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Well, what do You Want to do?’ A Case Study of Community Palliative Care Programme

‘Heidi’s Have a Go’

Bibliographic Data

ID13629890
AuthorsMoira Stanley (Deakin University), Moira A Stanley (Deakin University), Angela Daddow (0000-0003-2666-7105, Deakin University, corresponding author)
Year2022
Volume88
Issue4
Pages1335-1348
Publication date2022-01-20
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueOMEGA - Journal of Death and Dying (JOURNAL)
Journal identifiersISSN: 0030-2228 • E-ISSN: 1541-3764
PublisherSAGE Publishing (PUBLISHER • US)
DOI10.1177/00302228211052801
PMID35049401
OpenAlexW4205166170
LanguageEN
References cited16

The demand for palliative care has increased in high income countries as mortality in older adults has decreased and life expectancy increased. In this context, the priorities of palliative and end of life care (EoLC) have shifted in Australia, reflected in policy frameworks, national guidelines, service systems and funding models. However, aligning service systems and practice realities with these policy aspirations has been problematic in Australia and elsewhere. The current study investigates the recent implementation of a unique, community palliative care (CPC) programme called Heidi's Have a Go (HHaG) in regional Australia, which seemed to bridge the problematic divide between policy aspirations and practice implementation. Qualitative research was undertaken to examine the programme design and influence from the perspective of programme staff and volunteers. The data generated compelling stories on staff and patient experiences in its first 2 years, achieving service outcomes aligned with current policy and national frameworks and privileging patient voices

Business · Context (archaeology · End-of-life care · Life expectancy · National Policy · Palliative care · Perspective (graphical · Political science · Public relations · Qualitative research · Service (business · Social science · Sociology · Geriatric Care and Nursing Homes · Grief, Bereavement, and Mental Health · History · Marketing · Medicine · Nursing · Palliative Care and End-of-Life Issues · Psychology

  • Compassionate communities

    Allan Kellehear•QJM•2013

  • Thematic analysis

    Victoria Clarke, Braun•The Journal of Positive Psychology•2017

  • The art of case study research

    Robert E Stake•The art of case study research•1995

  • Ecological Death Reform and Death System Change

    Open Access•Nick MacMurray, Robert Futrell•OMEGA - Journal of Death and Dying•2019

  • Why Is It Just So Hard? Making Sense of End-of-Life Communication Between Adult Children and Their Terminally Ill Parental Figures

    Open Access•Emily Scheinfeld, Pamela Lake et al.•OMEGA - Journal of Death and Dying•2019

Citation velocityhistorical
Highly citedNo

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Open DOIOpen Access
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