation · Pathology · Political science · Psychological intervention · Sociology · Anthropology · Children's Rights and Participation · Cystic Fibrosis Research Advances · Internal Medicine · Medicine · Nursing · Syphilis Diagnosis and Treatment
Disability Theory
Staring How We Look
Adherence as therapeutic citizenship
Beyond medicalisation
Stigma
When chronicity meets cyclicity
Feminist, Queer, Crip
Focus Groups as Qualitative Research
Sorting Things Out
Disability Rights and Wrongs Revisited
A Review of Narrative Ethics
The social model of disability
Notes of despair and consciousness
Young people living with cystic fibrosis
Liminal homes
Extraordinary Bodies
Misfits
The Weariness of Hoping
Epistemic and institutional recognition work in changing conditions of social visibility
All at Sea
I've Never Not Had it So I Don't Really Know What it's Like Not to
Epistemologies of Living With and Treating Rare Metabolic Disorders
Affective Economies
Essays on the Anthropology of Reason
The Constant Comparative Method of Qualitative Analysis
Snowball Sampling
Visibility
Disability Worlds
Disability Expertise
Disability/Anthropology
Illnesses you have to fight to get
| Obras citantes distintas | 1 |
|---|---|
| Citações por ano | 1 |
| Intervalo de citações | 2025 - 2025 (1) |
| Velocidade de citação | recent |
| Altamente citado | Não |
| Tipos de citação | Neutras: 1 |