We didn’t tell everybody because everybody didn’t need to know”
An examination of parental disability-disclosure of Spina Bifida
Bibliographic Data
| ID | 12312628 |
|---|---|
| Authors | Kristopher Copeland (0000-0002-0540-1781, North Lake College, corresponding author), BreeAnna L Lasater (Communication and Media Studies, Northeastern State University, Tahlequah, OK, USA) |
| Year | 2018 |
| Volume | 33 |
| Issue | 9 |
| Pages | 1482-1502 |
| Publication date | 2018-10-06 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Disability & Society (JOURNAL) |
| Journal identifiers | ISSN: 0968-7599 • E-ISSN: 1360-0508 |
| Publisher | Taylor & Francis (PUBLISHER • GB) |
| DOI | 10.1080/09687599.2018.1498321 |
| OpenAlex | W2894740642 |
| Language | EN |
| Citations received | 1 |
| References cited | 39 |
This qualitative study sheds light on the process that parents go through as they learn of a spina bifida diagnosis and the communication strategies that are used to discuss an expected disability diagnosis with others. Interviews with 30 participants discovered that there were immediate disclosures made with family and close friends. Additionally, circumstantial disclosures took place when returning to routine behaviors. Participants described five distinctive criteria that developed a privacy boundary: self-blame, grief, helping others cope, maintaining privacy of child, and stigma. Implications for parents, medical professionals, and communication scholars are discussed
Blame · Circumstantial evidence · Developmental psychology · Grief · Intellectual disability · Psychiatry · Qualitative research · Sociology · Spina bifida · Stigma (botany · Disability Rights and Representation · Family and Disability Support Research · Family Support in Illness · Law · Medicine · Psychology · Social Psychology · Pediatrics
Qualitative Research
Brief Status Report on Communication Privacy Management Theory
Strategic approaches to disability disclosure on social media
Understanding disabling barriers
The changing face of parent advocacy
The Human Rights of Children with Disabilities
From majority to minority
Naturalistic inquiry
Stress, social support, and the buffering hypothesis
Ambiguous Loss
Interability Communication
Not Wishing to Be the White Rhino in the Crowd
Stigma Management in Normal-Stigmatized Interactions
| Unique citing works | 1 |
|---|---|
| Citations per year | 1 |
| Citation span | 2025 - 2025 (1) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 1 |