Creating Community-Based Participatory Research in a Diverse Community
A Case Study
Bibliographic Data
| ID | 12807477 |
|---|---|
| Authors | Linda Silka (0000-0003-0729-7102, University of Massachusetts Lowell, corresponding author), G Dean Cleghórn (Greater Lawrence Family Health Center), Milagro Grullón, Trinidad Tellez (Greater Lawrence Family Health Center) |
| Year | 2008 |
| Volume | 3 |
| Issue | 2 |
| Pages | 5-16 |
| Publication date | 2008-06-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Empirical Research on Human Research Ethics (JOURNAL) |
| Journal identifiers | ISSN: 1556-2646 • E-ISSN: 1556-2654 |
| Publisher | SAGE Publishing (PUBLISHER • US) |
| DOI | 10.1525/jer.2008.3.2.5 |
| PMID | 19385742 |
| OpenAlex | W1963668267 |
| Language | EN |
| Citations received | 19 |
| References cited | 20 |
Communities struggle to create research guidelines for ethical collaborative research within their locale. In Lawrence, Massachusetts (USA) a collaborative group of community members and academic researchers, known as the Mayor's Health Task Force Research Initiative Working Group, took on the challenge of creating guidelines for ethical community-based research. This case study of the Task Force's work addresses questions of research ethics in a diverse community where families struggle with few resources and face many health disparities, under the often-intrusive and unhelpful scrutiny of researchers from the many nearby major research universities. Representatives from the city, community organizations, and research universities developed a set of core ethical principles for research partnerships, a list of criteria for agreements between partners, and a model to help guide researchers and community members toward equitable and mutually beneficial research. This model can be generalized to similar other communities
Community-based participatory research · Engineering ethics · Management · Participatory action research · Political science · Public relations · Research ethics · Scrutiny · Sociology · Task (project management · Task force · Work (physics · Community Health and Development · Engineering · Health Policy Implementation Science · Mental Health and Patient Involvement · Public Administration
Can the center hold? Boundary actors and marginality in a community-based natural resource management network
A realist-constructionist perspective on participatory research in health promotion
Open Social Scholarship Annotated Bibliography
Introduction to Special Issue
The Research Ethics Committee is Not the Enemy
Science, Politics, and Identity in Northern Research Ethics Licensing
Community-Based Participatory Research in Disaster Preparedness Among Linguistically Isolated Populations
Developing a Family-Based Hiv Prevention Intervention in Rural Kenya
Opportunities, Ethical Challenges, and Lessons Learned from Working with Peer Research Assistants in a Multi-Method HIV Community-Based Research Study in Ontario, Canada
A Community-Based Participatory Research Study of HIV and HPV Vulnerabilities and Prevention in Two Pacific Islander Communities
Are We Asking the Right Questions? A Review of Canadian REB Practices in Relation to Community-Based Participatory Research
Ethical Community-Engaged Research
Exploring How Public Health Partnerships with Community-Based Organizations (CBOs) can be Leveraged for Health Promotion and Community Health
Preferences and perceived barriers to pursuing energy sovereignty and renewable energy
Transdisciplinary research partnerships in sustainability science
Community–University Partnerships in Community-Based Research
A Funding Initiative for Community-Based Participatory Research
Evaluating International Collaboration
Researchers' Perspectives on Collective/Community Co-Authorship in Community-Based Participatory Indigenous Research
Community-based Participatory Research
Community-based participatory research as a tool to advance environmental health sciences.
It’s Like Tuskegee in Reverse”
Research Ethics Review and Aboriginal Community Values
Participatory action research
Building a community-based research partnership
The Role of Community Advisory Boards
Addressing Urban Health in Detroit, New York City, and Seattle Through Community-Based Participatory Research Partnerships
Racial and Ethnic Approaches to Community Health (Reach) Detroit Partnership
Ethics in Public Health Research
Can Public Health Researchers and Agencies Reconcile the Push From Funding Bodies and the Pull From Communities
Re-Conceptualizing the Belmont Report
Ethical Challenges for the "Outside" Researcher in Community-Based Participatory Research
| Citations per year | 1.06 |
|---|---|
| Citation span | 2008 - 2023 (16) |
| Highly cited | No |