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Categorizing family caregiving experiences across health continuums

A mixed-methods qualitative study

Bibliographic Data

ID13108771
AuthorsMegan Shepherd-Banigan (0000-0002-4020-8936, Durham VA Health Care System, corresponding author), Molly Mcfatrich (0000-0001-5202-0335, Duke University), Alexa Namestnik (Duke University), Nicole Lucas (0000-0002-6326-4922, Duke University), Erin E Kent (0000-0003-2503-2191, University of North Carolina at Chapel Hill), Amy G Clark (0000-0001-9947-4334, Duke University), K Goldstein (Durham VA Health Care System), Karen Kavanaugh (0000-0003-3351-7324, Carter Center), Jennifer M Olsen (0000-0001-6547-8791, Carter Center), Courtney H Van Houtven (0000-0002-0783-1611, Durham VA Health Care System), Jennifer M Gierisch (0000-0002-5057-4964, Durham VA Health Care System)
Year2026
Pages1-22
Publication date2026-02-12
Open AccessNo
TypeARTICLE
VenueInternational Journal of Care and Caring (JOURNAL)
Journal identifiersISSN: 2397-8821 • E-ISSN: 2397-883X
PublisherBristol University Press (PUBLISHER • GB)
DOI10.1332/23978821y2026d000000172
OpenAlexW7128738647
LanguageEN

This article presents a caregiver-centered framework that categorizes the experiences of caregivers to align unmet caregiver needs with relevant supports. The study applied a partner-engaged, qualitative, mixed-methods approach. Using findings from a qualitative evidence synthesis, facilitated data sorting, and caregiver focus groups, the team developed and refined a conceptual model comprised of four key components: phases, goals, stressors, and multilevel contextual factors. This model was simplified into a framework of ten categories of caregiving experiences that are widely applicable to the US caregiving context. This framework is a tool for healthcare and social service professionals to target caregiver supports

Conceptual framework · Conceptual model · Family caregivers · Focus (optics · Focus group · Health care · Health professionals · Qualitative property · Qualitative research · Family and Patient Care in Intensive Care Units · Family Caregiving in Mental Illness · Intergenerational Family Dynamics and Caregiving

Highly citedNo

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