Autism in Spain
Parents between the medical model and social misunderstanding
Bibliographic Data
| ID | 12313341 |
|---|---|
| Authors | Paulo Padilla-Petry (0000-0002-8616-5644, Department of Methods of Research and Diagnosis in Education (MIDE), University of Barcelona (UB), corresponding author), Mónica Saladrigas-Tuà (Department of Methods of Research and Diagnosis in Education (MIDE), University of Barcelona (UB)) |
| Year | 2020 |
| Volume | 37 |
| Issue | 3 |
| Pages | 454-475 |
| Publication date | 2020-10-04 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Disability & Society (JOURNAL) |
| Journal identifiers | ISSN: 0968-7599 • E-ISSN: 1360-0508 |
| Publisher | Taylor & Francis (PUBLISHER • GB) |
| DOI | 10.1080/09687599.2020.1828043 |
| OpenAlex | W3092031784 |
| Language | EN |
| References cited | 44 |
The parenting of children with autism has traditionally been explored through its negative aspects, but researchers have started to look for different parental experiences focusing on the positive experiences, family resilience and strengths of children with autism. A cross-cultural analysis considers that cultural understanding of autism reflects the way different societies and parents understand it, the variation in meanings of health, illness and disability and not simply the amount of information about autism. In a small-scale exploratory study in Spain, 8 parents from different families were interviewed to explore how they experienced their children’s autism and their perception of society’s response to it. Findings suggested a general lack of information about autism, parents’ trouble finding strengths of autism and a division of roles and responsibilities that seems to place a disproportionate load on the mothers.Points of interestThe way that a society understands autism affects how parents experience their sons’ and daughters’ autism.This paper examines the experiences of parents of children and young people with autism in Spain through semi-structured interviews.The participants of our study did not feel included in Spanish society since many people have misconceptions about autism, do not know how to help and stare at them and their children.The parents of our study seemed to share a medical view of their sons and daughters and only one of them could think of a positive trait of his son, besides being loving.Both fathers and mothers who took part in the study agreed that mothers bear all the responsibility for caring and deciding the therapeutic and educational measures adopted
Autism · Developmental psychology · Exploratory research · Perception · Psychological resilience · Sociology · Trait · Autism Spectrum Disorder Research · Disability Rights and Representation · Family and Disability Support Research · Psychology · Social Psychology
Sociologies of Disability and Illness
The quality of life of parents of children with autism spectrum disorder
Disability Rights and Wrongs Revisited
A Discussion of Chain Referral As a Method of Sampling Hard-to-Reach Populations
Medicine, Gender, and Disability
Experiences of university life for students with Asperger’s Syndrome
Capabilities and disability
The construction of communicative (in)competence in autism
The meaning of autism
Exploring how the social model of disability can be re-invigorated for autism
The social model of disability as an oppositional device
Autism across cultures
Critical autism studies
Appreciating the world of autism through the lens of video interaction guidance
Developing a model of disability that focuses on the actions of disabled people
Images and narratives of autism within charity discourses
Improving research about us, with us
Representations of autism in Australian print media
I accept my son for who he is – he has incredible character and personality’
The experiences of African immigrant mothers living in the United Kingdom with a child diagnosed with an autism spectrum disorder
How is disability understood? An examination of sociological approaches
Parental voices and controversies in autism
Towards an Affirmation Model of Disability
Using thematic analysis in psychology
Bad Boys, Good Mothers, and the "Miracle" of Ritalin
Brothers' Experiences Caring for a Sibling With Down Syndrome
Doing their jobs
| Citation velocity | historical |
|---|---|
| Highly cited | No |