Show and Tell
Photography and Storytelling to Better Understand the End-of-Life Experience of Families in the Intensive Care Unit
Bibliographic Data
| ID | 13627875 |
|---|---|
| Authors | Emilee Binette (0009-0001-5665-9766, University of Connecticut, corresponding author), Joy Elwell (University of Connecticut), Amisha Parekh de Campos (0000-0001-8051-4797, University of Connecticut), Robert V Anderson (VITAS Hospice) |
| Year | 2023 |
| Volume | 92 |
| Issue | 2 |
| Pages | 865-893 |
| Publication date | 2023-07-26 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | OMEGA - Journal of Death and Dying (JOURNAL) |
| Journal identifiers | ISSN: 0030-2228 • E-ISSN: 1541-3764 |
| Publisher | SAGE Publishing (PUBLISHER • US) |
| DOI | 10.1177/00302228231190957 |
| PMID | 37496111 |
| OpenAlex | W4385295392 |
| Language | EN |
| References cited | 51 |
End-of-life in the Intensive Care Unit (ICU) is common, costly, and can contribute to negative health outcomes for bereaved family members. Insufficient understanding of the family experience results in poor quality, highly variable care riddled with deficiencies including effective identification and application of evidence-based clinical interventions. Successfully managing the multitude of transitions, for example changes in family role or personal identity requires creative practice guided by theory. This project supports the feasibility of using peri-mortem photographs captured by family members with story-telling and a standardized measurement of grief to explore the family experience of end-of-life in the ICU. Project findings reveal shared experiential themes and emphasize the value of photography and storytelling as meaning-making interventions for families. Further study to generalize findings and develop additional preventative and therapeutic interventions at and beyond end-of-life in the ICU is needed to better meet family needs and improve their health outcomes
Aesthetics · Experiential learning · Grief · Identification (biology · Identity (music · Multitude · Narrative · Pedagogy · Psychological intervention · Psychotherapist · Storytelling · Unit (ring theory · Family and Patient Care in Intensive Care Units · Grief, Bereavement, and Mental Health · Medicine · Nursing · Palliative Care and End-of-Life Issues · Psychology
The Triple Aim
From Triple to Quadruple Aim
Aspects of Scientific Explanation
Twelve tips to teach culturally sensitive palliative care
Photovoice
Identifying vulnerability in grief
The photograph reaches out
Social Media Mourning
Psychological Research on Death Attitudes
A photovoice study on the bereavement experience of mothers after the death of a child
Primer in Theory Construction
Most Prized Possessions
Beyond the visual and verbal
| Citation velocity | historical |
|---|---|
| Highly cited | No |