Identifying public expectations of genetic biobanks
Bibliographic Data
| ID | 20403176 |
|---|---|
| Authors | Christine Critchley (0000-0001-9376-5229, Swinburne University of Technology, corresponding author), Davidson Nicol (0000-0002-6553-2839, University of Tasmania), Rebekah Mcwhirter (0000-0002-9409-8074, University of Tasmania) |
| Year | 2017 |
| Volume | 26 |
| Issue | 6 |
| Pages | 671-687 |
| Publication date | 2017-08-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Public Understanding of Science (JOURNAL) |
| Journal identifiers | ISSN: 0963-6625 • E-ISSN: 1361-6609 |
| Publisher | SAGE Publications (PUBLISHER • US) |
| DOI | 10.1177/0963662515623925 |
| PMID | 26769748 |
| OpenAlex | W2417482206 |
| Language | EN |
| Citations received | 11 |
| References cited | 38 |
Understanding public priorities for biobanks is vital for maximising utility and efficiency of genetic research and maintaining respect for donors. This research directly assessed the relative importance the public place on different expectations of biobanks. Quantitative and qualitative results from a national sample of 800 Australians revealed that the majority attributed more importance to protecting privacy and ethical conduct than maximising new healthcare benefits, which was in turn viewed as more important than obtaining specific consent, benefit sharing, collaborating and sharing data. A latent class analysis identified two distinct classes displaying different patterns of expectations. One placed higher priority on behaviours that respect the donor ( n = 623), the other on accelerating science ( n = 278). Additional expectations derived from qualitative data included the need for biobanks to be transparent and to prioritise their research focus, educate the public and address commercialisation
Alternative medicine · Biobank · Bioinformatics · Biology · Business · Data sharing · Focus group · Political science · Public health · Public relations · Qualitative property · Qualitative research · Social science · Sociology · Biomedical Ethics and Regulation · BRCA gene mutations in cancer · Computer Science · Ethics in Clinical Research · Medicine · Psychology · Marketing
Understanding public reactions to commercialization of biobanks and use of biobank resources
Genomic Research and Data-Sharing
Informed consent for polygenic risk score test in type 2 diabetes
Australian Attitudes Towards Waivers of Consent Within the Context of Genomic Data Sharing
Trust in Centralized Large-Scale Data Repository
Examining diversity in public willingness to participate in offshore human biobanking
The effect of scientific conspiracy theories on scepticism towards biotechnologies
A systematic literature review of the ‘commercialisation effect’ on public attitudes towards biobank and genomic data repositories
Towards a trusted genomics repository
From engaging publics to engaging knowledges
Americans’ perspectives on forensic and scientific genomic biobanks
Handbook of Social Psychology
Descriptive Social Norms as Underappreciated Sources of Social Control
Understanding the impact of commercialization on public support for scientific research
Benefit sharing and biobanking in Australia
A Focus Theory of Normative Conduct
Biobank governance
A well placed trust
Neglected ethical issues in biobank management
Conceptual and methodological considerations in the study of trust and suspicion
| Citations per year | 1.1 |
|---|---|
| Citation span | 2016 - 2026 (11) |
| Highly cited | No |