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There is nothing beautiful or life-affirming in it

Experiences of Harm in a Narrative Course Combining Rehabilitative and Palliative Care Approaches for People Who Have or Have Had Cancer

Bibliographic Data

ID7163489
AuthorsHenriette Søby Gärtner (0000-0002-5050-1191, University of Southern Denmark, corresponding author), Bodil Hansen Blix (0000-0002-1049-4636, UiT The Arctic University of Norway), Mette Raunkiær (0000-0003-1197-5455, University of Southern Denmark), Helga Timm (0000-0003-1388-1794, University of Southern Denmark), Helle Timm
Year2025
Volume30
Issue3
Pages695-711
Publication date2025-07-03
Open AccessYes
TypeARTICLE
VenueMortality (JOURNAL)
Journal identifiersISSN: 1357-6275 • E-ISSN: 1469-9885
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/13576275.2024.2360521
OpenAlexW4399387836
LanguageEN
Citations received3
References cited40

Narrative methods have been shown to help people with cancer to create meaning, find hope and restore a sense of coherence in life. Likewise, the combination of rehabilitation and palliative care for people with life-threatening illness is receiving increasing interest and is generally perceived as beneficial for patients. Four narrative courses combining rehabilitation and palliative care approaches for people who have or have had cancer were carried out in Denmark between 2021 and 2022. An ethnographic field study revealed that some of the course participants experienced harm during the courses and therefore chose to withdraw. Findings show that a rehabilitation approach dominated in the courses and that the participants’ experiences of harm occurred in a complex interplay between the participants, the professionals and the specific narrative exercises. While some participants’ stories were recognised as legitimate and meaningful and were continuously supported and encouraged, other participants’ stories of suffering were suppressed

Aesthetics · Art · Cancer · Epistemology · Harm · Life course approach · Literature · Narrative · Nothing · Palliative care · Psychoanalysis · Sociology · Grief, Bereavement, and Mental Health · Medicine · Nursing · Palliative Care and End-of-Life Issues · Patient Dignity and Privacy · Philosophy · Psychology · Social Psychology

  • Sharing stories

    Open Access•Henriette Søby Gärtner, Bodil Hansen Blix et al.•Health An Interdisciplinary…•2026

  • Moments of Misalignment

    Open Access•Mikala Erlik, Anette Lykke Hindhede et al.•Health An Interdisciplinary…•2026

  • The Most Fantastic Thing is Coming Here as an Individual and Going to Bed as Part of a Group”

    Open Access•Henriette Søby Gärtner, Bodil Hansen Blix et al.•OMEGA - Journal of Death and Dying•2024

  • Data Analysis in Qualitative Research

    Stefan Timmerman, Stefan Timmermans et al.•Data Analysis in Qualitative…•2022

  • Abductive Analysis

    Iddo Tavory, Stefan Timmerman et al.•Abductive Analysis•2014

  • Against Narrativity

    Open Access•Galen Strawson•Ratio•2004

  • Redefining Palliative Care—A New Consensus-Based Definition

    Open Access•Lukas Radbruch, Liliana De Lima et al.•Journal of Pain and Symptom…•2020

  • Dignity Therapy

    Harvey Max Chochinov, Thomas F Hack et al.•Journal of Clinical Oncology•2005

  • Confronting suffering with narrative theory, constructed selfhood, and control

    Open Access•Elisa Aaltola•Journal of Disability & Religion•2019

  • A conceptual framework for selecting appropriate populations for public health interventions

    Open Access•Jens Aagaard-Hansen, Anette Lykke Hindhede et al.•Frontiers in Public Health•2023

  • A Guide to Abductive Thematic Analysis

    Open Access•Jamie Thompson•Qualitative Report•2022

  • Promoting psychosocial wellbeing following stroke using narratives and guided self-determination

    Open Access•Marit Kirkevold, Randi Martinsen et al.•BMC Psychology•2014

  • The Problems and Needs of Patients Diagnosed with Cancer and Their Caregivers

    Open Access•Anna Lewandowska, Grzegorz Rudzki et al.•International Journal of…•2020

  • The Experiences of People With Advanced Cancer and Professionals Participating in a Program With Focus on Rehabilitation and Palliative Care

    Open Access•Mette Raunkiær•OMEGA - Journal of Death and Dying•2022

  • Before narrative

    Open Access•Sara Wasson•Medical Humanities•2018

  • Chronicling the chronic

    Open Access•Femke A H van Hout, Femke van Hout et al.•Medical Humanities•2022

  • Claiming chaos narrative, emerging from silence

    Colleen Donnelly•Disability & Society•2021

  • Adverse effects of public health interventions

    Theo Lorenc, Kathryn Oliver•Journal of Epidemiology and…•2014

  • Dark logic’

    Chris Bonell, Farah Jamal et al.•Journal of Epidemiology and…•2015

  • The collective/affective practice of cancer survivorship

    Open Access•Alex Broom, K Kenny et al.•British Journal of Sociology•2019

  • Ethics, Reflexivity, and "Ethically Important Moments" in Research

    Open Access•Marilys Guillemin, Lynn Gillam•Qualitative Inquiry•2004

Citations per year1.5
Citation span2024 - 2026 (3)
Highly citedNo

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