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Claiming chaos narrative, emerging from silence

Bibliographic Data

ID12312607
AuthorsColleen Donnelly (0000-0002-0990-6832, University of Colorado System, corresponding author)
Year2021
Volume39
Issue1
Pages1-15
Publication date2021-10-31
Open AccessNo
TypeARTICLE
VenueDisability & Society (JOURNAL)
Journal identifiersISSN: 0968-7599 • E-ISSN: 1360-0508
PublisherTaylor & Francis (PUBLISHER • GB)
DOI10.1080/09687599.2021.1983420
OpenAlexW3209934149
LanguageEN
Citations received7
References cited12

In The Wounded Storyteller, Arthur Frank proposed three types of narrative told by people attempting to reclaim their voice and the body made alien by illness. In restitution narrative the medical community is presented as having agency. In quest narrative, the person experiencing the disease or illness has agency, and they are saddled with the imperative to inspire others. The third type, the chaos narrative, is rarely encountered by audiences because the chaos narrative is usually erased. The individual living with chronic physical or mental illness or a disability, who cannot be stoic and turn their story into a quest narrative, is rendered mute. Their stories have largely been controlled by external agents. Failure to meet normate expectations has meant rejection. How prescriptive norms arose that delegitimatized the authority of chaos narrative must be understood if authentic chaos narrative is to be spoken and written.Points of interestPeople living with chronic illnesses and disabilities are often prevented from telling their stories as they don’t have happy endings or end with triumph.Their stories often don’t fit the traditional Western storytelling format that has a clear resolution, but rather speaks to ongoing challenges continually lived in the present.Society, publishing and media outlets create forces that often both shape the narratives people tell and determine what kind of stories reach audiences.There is a need to allow more venues for allowing stories about ongoing struggles that do not resolve rather than to silence these narratives because they don’t fit our learned, preferred tastes

Aesthetics · Agency (philosophy · Art · Identity (music · Literature · Narrative · Narrative inquiry · Silence · Social science · Sociology · Storytelling · Counseling, Therapy, and Family Dynamics · Empathy and Medical Education · Hermeneutics and Narrative Identity · History · Psychology

  • Narrativising chaos via narrative agency

    Albeena Stephen, Reshma Jacob•Journal of Graphic Novels & Comics•2025

  • Sharing stories

    Open Access•Henriette Søby Gärtner, Bodil Hansen Blix et al.•Health An Interdisciplinary…•2026

  • Centering U.S. Rural, Immigrant Latinx Adolescent Voices Through Narrative Mapping

    Angela L Palmer-Wackerly, Jessie Coffey et al.•Health Communication•2025

  • Reliable Narrators of Experience

    Open Access•Kate De Medeiros•The Hastings Center Report•2025

  • Toward acoustic justice

    Umar Daraz, Younas Khan•Journal of Urban Affairs•2026

  • The Menopausal Storyteller

    Open Access•Kelly Lockwood, Toni Wood•Feminist Criminology•2026

  • There is nothing beautiful or life-affirming in it

    Open Access•Henriette Søby Gärtner, Bodil Hansen Blix et al.•Mortality•2025

  • Narrative Medicine

    Rita Charon•Narrative medicine•2006

  • On the Self-Stigma of Mental Illness

    Open Access•Patrick W Corrigan, Deepa Rao•The Canadian Journal of Psychiatry•2012

  • The Wounded Storyteller

    A W Frank•Wounded Storyteller•1995

  • Exile and Pride

    Eli Clare, Aurora Levins Morales et al.•Exile and Pride•2009

  • Narrative and its potential contribution to disability studies

    Brett Smith, A C Sparkes•Disability & Society•2007

  • Unhealthy Disabled

    Open Access•Susan Wendell•Hypatia•2001

  • Extraordinary Bodies

    Ann Folwell, Rosemarie Garland Thomson•American Literature•1998

  • Contrasting perspectives on narrating selves and identities

    Open Access•Brett Smith, A C Sparkes•Qualitative Research•2008

Citations per year7
Citation span2025 - 2026 (2)
Highly citedNo

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