Conceptualising Person-centered Advance Care Planning for People with Intellectual Disabilities
A Multifaceted Theoretical Approach
Bibliographic Data
| ID | 12901910 |
|---|---|
| Authors | Jacqueline M Mcginley (0000-0002-8037-9318, University at Buffalo, State University of New York, corresponding author), Victoria Knoke (University of Wisconsin–Madison) |
| Year | 2018 |
| Volume | 12 |
| Issue | 3 |
| Pages | 244-258 |
| Publication date | 2018-07-03 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Ethics and Social Welfare (JOURNAL) |
| Journal identifiers | ISSN: 1749-6535 • E-ISSN: 1749-6543 |
| Publisher | Taylor & Francis (PUBLISHER • GB) |
| DOI | 10.1080/17496535.2018.1505929 |
| OpenAlex | W2885772894 |
| Language | EN |
| References cited | 36 |
Due to advances in care in recent decades, adults with intellectual disabilities (ID) are living longer than ever before. This requires increased attention to issues surrounding serious illness and end-of-life care. Person-centered advance care planning has been identified as an important aspect of respecting the wishes and values of individuals. Despite this, adults with ID are largely excluded from these discussions. This paper triangulates the Bioecological Theory of Human Development, Symbolic Interactionism, and the Human Rights Perspective to explore the complexity of person-centered care for older adults with ID. Specifically highlighted will be some of the ethical concerns and environmental barriers that limit the participation of adults with ID in person-centered care. The framework outlined in this paper seeks to facilitate a more comprehensive understanding among researchers, social workers, and care systems that there is nothing inherent in people with ID that precludes them from person-centered advance care planning and end-of-life care as they age and experience serious illness. Implications for social work practice will also be discussed
Advance care planning · Independent living · Intellectual disability · Palliative care · Perspective (graphical · Political science · Psychiatry · Public relations · Sociology · Symbolic interactionism · Computer Science · Disability Rights and Representation · Down syndrome and intellectual disability research · Healthcare innovation and challenges · Law · Medicine · Nursing · Psychology · Social Psychology · Social Work · Gerontology
Physical disability--A psychological approach.
Human Development, Bioecological Theory of
The Point of Triangulation
The Ethics of Care, Dependence, and Disability
Symbolic Interactionism
Promoting Collaboration Between Hospice and Palliative Care Providers and Adult Day Services for Individuals With Intellectual and Developmental Disabilities
Uses and Misuses of Bronfenbrenner's Bioecological Theory of Human Development
The UN Convention on the Rights of Persons with Disabilities
End-of-Life Care Policies for People With an Intellectual Disability
Five Models for Thinking About Disability
Staff responses to age‐related health changes in people with an intellectual disability in group homes
A Critical Analysis of the Emerging Crisis in Long-Term Care for People with Developmental Disabilities
Beyond Stigma
Disability in Everyday Life
Social Perceptions of People with Disabilities in History
| Citation velocity | historical |
|---|---|
| Highly cited | No |