Carers’ experiences of timely access to and use of dementia care services in eight European countries
Bibliographic Data
Timely access to care services is crucial to support people with dementia and their family carers to live well. Carers of people with dementia (N = 390), recruited from eight countries, completed semi-structured interviews about their experiences of either accessing or not using formal care services over a 12-month period in the Access to Timely Formal Care (Actifcare) study. Participant responses were summarised using content analysis, categorised into clusters and frequencies were calculated. Less than half of the participants (42.3%) reported service use. Of those using services, 72.8 per cent reported timely access and of those not using services 67.2 per cent were satisfied with this situation. However, substantial minorities either reported access at the wrong time (27.2%), or feeling dissatisfied or mixed feelings about not accessing services (32.8%). Reasons for not using services included use not necessary yet, the carer provided support or refusal. Reasons given for using services included changes in the condition of the person with dementia, the service's ability to meet individual needs, not coping or the opportunity to access services arose. Facilitators and barriers to service use included whether participants experienced supportive professionals, the speed of the process, whether the general practitioner was helpful, participant's own proactive attitude and the quality of information received. To achieve timely support, simplified pathways to use of formal care services are needed
Business · Coping (psychology) · Dementia · Feeling · Psychiatry · Service (business) · Dementia and Cognitive Impairment Research · Geriatric Care and Nursing Homes · Intergenerational Family Dynamics and Caregiving · Medicine · Nursing · Psychology · Social Psychology
Family caregivers of people with dementia
Why caregivers of people with dementia and memory loss don't use services
Predictors of In-Home and Out-of-Home Service Use by Family Caregivers of Alzheimer's Disease Patients
A review of the factors associated with the non-use of respite services by carers of people with dementia
Living with dementia in rural and remote Scotland
Professional home care for the elderly
Revisiting the Behavioral Model and Access to Medical Care
| Unique citing works | 3 |
|---|---|
| Citations per year | 0.75 |
| Citation span | 2022 - 2026 (5) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 3 |