Capacity Building for Rare Bleeding Disorders in the Remote Commonwealth of the Northern Mariana Islands

Bibliographic Data

ID11027158
AuthorsTiffany F Lin (Tiffany F. Lin and James N. Huang are with the Department of Pediatrics, and the Benioff Children’s Hospital, University of California, San Francisco. Tiffany F. Lin is also with Commonwealth Healthcare Corporation, Saipan, Northern Mariana Islands. Pam Carhill is with Marianas Health, Saipan, Northern Mariana Islands. Judith R. Baker is with the Center for Inherited Blood Disorders, Orange, CA and the Division of Pediatric Hematology/Oncology, University of California, Los Angeles.), Tiffany Lin (Northern Marianas College), Pam Carhill (Tiffany F. Lin and James N. Huang are with the Department of Pediatrics, and the Benioff Children’s Hospital, University of California, San Francisco. Tiffany F. Lin is also with Commonwealth Healthcare Corporation, Saipan, Northern Mariana Islands. Pam Carhill is with Marianas Health, Saipan, Northern Mariana Islands. Judith R. Baker is with the Center for Inherited Blood Disorders, Orange, CA and the Division of Pediatric Hematology/Oncology, University of California, Los Angeles.), James N Huang (0000-0002-1808-0358, Tiffany F. Lin and James N. Huang are with the Department of Pediatrics, and the Benioff Children’s Hospital, University of California, San Francisco. Tiffany F. Lin is also with Commonwealth Healthcare Corporation, Saipan, Northern Mariana Islands. Pam Carhill is with Marianas Health, Saipan, Northern Mariana Islands. Judith R. Baker is with the Center for Inherited Blood Disorders, Orange, CA and the Division of Pediatric Hematology/Oncology, University of California, Los Angeles.), Judith Baker (0000-0002-7850-0027, Northern Marianas College), Judith R Baker (Tiffany F. Lin and James N. Huang are with the Department of Pediatrics, and the Benioff Children’s Hospital, University of California, San Francisco. Tiffany F. Lin is also with Commonwealth Healthcare Corporation, Saipan, Northern Mariana Islands. Pam Carhill is with Marianas Health, Saipan, Northern Mariana Islands. Judith R. Baker is with the Center for Inherited Blood Disorders, Orange, CA and the Division of Pediatric Hematology/Oncology, University of California, Los Angeles.)
Year2016
Volume106
Issue4
Pages658-661
Publication date2016-04-01
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueAmerican Journal of Public Health (JOURNAL)
Journal identifiersISSN: 0090-0036 • E-ISSN: 1541-0048
PublisherAmerican Public Health Association (PUBLISHER • US)
DOI10.2105/ajph.2016.303093
PMID26890163
OpenAlexW2286139891
LanguageEN
References cited9

The US Pacific Commonwealth of the Northern Mariana Islands is home to an underserved hemophilia population. We developed a strategy in 2014 to build sustainable island-wide medical, patient and family, and community support for this rare disease. Collaboration with regional bleeding disorder leadership galvanized a weeklong conference series. More than 200 participants attended discipline-specific seminars; pre–post test evaluations documented educational benefits. This time-concentrated island-wide education intervention promoted the rapid identification of new cases and stimulated sustainable bleeding disorder care development. The education series proved feasible, efficient, and effective in increasing knowledge and reducing patient and professional isolation, serving as a model for improving capacity for orphan diseases (those that affect fewer than 200 000 people in any particular country) in underresourced areas

Archaeology · Archipelago · Commonwealth · Economic growth · Environmental health · Family medicine · Geography · Intervention (counseling) · Medical education · Population · Hemophilia Treatment and Research · Medicine · Nursing · Platelet Disorders and Treatments · Gerontology

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