The Death Literacy Index
Testing the Death System Literacy of Unpaid Carers of Palliative Patients
Bibliographic Data
| ID | 13630221 |
|---|---|
| Authors | Kristine Van Dinther (0000-0001-8742-8322, Flinders University, corresponding author), Kerrie Noonan (0000-0002-6441-2624, La Trobe University), R Leonard (0000-0002-7642-5529, Western Sydney University), Sara Javanparast (0000-0002-0388-5524, Flinders University) |
| Year | 2025 |
| Pages | 302228251319478-302228251319478 |
| Publication date | 2025-02-12 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | OMEGA - Journal of Death and Dying (JOURNAL) |
| Journal identifiers | ISSN: 0030-2228 • E-ISSN: 1541-3764 |
| Publisher | SAGE Publishing (PUBLISHER • US) |
| DOI | 10.1177/00302228251319478 |
| PMID | 39939284 |
| OpenAlex | W4407398716 |
| Language | EN |
| Citations received | 4 |
| References cited | 41 |
Unpaid carers of palliative patients make a significant contribution to the health economy but are particularly vulnerable to burdens due to facing the prospect of death. Caring for a loved one at the end-of-life requires knowledge of the death system in which they operate to access both practical support networks and services and emotional support for themselves. We combined qualitative data from interviews and focus groups with survey data designed using the Death Literacy Index (DLI) for 18 unpaid carers of palliative patients in South Australia. Comparing the DLI with the lived experience of carers revealed factors affecting the manner in which carers talk, learn and share knowledge about death and dying. A compassionate communities' model is proposed to capitalise on the strengths and rectify the deficits which pose barriers to unpaid carers networks of support
Index (typography · Literacy · Pedagogy · World Wide Web · Computer Science · Grief, Bereavement, and Mental Health · Medicine · Palliative Care and End-of-Life Issues · Psychology · Religion, Spirituality, and Psychology · Gerontology
The Death Literacy Index
The end-of-life needs of Aboriginal and immigrant communities
Perceived Help-Seeking Difficulty, Barriers, Delay, and Burden in Carers of People with Suspected Dementia
Validity and Reliability of the Turkish Version of the Death Literacy Index
The Death System According to Robert Kastenbaum
Comfort with discussions about death, religiosity, and attitudes about end‐of‐life care
Family Relationships and Advance Care Planning
The voices of death doulas about their role in end‐of‐life care
Preparedness for caregiving
Social prescribing link workers—A qualitative Australian perspective
Preparedness for caregiving and preparedness for death
Developing a death literacy index
Bringing our dying home
| Unique citing works | 4 |
|---|---|
| Citations per year | 4 |
| Citation span | 2025 - 2026 (2) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 4 |