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Patients Feeling Severely Affected by Multiple Sclerosis

Addressing Death and Dying

Bibliographic Data

ID13629471
AuthorsHeidrun Golla (0000-0002-4403-630X, Department of Palliative Medicine, University Hospital of Cologne, Germany, corresponding author), Maren Galushko (0000-0003-2045-5419, Department of Palliative Medicine, University Hospital of Cologne, Germany), Julia Strupp (0000-0003-3135-2693, Department of Palliative Medicine, University Hospital of Cologne, Germany), Ute Karbach (0000-0003-3479-9474, University of Cologne), Holger Pfaff (0000-0001-9154-6575, University of Cologne), Christoph Ostgathe (0000-0003-4449-5036, Department of Palliative Medicine, University Hospital of Cologne, Germany), Raymond Voltz (Department of Palliative Medicine, University Hospital of Cologne, Germany)
Year2016
Volume74
Issue2
Pages275-291
Publication date2016-07-15
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueOMEGA - Journal of Death and Dying (JOURNAL)
Journal identifiersISSN: 0030-2228 • E-ISSN: 1541-3764
PublisherSAGE Publishing (PUBLISHER • US)
DOI10.1177/0030222815598443
OpenAlexW2466737788
LanguageEN
Citations received4
References cited36

Eleven months after being interviewed in a study on unmet needs of severely affected multiple sclerosis patients, one participant died by assisted suicide. We reanalyzed the data to find out if our 15 study patients might have brought up the topic of death and dying during episodic interviews that had not primarily addressed this issue. Secondary analysis with regard to the thematic field of death and dying revealed that patients unsolicited brought up this issue within the following categories: “Passing over death and dying,” “Death is not relevant to me,” “We want to keep up the life challenge,” “Death as an option,” and “Wish to have the opportunity to address end of life issues.” We conclude that the topic of death and dying is of importance to these patients, as they spontaneously mentioned it in multiple varieties. Health professionals should individually acknowledge patients' needs to address death and dying

Cause of death · Disease · Family medicine · Feeling · Health care · Health professionals · Multiple sclerosis · Pathology · Psychiatry · Qualitative research · Thematic analysis · Family Support in Illness · Medicine · Multiple Sclerosis Research Studies · Optimism, Hope, and Well-being · Psychology · Social Psychology

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Unique citing works4
Citations per year0,67
Citation span2020 - 2025 (6)
Citation velocityrecent
Highly citedNo
Citation typesNeutral: 4

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