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Orchestrating voices

Autism, identity and the power of discourse

Bibliographic Data

ID12313832
AuthorsNancy Bagatell (0000-0001-7275-4125, University of Southern California, corresponding author)
Year2007
Volume22
Issue4
Pages413-426
Publication date2007-06-01
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueDisability & Society (JOURNAL)
Journal identifiersISSN: 0968-7599 • E-ISSN: 1360-0508
PublisherTaylor & Francis (PUBLISHER • GB)
DOI10.1080/09687590701337967
OpenAlexW2035465080
LanguageEN
Citations received67
References cited10

Constructing identities is a highly social, ongoing process. For individuals with disabilities this process can be particularly challenging, given the powerful negative discourses of disability. While there has been some attention given to the issue of identity and disability, there has been little attention paid to the process of identity construction for individuals with autism, in large part because of the assumption that social worlds hold little importance. This ethnographic study, which focuses on the process of identity construction for one young man with autism, was conducted over nine months using participant observation and interviews to construct an in‐depth narrative. Using the works of anthropologists and the literary scholar Bahktin as an interpretive framework, this article illustrates that constructing identities requires creativity and ingenuity. It is hard work, in many ways a struggle to orchestrate conflicting discourses in an attempt to author oneself and construct multiple identities. Acknowledgements I would like to thank Cheryl Mattingly, Melissa Park, Pollie Price, Esther Heucker, Susan Spitzer and Donald Holmes for their support and suggestions during the conceptualization of this article

Aesthetics · Art · Autism · Conceptualization · Construct (python library · Creativity · Developmental psychology · Disability studies · Epistemology · Ethnography · Identity (music · Ingenuity · Linguistics · Narrative · Power (physics · Process (computing · Social constructionism · Social science · Sociology · Anthropology · Autism Spectrum Disorder Research · Computer Science · Disability Rights and Representation · Family and Disability Support Research · Gender Studies · Psychology · Social Psychology

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    Open Access•Monique Botha, D M Frost•Society and Mental Health•2020

  • Neurological Identities and the Movement of Neurodiversity

    Open Access•F Ortega•Sociology of power•2020

  • Perplexing nearness

    Open Access•Anne Toft Ramsbøl, Lone Grøn et al.•Hau Journal of Ethnographic Theory•2026

  • ‘A Smaller Mask’

    Open Access•Ben Belek•Culture Medicine and Psychiatry•2022

  • Autistic culture online

    Joyce Davidson•Social & Cultural Geography•2008

  • TikTok as algorithmically mediated biographical illumination

    Open Access•Meryl Alper, Jessica Sage Rauchberg et al.•New Media & Society•2023

  • Asperger’s syndrome does not exist”

    Open Access•M A Cascio•BioSocieties•2021

  • The Cerebral Subject and the Challenge of Neurodiversity

    Open Access•F Ortega•BioSocieties•2009

  • Inherent Tensions and Possibilities

    Open Access•Kristin Miller, Kristin L Miller et al.•Behavior and Social Issues•2019

  • Empowering a Disabled Identity

    Open Access•Nicole M Satterlund, Anca M Miron et al.•Journal of Community & Applied…•2025

  • Representations of autism in Australian print media

    Sandra C Jones, Valerie Harwood•Disability & Society•2009

  • Neurodiversity and deficit perspectives in The Washington Post ’s coverage of autism

    Noa Lewin, Nameera Akhtar•Disability & Society•2020

  • Autism self-advocacy in the Netherlands

    Mitzi Waltz, Karin van den Bosch et al.•Disability & Society•2015

  • Storying transition-to-work for/and youth on the autism spectrum in the United States

    Jennifer Wolgemuth, Vonzell Agosto et al.•Disability & Society•2016

  • Parental voices and controversies in autism

    Mary Langan•Disability & Society•2011

  • Beyond biomedicine

    Saoirse Mac Cárthaigh•Disability & Society•2019

  • Autism is me

    Open Access•Monique Botha, Bridget Dibb et al.•Disability & Society•2020

  • The autism predicament

    Melissa Anderson-Chavarria•Disability & Society•2021

  • The meaning of autism

    Sara O’Neil, Sara O'Neil•Disability & Society•2008

  • Empowerment in decision-making for autistic people in research

    M A Cascio, Jonathan A Wei et al.•Disability & Society•2020

  • Sensory highs’, ‘vivid rememberings’ and ‘interactive stimming’

