Genomic Research and Data-Sharing
Time to Revisit Australian Laws
Bibliographic Data
| ID | 11622500 |
|---|---|
| Authors | Steph Jowett (0000-0002-0009-628X, Queensland University of Technology), Stephanie Jowett, Elizabeth Dallaston (0000-0003-1732-3714, Queensland University of Technology), Belinda Bennett (0000-0003-0912-5662, Queensland University of Technology) |
| Year | 2020 |
| Volume | 39 |
| Issue | 2 |
| Pages | 341-369 |
| Publication date | 2020-08-19 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | The University of Queensland Law Journal (JOURNAL) |
| Journal identifiers | ISSN: 0083-4041 • E-ISSN: 1839-289X |
| Publisher | The University of Queensland Law School (PUBLISHER) |
| DOI | 10.38127/uqlj.v39i2.5031 |
| OpenAlex | W3080116881 |
| Language | EN |
| Citations received | 1 |
| References cited | 1 |
This article analyses the ethical and legal aspects of data-sharing and genomic research. It begins in Part II with an overview of the nature of genomic information, and whether it is exceptional when compared to other forms of health information. Part III considers the role of data-sharing in genomic research, with the importance of public trust in supporting genomic research considered in Part IV. The Australian regulatory framework for data-sharing in genomic research is considered in Parts V and VI, with reform options discussed in Part VII. The article concludes that advances in genomic research and the complexity of the current regulatory framework make it timely to review Australian laws to ensure that they maintain their relevance for this rapidly developing field of research
Data sharing · Genomic information · Information sharing · Relevance · Biomedical Ethics and Regulation · Ethics in Clinical Research · Prenatal Screening and Diagnostics
| Citations per year | 0.5 |
|---|---|
| Citation span | 2024 - 2024 (1) |
| Highly cited | No |