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In their Own Words

The Lived Experience of Pediatric Liver Transplantation

Dados Bibliográficos

ID5454702
AutoresBarbara V Wise (University of Pittsburgh), Barbara Wise (0000-0002-0776-3487, University of Pittsburgh, autor correspondente)
Ano2002
Volume12
Fascículo1
Páginas74-90
Data de publicação2002-01-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoQualitative Health Research (JOURNAL)
Identificadores do periódicoISSN: 1049-7323 • E-ISSN: 1552-7557
EditoraSAGE Publications Inc (PUBLISHER)
DOI10.1177/104973230201200106
PMID11797927
OpenAlexW2139026078
IdiomaEN
Citações recebidas12
Referências citadas20

Liver transplantation is the treatment of choice for children with end-stage liver disease. Few studies have examined the experience of transplantation from the child's perspective. Using a phenomenological approach establishes a safe environment for children to reflect on their lives as transplant recipients. The aim of this study was to uncover the experiences of pediatric liver transplant recipients from the period prior to transplantation, through surgery, and beyond. In-depth conversations with 9 pediatric recipients were carried out. Phenomenological methodology guided the data collection and analysis. The children faced many challenges, including surviving a life-threatening illness while accomplishing normal developmental tasks. The predominant theme was striving for normalcy in their lives

Developmental psychology · Disease · Interpretative phenomenological analysis · Lived experience · Liver transplantation · Pathology · Psychotherapist · Qualitative research · Sociology · Childhood Cancer Survivors' Quality of Life · Medicine · Organ Transplantation Techniques and Outcomes · Pediatric Hepatobiliary Diseases and Treatments · Psychology · Pediatrics · Surgery · Transplantation

  • What are they Saying

    Othello Childre, Othello Childress•2006

  • Learning between schools and hospitals – young people and a curriculum of (dis)connection

    Mary Dixon•International Journal of…•2012

  • Organ Transplant Recipients' Experiences of Physical Activity

    Open Access•Gareth Wiltshire, Nicola J Clarke et al.•Qualitative Health Research•2021

  • O impacto do transplante hepático infantil na dinâmica familiar

    Open Access•Márcia Camaratta Anton, César Augusto Piccinini•Psicologia Reflexão e Crítica•2010

  • Getting on with life’

    Peter Ferguson, Hannah Walker et al.•International Journal of…•2012

  • The story they want to tell, and the visual story as evidence

    Lyn Yates•Visual Studies•2010

  • Grief-Peer Dynamics

    Open Access•Jennifer E Thannhauser•Qualitative Health Research•2009

  • Impact of age at onset for children with renal failure on education and employment transitions

    Open Access•Helen Lewis, Simon M Weldehaimanot et al.•Health An Interdisciplinary…•2015

  • The Stories of Young People Living With a Liver Transplant

    Open Access•Rachel M Taylor, Linda S Franck et al.•Qualitative Health Research•2010

  • Getting Used to It

    Open Access•Janet L Stewart•Qualitative Health Research•2003

  • Normalization Strategies of Children With Asthma

    Open Access•Jennifer L P Protudjer, Anita L Kozyrskyj et al.•Qualitative Health Research•2009

  • I've Never Not Had it So I Don't Really Know What it's Like Not to

    Open Access•Brian Williams, Joanne Corlett et al.•Qualitative Health Research•2009

  • The Virtues In Medical Practice

    Edmund D Pellegrino, David C Thomasma•The virtues in medical practice•1993

  • Interpretive Phenomenology

    Patricia Benner•Interpretive Phenomenology•1994

  • The relevance of the beautiful and other essays

    Richard Shusterman•History of European Ideas•1988

  • Philosophical Hermeneutics

    Hans-Georg Gadamer•Philosophical Hermeneutics•2008

  • The Triggers of Heightened Parental Uncertainty in Chronic, Life-Threatening Childhood Illness

    Open Access•Marsha H Cohen•Qualitative Health Research•1995

  • Managing Life with a Chronic Condition

    Open Access•Chris A Robinson, Carole A Robinson•Qualitative Health Research•1993

  • Qualitative Content Analysis

    Open Access•David L Morgan•Qualitative Health Research•1993

Obras citantes distintas12
Citações por ano0,52
Intervalo de citações2003 - 2021 (19)
Velocidade de citaçãohistorical
Altamente citadoNão
Tipos de citaçãoNeutras: 8
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