Redressing Past Wrongs
Changing the Common Rule to Increase Minority Voices in Research
Bibliographic Data
| ID | 11029934 |
|---|---|
| Authors | William C Rencher (William C. Rencher is with Georgia Watch, Atlanta, GA. Leslie E. Wolf is with College of Law, Center for Law, Health, and Society, Georgia State University, Atlanta.), Leslie E Wolf (0000-0002-4660-8383, William C. Rencher is with Georgia Watch, Atlanta, GA. Leslie E. Wolf is with College of Law, Center for Law, Health, and Society, Georgia State University, Atlanta.) |
| Year | 2013 |
| Volume | 103 |
| Issue | 12 |
| Pages | 2136-2140 |
| Publication date | 2013-12-01 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | American Journal of Public Health (JOURNAL) |
| Journal identifiers | ISSN: 0090-0036 • E-ISSN: 1541-0048 |
| Publisher | American Public Health Association (PUBLISHER • US) |
| DOI | 10.2105/ajph.2013.301356 |
| PMID | 24134384 |
| PMCID | PMC3828970 |
| OpenAlex | W2110349604 |
| Language | EN |
| Citations received | 10 |
| References cited | 23 |
Numerous diseases disproportionately affect African Americans across socioeconomic, age, gender, and geographic groups. Despite the need for research into these disparities, African Americans are often underrepresented in research. The Tuskegee Syphilis Study receives much of the blame for this problem, but other contributing factors have also been identified. To date, government policies seeking to increase African American participation have had limited success, and recently proposed changes to the Common Rule do not address this problem. Therefore, we have proposed 3 changes: treating racial minorities as vulnerable, requiring community consultation in minority research, and increasing minority representation on institutional review boards. Coupled with other efforts, these changes could help increase minority representation in researching health disparities
Affect (linguistics) · Blame · Criminology · Environmental health · Ethnic group · Government (linguistics) · Health care · Health equity · Minority group · Political science · Politics · Population · Race (biology) · Representation (politics) · Sexual minority · Sexual orientation · Socioeconomic status · Sociology · Ethics in Clinical Research · Focus Groups and Qualitative Methods · Gender Studies · Law · Medicine · Psychology · Social Media in Health Education · Social Psychology · Gerontology
Aarc Standards for Multicultural Research
Building and Sustaining a Community Advisory Board of African American Older Adults as the Foundation for Volunteer Research Recruitment and Retention in Health Sciences
Hypertension Prevalence, Awareness and Control Levels among Ghawarna
Attitudes and experiences regarding genetic research among persons of African descent
Cultivating Relationships as a Community-Based Recruitment Strategy in Transdisciplinary Aging Research
Engaging and Recruiting Black Men With Stroke or TIA in a Randomized Clinical Trial Conducted
Factors associated with participation by African Americans in a study of the genetics of glaucoma
Proactive Recruitment of Older African-Americans for Alzheimer’s Research with Brain Donation
Public Health’s Approach to Systemic Racism
Analyzing the Ethical Implications of Research Using Leaked Data
On the Expressive Function of Law
Attitudes and beliefs of african americans toward participation in medical research
A Systematic Review of Community‐Based Participatory Research to Enhance Clinical Trials in Racial and Ethnic Minority Groups
The Tuskegee Legacy Aids and the Black Community
Narrative Constructions of Health Care Issues and Policies
Identifying the “vulnerables” in biomedical research
Survey of U.S. Boards That Review Mental Health-Related Research
Challenging Assumptions About Minority Participation in US Clinical Research
Justice and Fairness in the Kennedy Krieger Institute Lead Paint Study
The Use of Blacks for Medical Experimentation and Demonstration in the Old South
Under the shadow of Tuskegee
| Unique citing works | 10 |
|---|---|
| Citations per year | 0,91 |
| Citation span | 2015 - 2026 (12) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 7 |