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The Development of an Impact-on-Family Scale

Preliminary Findings

Dados Bibliográficos

ID9104561
AutoresRuths E K Stein (Albert Einstein College of Medicine, autor correspondente), Catherine Kohler Riessman (Smith College)
Ano1980
Volume18
Fascículo4
Páginas465-472
Data de publicação1980-04-01
Peer ReviewedSim
Open AccessNão
TipoARTICLE
PeriódicoMedical Care (JOURNAL)
Identificadores do periódicoISSN: 0025-7079 • E-ISSN: 1537-1948
EditoraOvid Technologies (Wolters Kluwer Health) (PUBLISHER)
DOI10.1097/00005650-198004000-00010
PMID7401703
OpenAlexW2034122856
IdiomaEN
Citações recebidas36
Referências citadas5

While descriptions of the effects of chronic childhood illness on the family appear in the literature, there have been few attempts to develop a formal measure of this impact. As part of a longitudinal study of chronic illness in childhood, the development of a measure was undertaken. The conceptual framework and methodology employed in scale development are described. A 24-item scale is presented which elicits variability in response and which is internally consistent. A factor analysis reveals that 4 dimensions of impact are contained in the measure: Financial, Social/Familial, Personal Strain, and Mastery. Psychometric data were derived from administration of the instrument to 100 mothers of chronically ill children. The potential usefulness of the scale in health research is discussed

Developmental psychology · Measure (data warehouse) · Psychometrics · Scale (ratio) · Adolescent and Pediatric Healthcare · Childhood Cancer Survivors' Quality of Life · Clinical Psychology · Computer Science · Family and Disability Support Research · Psychology

  • Parental Perceptions of the Impact of a Child’s Complex Chronic Condition

    Open Access•Sandra Portela Alves, Ana Carolina Braz et al.•International Journal of…•2024

  • Preterm low-birthweight infants

    Susan Gennaro•Family & Community Health•1995

  • The Impact of Chronic Diseases

    Arianne N Baanders, Monique Heijmans et al.•Family & Community Health•2007

  • Applicability of the Impact on Family Scale for Assessing Families with Behaviorally Difficult Children

    Open Access•Lisa B Sheeber, Lisa Sheeber et al.•Psychological Reports•1992

  • Perceptions of Parenting Stress and Family Relations by Fathers of Children Evaluated for Organ Transplantation

    Open Access•James R Rodrigues, James R Rodrigue et al.•Psychological Reports•1996

  • Maternal Psychological Distress and Parenting Stress After the Birth of a Very Low-Birth-Weight Infant

    Lynn T Singer•JAMA•1999

  • The Contribution of Low Birth Weight to Infant Mortality and Childhood Morbidity

    Marie C McCormick•New England Journal of Medicine•1985

  • The effect of the environment on participation of children and youth with disabilities

    Dana Anaby, China Hand et al.•Disability and Rehabilitation•2013

  • Development of a health-related quality of life instrument for use in children with spina bifida

    Open Access•Patricia C Parkin, H M Kirpalani et al.•Quality of Life Research•1997

  • Development of a tool to measure the life situation of parents of children with cancer

    Open Access•Karin Enskär, M Carlsson et al.•Quality of Life Research•1997

  • Questions never asked. Positive family outcomes of extremely premature childbirth

    Open Access•Hanne Lou, Birthe D Pedersen et al.•Quality of Life Research•2009

  • The Development and Validation of the Family Reported Outcome Measure (From-16)© to Assess the Impact of Disease on the Partner or Family Member

    Open Access•Catherine Jane Golics, Mohammad Khurshid Azam Basra et al.•Quality of Life Research•2013

  • Effect of atomoxetine on quality of life and family burden

    Open Access•Peter M Wehmeier, Alexander Schacht et al.•Quality of Life Research•2010

  • Acute and long-term psychosocial consequences in grandparents when a grandchild is diagnosed with cancer – the GROKids Project

    Open Access•Gisela Michel, Peter Francis Raguindin et al.•BMC Psychology•2023

  • Measuring hemophilia caregiver burden

    Open Access•Carolyn E Schwartz, Victoria Powell et al.•Quality of Life Research•2017

