Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

Exploiting Loss

Ethical Considerations, Boundaries, and Opportunities for the Study of Death and Grief Online

Bibliographic Data

ID13628636
AuthorsHeather J Carmack (0000-0002-5520-3951, James Madison University, corresponding author), Jocelyn M Degroot (0000-0001-7724-3949, Southern Illinois University Edwardsville)
Year2014
Volume68
Issue4
Pages315-335
Publication date2014-05-09
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueOMEGA - Journal of Death and Dying (JOURNAL)
Journal identifiersISSN: 0030-2228 • E-ISSN: 1541-3764
PublisherSAGE Publishing (PUBLISHER • US)
DOI10.2190/om.68.4.b
PMID24968619
OpenAlexW2042528530
LanguageEN
Citations received9
References cited58

More people are turning to the Internet to communicate about dying, death, and grief experiences. This theoretical article explores the ethical dilemmas, challenges, and opportunities presented to researchers interested in exploring how death and grief are communicated online. Weaving together the literatures of computer-mediated communication and thanatology (dying and death), we discuss the ways in which many common ethical dilemmas uniquely manifest related to death and grief. We also explore the emotional impact studying death and grief online has on researchers and the importance of thinking about researcher emotions on scholars who study these issues. We end with recommendations of how to move forward in the dialogue about ethics and studying death and grief online

Disenfranchised grief · Grief · Psychotherapist · Social science · Sociology · Thanatology · Traumatic grief · Focus Groups and Qualitative Methods · Grief, Bereavement, and Mental Health · Psychology · Qualitative Research Methods and Ethics · Social Psychology

  • Dialectical-Relational Approach on Profanity Words among Muslim Students

    Open Access•Dana Marsetiya Utama, Triastama Wiraatmaja et al.•Celt A Journal of Culture English…•2024

  • To grieve or not to grieve (online)? Interactions with deceased Facebook friends

    Jessica Blower, Rachael Sharman•Death Studies•2019

  • Preeclampsiasurvivor and symbolic interactionism in women’s maternal health

    Emily M Cramer, Jae Eun Chung et al.•Health Care For Women International•2022

  • Introduction

    Erica Borgstrom, Julie Ellis•Mortality•2017

  • Situating Ethics in Online Mourning Research

    Open Access•David Myles, Maria Cherba et al.•Qualitative Inquiry•2019

  • Unexpected Negative Participant Responses and Researcher Safety

    Open Access•Jocelyn M Degroot, Heather J Carmack•Journal of Communication Inquiry•2020

  • Searching for a Narrative of Loss

    Open Access•Maja Sawicka•Symbolic Interaction•2017

  • Crowdsourcing obituaries in the digital age

    Open Access•Pamela Graham•Media International Australia•2017

  • If you didn't laugh, you'd cry

    Open Access•William Mcgowan•Methodological Innovations•2020

  • Basics of qualitative research

    Anselm Strauss, Juliet Corbin et al.•Basics of qualitative research•2008

  • Bereavement research

    Open Access•Margaret S Stroebe, Wolfgang Stroebe et al.•Palliative Medicine•2003

  • Research ethics in Internet-enabled research

    Open Access•Joseph B Walther•Ethics and Information Technology•2002

  • Virtual Community Care? Social Policy and the Emergence of Computer Mediated Social Support

    Roger Burrows, Sarah Nettleton et al.•Information Communication & Society•2000

  • Rethinking Research Ethics for Mediated Settings

    Anne Beaulieu, A Estalella•Information Communication & Society•2012

  • The Ethical Work That Regulations Will Not Do

    Annamaria Carusi, Giovanni De Grandis•Information Communication & Society•2012

  • Internet Communication and Qualitative Research

    CHRIS MANN, Fiona A Stewart et al.•Internet communication and…•2000

  • Fabrication as Ethical Practice

    A N Markham, Annette Markham•Information Communication & Society•2012

  • Risk to Researchers in Qualitative Research on Sensitive Topics

    Open Access•Virginia Dickson-Swift, Erica L James et al.•Qualitative Health Research•2008

