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Inform with Care

Ethics and Information in Care for People with Dementia

Bibliographic Data

ID12902111
AuthorsMarian Barnes, Flis Henwood (0000-0003-2706-3100, University of Brighton, corresponding author)
Year2015
Volume9
Issue2
Pages147-163
Publication date2015-04-03
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueEthics and Social Welfare (JOURNAL)
Journal identifiersISSN: 1749-6535 • E-ISSN: 1749-6543
PublisherTaylor & Francis (PUBLISHER • GB)
DOI10.1080/17496535.2014.969753
OpenAlexW1953335927
LanguageEN
Citations received7
References cited23

Good care is often positioned as a natural by-product of the widespread availability of good information ( association through empirical investigation of the information in the context of dementia care. It combines critiques of the care with insights from the epistemological dimension of care ethics to argue that information is better understood as relational practices of care involve the mobilisation and negotiation of different types of knowledge that are specific to caring relationships and contexts. The argument is illustrated through the three cases of caring relationships taken from a qualitative evaluation of an information and support course for carers of people with dementia. These cases highlight the specificity of caring relationships and the very different consequences of introducing new forms of knowledge into each relationship and provide evidence for the need for a paradigm shift where the idea of informing to care is replaced by a process of informing with care. In the former, information is understood as separate and outside of care, while nevertheless acting upon it to produce care; in the latter, information is understood as inextricably linked to care (with care) but not in any predetermined or uni-directional sense. The paper identifies key interlinked components of the‘inform to care’). This paper contests this–care relationship‘informatisation’ of‘situated knowledge’ and that the‘inform with care’ approach derived from the cases discussed

Argument (complex analysis · Context (archaeology · Dementia · Epistemology · Ethics of care · Knowledge management · Negotiation · Product (mathematics · Situated · Social science · Sociology · Computer Science · Medicine · Mental Health and Patient Involvement · Nursing · Palliative Care and End-of-Life Issues · Patient Dignity and Privacy · Psychology

  • Local Online Information for Carers in England

    Open Access•Jill Manthorpe, Jo Moriarty et al.•Practice•2023

  • Add info and stir’

    Open Access•Nicole K Dalmer•Ageing and Society•2018

  • (In)Forming care

    Nicole K Dalmer•International Journal of Care and…•2024

  • The epistemological complexity of ideal care

    Antti Hämäläinen•International Journal of Care and…•2022

  • Technologies in caregiving

    Open Access•Holger Højlund, K Villadsen•New Technology Work and Employment•2020

  • Participation through the lens of care

    Open Access•Benjamin Marent, Flis Henwood et al.•Social Science & Medicine•2023

  • Negotiating the practical ethics of 'self-tracking' in intimate relationships

    Open Access•Catherine M Will, Catherine Will et al.•Social Science & Medicine•2020

  • The Logic of Care

    A Mol•Logic of Care•2008

  • Care in everyday life

    Open Access•Marian Barnes•Care in Everyday Life•2012

  • The Personal Is Philosophical Is Political

    Open Access•Eva Feder Kittay•Metaphilosophy•2009

  • Citizenship and the Ethics of Care

    Selma Sevenhuijsen•Citizenship and the ethics of care•2003

  • “I like to be an informed person but…” negotiating responsibility for treatment decisions in cancer care

    Open Access•Christina Sinding, Pamela L Hudak et al.•Social Science & Medicine•2010

  • That Others Matter

    Tula Brannelly•Ethics and Social Welfare•2011

  • Abandoning Care? A Critical Perspective on Personalisation from an Ethic of Care

    Marian Barnes•Ethics and Social Welfare•2011

  • Care Ethics and Carers with Learning Disabilities

    Nicki Ward•Ethics and Social Welfare•2011

  • Reconsidering the term ‘carer’

    Open Access•VICTORIA MOLYNEAUX, SARAH BUTCHARD et al.•Ageing and Society•2011

  • In a different voice

    Carol Gilligan, Carol Gilliagan•In a Different Voice•1993

  • Cognitive disability and its challenge to moral philosophy

    Eva Feder Kittay, Licia Carlson•Cognitive disability and its…•2010

  • Upheavals of Thought

    Open Access•Martha C Nussbaum, Martha Nussbaum•Upheavals of Thought: The…•2001

  • Informing health? Negotiating the logics of choice and care in everyday practices of 'healthy living

    Open Access•Flis Henwood, Roma Harris et al.•Social Science & Medicine•2011

  • Simians, Cyborgs, and Women

    Donna Haraway•Simians, Cyborgs, and Women•2013

  • Situated Knowledges

    Donna Haraway•Feminist Studies•1988

  • The Emergence of E-Scaped Medicine

    Open Access•Sarah Nettleton•Sociology•2004

Unique citing works7
Citations per year0,88
Citation span2018 - 2024 (7)
Citation velocityrecent
Highly citedNo
Citation typesNeutral: 7

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