  • Predicting moderate improvement and decline in pediatric asthma quality of life over 24 months

    Open Access•Robert D Annett, Bruce G Bender et al.•Quality of Life Research•2010

  • Parental Burden and Quality of Life in 5q-SMA Diagnosed by Newborn Screening

    Open Access•Heike Kölbel, Laura Modler et al.•Children•2022

  • Reliability in the ratings of quality of life between parents and their children of school age with cerebral palsy

    Open Access•Annette Majnemer, Michael Shevell et al.•Quality of Life Research•2008

  • Consultative Care Coordination Through the Medical Home for CSHCN

    Open Access•Janet E Farmer, Mary J Clark et al.•Maternal and Child Health Journal•2010

  • Measuring quality of life in the parents of children with asthma

    Open Access•E F Juniper, Gordon Guaytt et al.•Quality of Life Research•1996

  • Research Consortium on Children with Chronic Conditions (RCCCC)

    Open Access•I B Pless, Ruth E K Stein et al.•Maternal and Child Health Journal•2009

  • A Randomized Clinical Trial of the Building on Family Strengths Program

    Open Access•Gail M Kieckhefer, Cristine M Trahms et al.•Maternal and Child Health Journal•2013

  • Patient-reported outcomes measure for patients with cleft palate

    Open Access•Wenbo Xia, Meijun Du et al.•Frontiers in Public Health•2024

  • Effects of Social Counseling on Parents of a Child With Cancer

    Open Access•Sigrid Haunberger, Cornelia Rüegger et al.•Research on Social Work Practice•2020

  • Keeping Cystic Fibrosis in its Place

    Open Access•Francisca Quadros, Joana Roque et al.•Contemporary Family Therapy•2026

  • Measuring children’s participation in recreation and leisure activities

    Open Access•G A King, Gillian King et al.•Child Care Health and Development•2006

  • Supporting and enhancing the adoption of children with developmental disabilities

    Open Access•Anita Lightburn, Barbara A Pine•Children and Youth Services Review•1996

  • Neurodevelopmental impairment

    Open Access•Bonnie E Stephens, Carla Bann et al.•Infant Mental Health Journal•2008

  • The PedsQL

    Kun-Sun Chan, Kitty S Chan et al.•Medical Care•2005

  • Child Attention Deficit Hyperactive Disorder Co morbidities on Family Stress

    Open Access•Desiree Silva, Stephen Houghton et al.•Community Mental Health Journal•2014

  • Scaling and attainment of goals in family-focused early intervention

    Open Access•Rune J Simeonsson, Donald B Bailey et al.•Community Mental Health Journal•1991

  • The Consequences of Caring

    Open Access•Leiter, Valerie Leiter et al.•Journal of Family Issues•2004

  • Uncertainty and its relation to the psychological and social correlates of chronic illness in children

    Open Access•Dorothy Jones Jessop, Ruth E K Stein•Social Science & Medicine•1985

  • A measure of family disruption for use in chickenpox and other childhood illnesses

    Open Access•Stephen P Mckenna, Sonja M Hunt•Social Science & Medicine•1994

  • Loneliness and social support of mothers of chronically ill children

    Open Access•Victor Florian, Tamar Krulik•Social Science & Medicine•1991

  • What diagnosis does not tell

    Open Access•Ruth E K Stein, Dorothy Jones Jessop•Social Science & Medicine•1989

  • Passage through Crisis

    Martha E Wadsworth, M E J Wadsworth et al.•Contemporary Sociology A Journal…•1992

  • The psycho-social impact of hemophilia on the patient and his family

    Open Access•Lee Salk, Margaret Hilgartner et al.•Social Science & Medicine (1967•1972

  • Coefficient alpha and the internal structure of tests

    Open Access•Lee J Cronbach•Psychometrika•1951

  • Passage Through Crisis

    Frances Cooke Macgregor, Fred Davis•American Sociological Review•1964

  • Schizophrenics in the Community

    Betty E Cogswell, Benjamin Pasamanick et al.•Social Forces•1968

Obras citantes distintas36
Citações por ano0,88
Intervalo de citações1985 - 2026 (42)
Velocidade de citaçãocurrent
Altamente citadoNão
Tipos de citaçãoNeutras: 34
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