Promoting Collaboration Between Hospice and Palliative Care Providers and Adult Day Services for Individuals With Intellectual and Developmental Disabilities

Bibliographic Data

ID13629758
AuthorsCorina R Ronneberg (0000-0001-8105-1886, Department of Gerontology, John E. McCormack School of Policy & Global Studies, University of Massachusetts, Boston, MA, USA, corresponding author), Lisa Peters-Beumer (Adult and Senior Services, Easter Seals HQ, Chicago, IL, USA), Beth Marks (0000-0002-8243-5643, University of Illinois Chicago), Alan Factor (University of Illinois Chicago)
Year2015
Volume70
Issue4
Pages380-403
Publication date2015-03-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueOMEGA - Journal of Death and Dying (JOURNAL)
Journal identifiersISSN: 0030-2228 • E-ISSN: 1541-3764
PublisherSAGE Publishing (PUBLISHER • US)
DOI10.1177/0030222815573724
PMID26036060
OpenAlexW2334803235
LanguageEN
Citations received2
References cited21

While end-of-life issues are increasingly gaining more attention, people with intellectual and developmental disabilities (IDD) continue to receive significantly less consideration in research, education, and clinical practice compared with the general population. This is a growing concern especially since the sheer number of persons aging with IDD is expected to double in the next 17 years. Furthermore, policies are shifting to reflect a preference for home and community-based services as an alternative to institutionalization, and it becomes evident that adult day services (ADS) may be ideal settings for receipt of end-of-life care, especially among individuals with IDD. However, end-of-life care and advance planning most commonly occur in long-term care settings for the general population and have historically been less of a priority in ADS and residential services for people with IDD. This article discusses the attitudes of, and collaboration between, ADS and end-of-life providers for aging adults including persons with IDD and explores how ADS may be a great pathway for delivering end-of-life care to the IDD population. Implications and recommendations will also be examined

Advance care planning · Business · Day care · End-of-life care · Institutionalisation · Intellectual disability · Palliative care · Population · Preference · Psychiatry · Receipt · Adolescent and Pediatric Healthcare · Down syndrome and intellectual disability research · Family and Disability Support Research · Medicine · Nursing · Psychology · Gerontology

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