End-of-Life Concerns and Care Preferences
Congruence among Terminally Ill Elders and Their Family Caregivers
Bibliographic Data
| ID | 13627624 |
|---|---|
| Authors | Daniel S Gardner (0000-0002-0797-0638, New York University, corresponding author), Betty J Kramer (University of Wisconsin–Madison) |
| Year | 2010 |
| Volume | 60 |
| Issue | 3 |
| Pages | 273-297 |
| Publication date | 2010-02-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | OMEGA - Journal of Death and Dying (JOURNAL) |
| Journal identifiers | ISSN: 0030-2228 • E-ISSN: 1541-3764 |
| Publisher | SAGE Publishing (PUBLISHER • US) |
| DOI | 10.2190/om.60.3.e |
| PMID | 20361726 |
| OpenAlex | W2142522194 |
| Language | EN |
| Citations received | 7 |
| References cited | 52 |
This study examined the end-of-life challenges, concerns, and care preferences of terminally ill elders and their family caregivers, with a focus on areas of congruence and incongruence. Ten elders and 10 family caregivers participated in separate, semi-structured, face-to-face interviews. Data analysis included team coding and thematic analysis, guided by an a priori set of categories based on the study questions. Shared challenges and concerns included experiencing decline, managing pain and discomfort, and living with uncertainty. There was also congruence regarding end-of-life care preferences, specifically the importance of quality care, treatment with dignity and respect, and avoiding unnecessary life-sustaining treatment. Areas of incongruence included the elders' difficulties in accepting dependence, their fears of becoming a burden, and desire to be prepared for death. Family caregivers were most concerned with providing adequate care to meet the elders' physical and spiritual care needs. Open family communication was associated with greater congruence. The authors discuss implications of these findings for research and intervention
Congruence (geometry · Dignity · End-of-life care · Family caregivers · Palliative care · Qualitative research · Thematic analysis · Grief, Bereavement, and Mental Health · Medicine · Nursing · Palliative Care and End-of-Life Issues · Patient Dignity and Privacy · Psychology · Social Psychology · Gerontology
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Case Study Research
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Feeling like a burden
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| Unique citing works | 7 |
|---|---|
| Citations per year | 0,47 |
| Citation span | 2011 - 2023 (13) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 7 |