  • Reflexive Journaling on Emotional Research Topics

    Open Access•Claudia Malacrida•Qualitative Health Research•2007

  • Dying, death, and grief in an online universe

    Tony Walter•Mortality•2012

  • Surviving Grief

    Open Access•Ruth M Swartwood, Patricia Mccarthy Veach et al.•OMEGA - Journal of Death and Dying•2011

  • Memorializing Loved Ones on the World Wide Web

    Open Access•B De Vries, Judy Rutherford•OMEGA - Journal of Death and Dying•2004

  • Bereavement, Gender, and Cyberspace

    Open Access•George W Musambira, Sally O Hastings et al.•OMEGA - Journal of Death and Dying•2007

  • Legal and Ethical Considerations in Research with Sexually Active Adolescents

    Nancy E Findholt, Linda C Robrecht•Perspectives on Sexual and…•2002

  • The Role of Communication and Story Telling in the Family Grieving System

    Cecilia Bosticco, Teresa L Thompson•Journal of Family Communication•2005

  • Encountering Distressing Information in Online Research

    Open Access•Susannah R Stern•New Media & Society•2003

  • Blogging Practices

    Open Access•Jan Schmidt•Journal of Computer-Mediated…•2007

  • Anonymity and Self-Disclosure on Weblogs

    Open Access•Hua Qian, C Ronald Scott•Journal of Computer-Mediated…•2007

  • Publicly Private and Privately Public

    Open Access•Patricia G Lange•Journal of Computer-Mediated…•2007

  • Bloggers' Expectations of Privacy and Accountability

    Open Access•Fernanda Viégas, Fernanda B Viégas•Journal of Computer-Mediated…•2006

  • Studying Online Social Networks

    Open Access•Laura Garton, Caroline Haythornthwaite et al.•Journal of Computer-Mediated…•2006

  • Ethical Issues for Qualitative Research in On-line Communities

    Charlotte Brownlow, Lindsay O’dell•Disability & Society•2002

  • It May Not Be Pretty, But It's Honest”

    Jocelyn M Degroot, Heather J Carmack•Death Studies•2013

  • For Whom the Bell Tolls”

    Jocelyn M Degroot•Death Studies•2013

  • Go Away”

    James M Hudson, Amy Bruckman•The Information Society•2004

  • Does the Internet Change How We Die and Mourn? Overview and Analysis

    Open Access•Tony Walter, Rachid Hourizi et al.•OMEGA - Journal of Death and Dying•2012

  • Compassion Stress and the Qualitative Researcher

    Open Access•Kathleen B Rager•Qualitative Health Research•2005

  • Ethical Issues in the Documentary Data Analysis of Internet Posts and Archives

    Open Access•Judith Sixsmith, Craig D Murray et al.•Qualitative Health Research•2001

  • Expanding the Notion of Researcher Distress

    Open Access•Lesa L Woodby, Beverly Rosa Williams et al.•Qualitative Health Research•2011

  • Collecting Sensitive Data

    Open Access•Barbara Johnson, Jill Macleod Clarke•Qualitative Health Research•2003

  • The Impact of Working with Disturbing Secondary Data

    Open Access•Ben Fincham, Jonathan Scourfield et al.•Qualitative Health Research•2008

  • Research Alert! Qualitative Research may be Hazardous to your Health

    Open Access•Linda Dunn•Qualitative Health Research•1991

  • The prediction of bereavement outcome

    Open Access•Margaret S Stroebe, Susan Folkman et al.•Social Science & Medicine•2006

  • Drag Queens' Use of Language and the Performance of Blurred Gendered and Racial Identities

    Stephen L Mann•Journal of Homosexuality•2011

  • Ambiguous Loss

    Open Access•Tamara D Golish, K Powell et al.•Journal of Social and Personal…•2003

Unique citing works9
Citations per year1
Citation span2017 - 2024 (8)
Citation velocityrecent
Highly citedNo
Citation typesNeutral: 9

Tools

Open DOISci-Hub
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae