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I've Never Not Had it So I Don't Really Know What it's Like Not to

Nondifference and Biographical Disruption Among Children and Young People With Cystic Fibrosis

Dados Bibliográficos

ID4633600
AutoresBrian Williams (0000-0002-3174-4876, University of Dundee, Dundee, United Kingdom,, autor correspondente), Joanne Corlett (0000-0001-5661-5969, University of St Andrews, St Andrews, United Kingdom), Jon S Dowell (University of Dundee, Dundee, United Kingdom), Jon Dowell (0000-0001-5500-2706, University of Dundee), Joanne Coyle (0000-0002-4630-0266, University of Dundee, Dundee, United Kingdom), Somnath Mukhopadhyay (0000-0002-3688-5512, Brighton & Sussex Medical School, Brighton, United Kingdom)
Ano2009
Volume19
Fascículo10
Páginas1443-1455
Data de publicação2009-10-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoQualitative Health Research (JOURNAL)
Identificadores do periódicoISSN: 1049-7323 • E-ISSN: 1552-7557
EditoraSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732309348363
PMID19805806
OpenAlexW2110946771
IdiomaEN
Citações recebidas28
Referências citadas46

The relevance of biographical disruption and loss of self for children and young people is unclear, particularly in cases of congenital illness such as cystic fibrosis, where no prior period of wellness, stability, or perceived normality might exist. We explored the meaning, importance, and forms of maintenance of ideas of normality among 32 children and young people with cystic fibrosis. We examine the ways in which normalcy is produced, maintained, and threatened, and discuss the implications for the applicability and relevance of these traditional sociological concepts. Analysis of children's and young people's accounts resulted in a conceptualization of four forms of normalcy based on personal and social definitions and audiences. Biographical disruption appeared relevant but in a more nuanced form than its usual conceptualization when applied to adult populations. Maintaining normality within the family resulted in continual biographical revision in anticipation of future illness trajectory and life course

Conceptualization · Developmental psychology · Normality · Psychotherapist · Family and Disability Support Research · Family Support in Illness · Identity, Memory, and Therapy · Psychology · Social Psychology

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Obras citantes distintas28
Citações por ano1,87
Intervalo de citações2011 - 2025 (15)
Velocidade de citaçãorecent
Altamente citadoNão
Tipos de citaçãoNeutras: 28
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