A Challenging Fit
Employment, Childcare, and Therapeutic Support in Families of Children With Autism Spectrum Disorders
Bibliographic Data
| ID | 11214845 |
|---|---|
| Authors | Linda Houser (0000-0002-8757-0166, Schlumberger (Ireland), corresponding author), Megan McCarthy (0000-0001-6952-9007), Lindsay Lawer, David S Mandell (0000-0001-8240-820X), David Mandell |
| Year | 2014 |
| Volume | 40 |
| Issue | 5 |
| Pages | 681-698 |
| Publication date | 2014-10-20 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Journal of Social Service Research (JOURNAL) |
| Journal identifiers | ISSN: 0148-8376 • E-ISSN: 1540-7314 |
| Publisher | Informa UK Limited (PUBLISHER • GB) |
| DOI | 10.1080/01488376.2014.930944 |
| OpenAlex | W2048632552 |
| Language | EN |
| Citations received | 8 |
| References cited | 20 |
Studies of families with children with autism spectrum disorder (ASD) have documented substantial concerns at the intersection of work and family life. Using a phenomenological study design with intensive interview and survey data from parents of 37 children with ASD diagnoses, the authors explore families’ experiences prior to, during, and soon after their child's ASD diagnosis. Drawing from parents’ narratives, the authors identify and discuss 3 obstacles to a satisfactory and sustainable degree of work–family life fit: performance pressures, demands of care coordination, and concerns about caregiver quality and accessibility. Recommendations derived from parent-reported strategies for addressing these obstacles include: improving the quality of and access to care management, developing and making accessible a variety of options for combining therapy and care, and expanding awareness of and access to family leave policies and other work flexibility options. As states and locales develop innovative care management strategies, intervention options, and family support programs, additional research is needed to assess effectiveness in reducing parental stress and enhancing well-being for children and families. This research suggests that incorporating the voices of both parents and children in future research efforts is important to a full understanding of social service system success.KEYWORDS.: Autismcaregivers/caregivingchildrendisabilityparentingsocial supportworkplace
Autism · Autism spectrum disorder · Developmental psychology · Flexibility (engineering · Intervention (counseling · Psychiatry · Psychotherapist · Quality (philosophy · Quality of life (healthcare · Variety (cybernetics · Work (physics · Autism Spectrum Disorder Research · Child Nutrition and Feeding Issues · Family and Disability Support Research · Psychology · Social Work
The contribution of psychological capital and parental age to job satisfaction
Blending Traditional and Nurturing Fathering
Brief Narrative Family Therapy and Autism Spectrum Disorder
Effects of autism spectrum disorder on parental employment in the United States
Microlearning as a Concept to Optimize Integrated Services for Racially/Ethnically Diverse Families of Autistic Children
Negotiating work and care in Chinese families of children with autism
To raise a child with autism spectrum disorder
Biographical disruption or cohesion
Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition, Text Revision (DSM-IV-TR)
Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay
Preschool and Child Care Expulsion and Suspension
Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years — Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2016
Parenting Stress in Mothers and Fathers of Toddlers with Autism Spectrum Disorders
Unanticipated Gains
Perceived Effects of Leave From Work and the Role of Paid Leave Among Parents of Children With Special Health Care Needs
Work-Family Fit
Qualitative inquiry and research design
Does Community Resource Fit Matter to Fathers
Dual-Earner Parents With Disabled Children
Communicating across the work/home border
| Unique citing works | 8 |
|---|---|
| Citations per year | 0,8 |
| Citation span | 2016 - 2026 (11) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 8 |