    Carmel Conn•Disability & Society•2015

  • Fake it ‘till you make it”

    Open Access•Kate Seers, Rachel Hogg•Feminism & Psychology•2022

  • Performative acts of autism

    Open Access•J N Lester, T M Paulus•Discourse & Society•2012

  • That teacher takes everything badly”

    J N Lester, T M Paulus•International Journal of…•2013

  • The Human Spectrum

    Open Access•D W Maynard•Symbolic Interaction•2025

  • Annual Bibliography of Works About Life Writing, 2006-2007

    Phyllis E Wachter, William Todd Schultz•Biography•2007

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    Open Access•Caroline Kelly, Shivani Sharma et al.•Disability & Society•2024

  • The intersection of autism and gender in the negotiation of identity

    Open Access•Isobel Moore, Gareth Morgan et al.•Feminism & Psychology•2022

  • Divided Communities and Absent Voices

    Open Access•Bridget Liang•Studies in Social Justice•2022

  • Fieldwork on Another Planet

    Open Access•Chloe Silverman•BioSocieties•2008

  • Exploring the potential for social networking among people with autism

    Open Access•Charlotte Brownlow, Hanna Bertilsdotter Rosqvist et al.•Scandinavian Journal of…•2013

  • But That's Just What You Can't Do’

    Joanne Limburg•Life Writing•2015

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    Open Access•Kelly Fagan Robinson•Journal of the Royal Anthropologica…•2025

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    Open Access•Saryn Hingston, Bonnie M Lashewicz•Disability & Society•2025

  • Mapping the social geographies of autism – online and off-line narratives of neuro-shared and separate spaces

    Hanna Bertilsdotter Rosqvist, Charlotte Brownlow et al.•Disability & Society•2012

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    Emily Hutcheon, Raidah Noshin et al.•Disability & Society•2017

  • Are you by chance on the spectrum?’ Adolescents with autism spectrum disorder making sense of their diagnoses

    Jeremy L Jones, Jennifer L Jones et al.•Disability & Society•2015

  • Positioning, strategizing, and charming

    AnnMarie Darrow Baines•Disability & Society•2012

  • They’re told all the time they’re different’

    Nick Hodge, Emma J Rice et al.•Disability & Society•2019

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    Hanna Bertilsdotter Rosqvist•Disability & Society•2012

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    Open Access•Olga Solomon, Mary C Lawlor et al.•Culture Medicine and Psychiatry•2018

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    Open Access•Sarah Arnaud, Quinn Hiroshi Gibson•Philosophical Studies•2025

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    Open Access•Maciej Wodziński, Marcin Rządeczka et al.•Community Mental Health Journal•2022

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    Olivia Bustion•Journal of the American Academy…•2017

  • Weaponized Autism

    Ruxandra Mihaela Gheorghe, David Yuzva Clement•Deviant Behavior•2024

  • It cuts both ways

    Open Access•Joyce Davidson•Social Science & Medicine•2010

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    Open Access•E Coleman-Fountain•Social Science & Medicine•2017

  • A construção do diagnóstico do autismo em uma rede social virtual brasileira

    Open Access•F Ortega, Rafaela Zorzanelli et al.•Interface - Comunicação Saúde…•2013

  • Autistic Autobiographies and More-Than-Human Emotional Geographies

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    Open Access•Naomi E Winstone, Naomi Winstone et al.•Childhood•2014

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    Open Access•Olga Solomon, Nancy Bagatell•Ethos•2010

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    Dorinne Kondo, Dorinne K Kondo•Crafting Selves•1990

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    Dan P Mcadams•Self and Identity•1997

  • Selves as Cultured As Told by an Anthropologist Who Lacks a Soul

    Dorothy Holland•Self and Identity•1997

  • Writing Ethnographic Fieldnotes

    Robert M Emerson, Rachel I Fretz et al.•Writing Ethnographic Fieldnotes•1995

  • Narrative configuration in qualitative analysis

    Donald E Polkinghorne•International Journal of…•1995

Unique citing works67
Citations per year3,53
Citation span2007 - 2026 (20)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 67

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Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae